A podcast about rare diseases, the families they impact and scientists aiming to change their world through their work.
Sponsored by the Association for Creatine Deficiencies. Learn more @ CreatineInfo.org
Ramblin' Rare by ACD
Claim This Podcastby Randy Allen
5.0(3 reviews)
2 episodes
Updated Daily
Accepts GuestsHas Sponsors
Podcast Overview
A podcast about rare diseases, the families they impact and scientists aiming to change their world through their work. Sponsored by the Association for Creatine Deficiencies. Learn more @ CreatineInfo.org
Language
🇺🇲
Publishing Since
6/14/2022
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Recent Episodes
September 2, 2022
Siblings!
<p><strong>Opportunities, Challenges and Strategies for Siblings of Rare Disease Children </strong></p><p>On this episode, Randy and Nathan will discuss siblings of our rare disease kiddos. </p><p><strong>Three main takeaways.. </strong></p><ol><li><p>Siblings will naturally grow into their roles as an exceptional needs brothers or sisters, however that does not remove our responsibility as parents to help equip them for the task. </p></li><li><p>Rare disease siblings seem to mature quicker, gain more perspective earlier in life but we as parents need to go out of our way to ensure that they can still be kids and have typical childhood experiences. </p></li><li><p>Siblings will be siblings - they will bother one another regardless of rare disorder or not! Allow our neuro-typical siblings to be real, get annoyed, upset, etc. </p></li></ol><p>www.creatineinfo.org</p>
June 14, 2022
Travel Tips & Making Memories
<p>Traveling this summer?</p><p>Tune in for some tips & strategies to help create some memories with your family!</p>
2 total episodes available
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- What is Ramblin' Rare by ACD?
- How often does this podcast release new episodes?
This podcast updates daily.
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