A mom's journey with 22q11.2

About A mom's journey with 22q11.2

I have a 26 year old daughter with 22q.11. I've learned a lot on this journey. Some things might be helpful to some of you, but due to the nature of 22q.11, and how the syndrome manifests differently in each person, some things might not be. I'm simply hoping that people will become educated about this interesting genetic syndrome.

Publisher

Kristi Allen

Category

kids & family

Language

en

Explicit

No

First episode

4 Jan 2020

Latest episode

19 Jun 2020

Latest episodes

30 episodes in the feed.

1. 

   19 Jun 2020

   Hygiene

   People with intellectual disabilities are often unaware of their personal hygiene. Teaching hygiene when they’re young may be helpful.

2. 

   19 Jun 2020

   Black Lives Matter and 22q11.2

   Just some thoughts.

3. 

   13 Jun 2020

   Conversations about world events with a 22q11.2 individual.

   All the events happening in the world right now are really confusing for anyone, but imagine how confusing it is for an individual with intellectual disabilities. Our conversations matter. These issues can bring fear and anxiety. It's our jobs as caretakers to explain world events simply and very carefully. Our conversations with others need to be monitored because even though your child may not be the one you're talking to, they may be listening, and are trying to make sense of everything they are seeing on TV and hearing all around them.

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)

5.0 / 5

2 ratings

Contact A mom's journey with 22q11.2

Guest appearances

Books guests

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