Podcast thumbnail for POGZcast

by White Sutton Syndrome Foundation

5.0(5 reviews)
2 episodes
Updated Daily
Accepts GuestsHas Sponsors

Podcast Overview

<p>The POGZcast is a podcast for individuals and families affected by White Sutton syndrome. We’re Josh and Amanda Couch, and we’re parents, advocates, and part of the team behind the White Sutton Syndrome Foundation. The POGZcast exists because individuals with White-Sutton syndrome exist—and their stories matter. In each episode we share real conversations with parents, doctors, researchers, and advocates working to better understand White Sutton syndrome and support the families living it every day. Whether you’re newly diagnosed or years into this journey, you’re not alone—and we’re glad you’re here!</p>

Language

🇺🇲

Publishing Since

1/2/2026

2 verified contact emails on file for POGZcast

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Recent Episodes

Episode thumbnail for Meet the Doctors

February 6, 2026

Meet the Doctors

<p>Episode 2 of the POGZcast! In this episode, Josh and Mandy talk to doctors Jansen White and V. Reid Sutton. These doctors were the force behind one of the earliest papers written on POGZ-related disorders in 2016, and are the namesakes of White-Sutton syndrome.</p><p></p><p>Contact Us: <a rel="noopener noreferrer nofollow" href="https://whitesutton.org/contact/" target="_blank">https://whitesutton.org/contact/</a></p><p>Research Papers: <a rel="noopener noreferrer nofollow" href="https://whitesutton.org/research/" target="_blank">https://whitesutton.org/research/</a></p><p>Jansen White's original paper: <a rel="noopener noreferrer nofollow" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4702300/" target="_blank">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4702300/</a></p>

Episode thumbnail for Why POGZcast Exists

January 2, 2026

Why POGZcast Exists

<p>The inaugural episode of the POGZcast. In this episode, Josh and Mandy introduce themselves, talk about what White-Sutton syndrome is, talk foundation origins and share a little information about the new research fundraising effort.</p><p></p><p>Research page: <a rel="noopener noreferrer nofollow" href="https://whitesutton.org/2026-research/" target="_blank">https://whitesutton.org/2026-research/</a></p><p>CoRDS registry: <a rel="noopener noreferrer nofollow" href="https://whitesutton.org/research/registry/" target="_blank">https://whitesutton.org/research/registry/</a></p>

2 total episodes available

Deep-dive analytics for POGZcast

Frequently asked questions

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What is POGZcast?
<p>The POGZcast is a podcast for individuals and families affected by White Sutton syndrome. We’re Josh and Amanda Couch, and we’re parents, advocates, and part of the team behind the White Sutton Syndrome Foundation. The POGZcast exists because individuals with White-Sutton syndrome exist—and their stories matter. In each episode we share real conversations with parents, doctors, researchers, and advocates working to better understand White Sutton syndrome and support the families living it every day. Whether you’re newly diagnosed or years into this journey, you’re not alone—and we’re glad you’re here!</p>
How often does this podcast release new episodes?

This podcast updates daily.

Where can I listen to this podcast?

This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.

Does this podcast accept guests?

Yes, this podcast regularly features guests.

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