Hyperparathyroidism: A Patient's Perspective

About Hyperparathyroidism: A Patient's Perspective

Lisa Marie candidly shares her personal journey with the disease, providing invaluable insights from a patient's perspective. Lisa Marie delves into the symptoms, challenges, and unique experiences associated with hyperparathyroidism, shedding light on its impact on daily life. This is not a podcast about thyroid problems, underactive, overactive or thyroid cancers. This is a podcast about parathyroid disease, relating to the 4 tiny glands that sit behind your thyroid gland. Throughout the podcast, listeners gain a deep understanding of the diverse symptoms that accompany hyperparathyroidism. Lisa Marie discusses the physical manifestations, such as fatigue, muscle weakness, and bone pain, that can significantly disrupt a person's quality of life. She emphasizes the importance of recognising these symptoms and seeking medical attention for proper diagnosis and treatment. Please see the RESOURCES guide below. One of the lesser-known aspects of hyperparathyroidism that Lisa Marie explores is its effects on dental health. She shares her own struggles with dental issues, including bone loss, which are common complications of the condition. By sharing her experiences, she aims to raise awareness about the importance of dental care in managing hyperparathyroidism and improving overall well-being. Hair loss is another topic that Lisa Marie bravely addresses in the podcast. She discusses how hyperparathyroidism can contribute to hair thinning and loss, highlighting the emotional toll it can take on individuals already grappling with the challenges of the disease. Through her candid storytelling, she offers empathy and support to listeners who may be experiencing similar hair-related concerns. Ultimately, "Hyperparathyroidism: A Patient's Perspective" provides a platform for patients like Lisa Marie to share their journeys, fostering understanding, empathy, and solidarity within the hyperparathyroidism community. By sharing her story, Lisa Marie hopes to empower others to advocate for their health, seek support, and navigate the complexities of living with hyperparathyroidism with resilience and hope. ABBREVIATIONS: HPT - Hyperparathyroidism. nHPT - Normocalcemic Hyperparathyroidism. PTH - Parathyroid Hormone Level. ng/L - Blood chemistry measurement. MP - Member of Parliament -UK CLARIFICATIONS: Hyperplasia verses single adenoma. Hyperplasia affects all four glands and the glands become enlarged. A single adenoma usually a benign (non-cancerous) tumour of the gland. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. It also includes a link to a well-organised and run patietn to patient support group. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ Hyperparathyroidism Support and Information - Patient-to-Patient Support Group https://www.facebook.com/groups/406980976340533 NICE Guidelines https://www.nice.org.uk/guidance/ng132 Fibromyalgia https://www.nhs.uk/conditions/fibromyalgia/symptoms/ https://www.fmauk.org/ Menopause https://www.nhs.uk/conditions/menopause/ https://www.newsonhealth.co.uk/ Thyroid Function https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/ https://www.btf-thyroid.org/what-is-thyroid-disorder DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Publisher

Lisa Marie Olson

Category

health & fitness · health & fitness

Language

en

Explicit

No

First episode

22 Apr 2024

Latest episode

2 May 2024

Latest episodes

11 episodes in the feed.

1. 

   2 May 2024

   Episode 10: Finding the Right Support Group for Hyperparathyroidism Patient to Patient Supprt

   In this episode, Lisa Marie discusses the importance of patient-to-patient support groups, but more importantly, choosing the right support group. Lisa Marie shares insight on how to choose the right support group and what might be helpful to consider when choosing to join a relevant support group. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism Support & Information - Patient-to-Patient Support Group https://www.facebook.com/groups/406980976340533 (https://www.facebook.com/groups/406980976340533) DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

2. 

   1 May 2024

   Episode 9: Post Surgery Tips and Expectations Relating to Hyperparathyroidism

   Lisa Marie discusses post-surgery tips, getting prepared ahead of your surgery, relevant contact numbers for your surgeon or medical specialists and approved medications for use post-surgery. This episode also explores post-surgery expectations, potential recovery times, and the importance of giving yourself time to heal. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ (https://www.nhs.uk/conditions/hyperparathyroidism/) Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/) Hyperparathyroidism Support & Information - Patient to Patient Support Group https://www.facebook.com/groups/406980976340533 (https://www.facebook.com/groups/406980976340533) NICE Guidelines https://www.nice.org.uk/guidance/ng132 (https://www.nice.org.uk/guidance/ng132) DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

3. 

   30 Apr 2024

   Episode 8: Helpful Tips for Navigating a Diagnosis of Hyperparathyroidism

   In this episode, Lisa Marie shares valuable insights and tips for navigating your way to a diagnosis of hyperparathyroidism. The importance of being prepared ahead of any appointments you may need, is also advantageous. Asking informed questions and even getting a second opinion where possible. ABBREVIATIONS: HPT - Hyperparathyroidism. nHPT - Normocalcemic Hyperparathyroidism. PTH - Parathyroid Hormone Level. ng/L - Blood chemistry measurement. MP - Member of Parliament - UK CLARIFICATIONS: Hyperplasia verses single adenoma. Hyperplasia affects all four glands and the glands become enlarged. A single adenoma usually a benign (non-cancerous) tumour of the gland. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ (https://www.nhs.uk/conditions/hyperparathyroidism/) Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/) Hyperparathyroidism Support & Information - Patient to Patient Support Group https://www.facebook.com/groups/406980976340533 (https://www.facebook.com/groups/406980976340533) NICE Guidelines https://www.nice.org.uk/guidance/ng132 (https://www.nice.org.uk/guidance/ng132) Fibromyalgia https://www.nhs.uk/conditions/fibromyalgia/symptoms/ (https://www.nhs.uk/conditions/fibromyalgia/symptoms/) https://www.fmauk.org/ (https://www.fmauk.org/) Menopause https://www.nhs.uk/conditions/menopause/ (https://www.nhs.uk/conditions/menopause/) https://www.newsonhealth.co.uk/ (https://www.newsonhealth.co.uk/) Thyroid Function https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/ (https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/) https://www.btf-thyroid.org/what-is-thyroid-disorder (https://www.btf-thyroid.org/what-is-thyroid-disorder) DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

4. 

   29 Apr 2024

   Episode 7: Crossover Symptoms and Hyperparathyroidism

   Lisa Marie shares a few health conditions that can be very similar, if not the same to those of hyperparathyroidism. Most importantly she discusses the need to be aware of the symptoms that can cross over and those that are different so that you can identify which symptom pool relates to which health concern or condition. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ (https://www.nhs.uk/conditions/hyperparathyroidism/) Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/) Hyperparathyroidism Support & Information - Patient to Patient Support Group https://www.facebook.com/groups/406980976340533 (https://www.facebook.com/groups/406980976340533) NICE Guidelines https://www.nice.org.uk/guidance/ng132 (https://www.nice.org.uk/guidance/ng132) Fibromyalgia https://www.nhs.uk/conditions/fibromyalgia/symptoms/ (https://www.nhs.uk/conditions/fibromyalgia/symptoms/) https://www.fmauk.org/ (https://www.fmauk.org/) Menopause https://www.nhs.uk/conditions/menopause/ (https://www.nhs.uk/conditions/menopause/) https://www.newsonhealth.co.uk/ (https://www.newsonhealth.co.uk/) Thyroid Function https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/ (https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/) https://www.btf-thyroid.org/what-is-thyroid-disorder (https://www.btf-thyroid.org/what-is-thyroid-disorder) DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

5. 

   28 Apr 2024

   Episode 6: Dental Issues and Hyperparathyroidism

   In episode 5 Lisa Marie Shares her humiliating and traumatic visits to the dentist and specialist dental hospital, highlighting once again dismissive attitudes and making Lisa Marie feel entirely responsible for her dental issues. Importantly Lisa Marie highlights the need to be aware of the relationship between hyperparathyroidism and how early intervention may be the key to preserving long-term dental health. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. THE JOURNAL OF THE BRITISH ASSOCIATION OF DENTAL NURSES https://bdnj.co.uk/2021/05/06/hyperparathyroidism-what-to-know/ (https://bdnj.co.uk/2021/05/06/hyperparathyroidism-what-to-know/) DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

6. 

   27 Apr 2024

   Episode 5: Hair Loss in Hyperparathyroidism

   In this short episode, Lisa Marie shares the impact Hyperparathyroidism has had on her own hair, the inappropriate comment from an endocrinologist, and her tips for maintaining and protecting the hair during your parathyroid journey. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ (https://www.nhs.uk/conditions/hyperparathyroidism/NormocalcemicHyperparathyroidism) Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/) Hyperparathyroidism Support & Information - Patient to Patient Support Group https://www.facebook.com/groups/406980976340533 (https://www.facebook.com/groups/406980976340533) NICE Guidelines https://www.nice.org.uk/guidance/ng132 (https://www.nice.org.uk/guidance/ng132) DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

7. 

   26 Apr 2024

   Episode 4: My Parathyroid Journey

   Lisa Marie discusses her own journey with hyperparathyroidism, which highlights the challenges of getting diagnosed or being dismissed and gaslighted. This episode also covers the additional challenges women in particular might face, simply by being women or being women of a certain age, not to mention some of the inappropriate statements made by healthcare professionals during many of the consultations she needed. ABBREVIATIONS: HPT - Hyperparathyroidism. nHPT - Normocalcemic Hyperparathyroidism PTH - Parathyroid Hormone Level. ng/L - The blood chemistry measurement. CLARIFICATIONS: Hyperplasia verses single adenoma. Hyperplasia affects all four glands and the glands become enlarged. A single adenoma usually a benign (non-cancerous) tumour of the gland. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ (https://www.nhs.uk/conditions/hyperparathyroidism/) Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/) Hyperparathyroidism Support & Information - Patient to Patient Support Group https://www.facebook.com/groups/406980976340533 (https://www.facebook.com/groups/406980976340533) NICE Guidelines https://www.nice.org.uk/guidance/ng132 (https://www.nice.org.uk/guidance/ng132) DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

8. 

   25 Apr 2024

   Episode 3: Tests & Scans for Hyperparathyroidism

   In episode 3 Lisa Marie discusses the very basic must have tests for diagnositic puposes, along with a variety of scans which may be organised by your healthcare professional. Lisa Marie also mentions a Sestambi scan, which she finds very problematic to pronouce correctly, so she shares her apologies if this is not correct. ABBREVIATIONS: HPT - Hyperparathyroidism. nHPT - Normocalcemic Hyperparathyroidism PTH - Parathyroid Hormone Level. CLARIFICATIONS: Hyperplasia verses single adenoma. Hyperplasia affects all four glands and the glands become enlarged. A single adenoma usually a benign (non-cancerous) tumour of the gland. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ (https://ttps://www.nhs.uk/conditions/hyperparathyroidism/NormocalcemicHyperparathyroidism) Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/) Hyperparathyroidism Support & Information - Patient to Patient Support Group https://www.facebook.com/groups/406980976340533 (https://www.facebook.com/groups/406980976340533) NICE Guidelines https://www.nice.org.uk/guidance/ng132 (https://www.nice.org.uk/guidance/ng132) DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

9. 

   24 Apr 2024

   Episode 2: Types of Hyperparathyroidism

   In episode 2 Lisa Marie explores the different presentations of hyperparathyroidism, such as classic presentation, normocalcemic presentation, and normohormonal presentation, the latter of which, can be tricky to diagnose and need expert medical intervention. ABBREVIATIONS: HPT - Hyperparathyroidism. nHPT - Normocalcemic Hyperparathyroidism PTH - Parathyroid Hormone Level. CLARIFICATIONS: Hyperplasia verses single adenoma. Hyperplasia affects all four glands and the glands become enlarged. A single adenoma usually a benign (non-cancerous) tumour of the gland. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ (https://www.nhs.uk/conditions/hyperparathyroidism/) Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/) Hyperparathyroidism Support & Information - Patient to Patient Support Group https://www.facebook.com/groups/406980976340533 (https://www.facebook.com/groups/406980976340533) NICE Guidelines https://www.nice.org.uk/guidance/ng132 (https://www.nice.org.uk/guidance/ng132) DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

10. 

    23 Apr 2024

    Episode 1: What is Hyperparathyroidism?

    Lisa marie shares a basic overview of what hyperparathyroidism is. ABBREVIATIONS: HPT - Hyperparathyroidism. nHPT - Normocalcemic Hyperparathyroidism PTH - Parathyroid Hormone Level. CLARIFICATIONS: Hyperplasia verses single adenoma. Hyperplasia affects all four glands and the glands become enlarged. A single adenoma usually a benign (non-cancerous) tumour of the gland. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ (https://www.nhs.uk/conditions/hyperparathyroidism/) Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/) Hyperparathyroidism Support & Information - Patient to Patient Support Group https://www.facebook.com/groups/406980976340533 (https://www.facebook.com/groups/406980976340533) NICE Guidelines https://www.nice.org.uk/guidance/ng132 (https://www.nice.org.uk/guidance/ng132) DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

11. 

    22 Apr 2024

    Introduction to 'Hyperparathyroidism: A Patient's Perspective'

    Lisa Marie shares an introduction to the upcoming episodes, what the podcast is and is not about, as well as the importance of seeking medical advice from a qualified medical professional. This is not a podcast about thyroid problems, underactive, overactive, or thyroid cancers. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, the NHS website, and curated guides from my support group. Please click on the links below for more information. Hyperparathyroidism Support & Information Facebook Group https://www.facebook.com/groups/406980976340533 (https://www.facebook.com/groups/406980976340533) Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ (https://www.nhs.uk/conditions/hyperparathyroidism/) Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/) NICE Guidelines https://www.nice.org.uk/guidance/ng132 (https://www.nice.org.uk/guidance/ng132) DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.