On January 5, 2026, all episodes of "Ask the Expert, ABCs of MOGAD, ABCs of NMOSD, ADEM Academy, and Community Meets Clinic" - past and present - will now be found in one feed called “SRNA Soundwaves” on all podcast streaming platforms. Make sure to subscribe to "Ask the Expert," which will be renamed “SRNA Soundwaves” on January 5th: https://creators.spotify.com/pod/profile/srna-ask-the-expert/
If you have questions about the upcoming change, please email: podcast@wearesrna.org
ADEM Academy is a podcast series designed to create awareness regarding acute disseminated encephalomyelitis.
Jan. 5, 2026, this series is moving to the “SRNA Soundwaves” channel (previously "Ask the Expert")
BIG ANNOUNCEMENT! Beginning January 5, 2026, SRNA is bringing all five of our podcast series together into a single, unified podcast channel called “SRNA Soundwaves.” This means that all episodes of "Ask the Expert, ABCs of MOGAD, ABCs of NMOSD, ADEM Academy, and Community Meets Clinic" - past and present - will now be found in one feed on Apple Podcasts, Spotify, and other podcast streaming platforms.
What this means for you: If you are already subscribed to our "Ask the Expert" series, you will automatically be subscribed to "SRNA Soundwaves" once the merge happens on January 5th. If you are subscribed to "ABCs of MOGAD, ABCs of NMOSD, ADEM Academy, or Community Meets Clinic," make sure to subscribe to "Ask the Expert," which will be renamed “SRNA Soundwaves” on January 5th, to continue to get new episodes in your feed. You can subscribe here: https://creators.spotify.com/pod/profile/srna-ask-the-expert/
We hope this change helps our community navigate our educational content more easily and enjoy a smoother, more organized podcast experience. If you have questions about the upcoming change, please email: podcast@wearesrna.org
20 Jun 2023
03. Building Your Healthcare Team for Successful Symptom Management for Those with ADEM
Dr. Linda Nguyen and Dr. Benjamin Greenberg joined Dr. GG deFiebre of SRNA for the third episode of “ADEM Academy.” This episode is titled “Building Your Healthcare Team for Successful Symptom Management for Those with ADEM.” Dr. Nguyen and Dr. Greenberg discussed physical, occupational, and speech therapy for the beginning and duration of the recovery process. They recommended types of doctors for a newly diagnosed person to prioritize and special considerations for someone who tests positive for either the MOG or anti-aquaporin-4 antibody. They also shared advice on choosing a medical professional and the importance of having early conversations with a hospital social worker and the insurance company to identify options for inpatient rehabilitation before discharge to that location. Next, they explained the ways that mental health professionals can help people to be aware of relapse signs and manage potential behavioral issues or emotional strain. In conclusion, Dr. Nguyen and Dr. Greenberg provided a summary of care for a patient with ADEM, five or ten years down the line and beyond.
12 Jun 2023
02. Adult ADEM
Krissy Dilger of SRNA and Peter Fontanez from The MOG Project were joined by Dr. Farrah Mateen for the second episode of “ADEM Academy,” an ongoing podcast series about ADEM or acute disseminated encephalomyelitis. This episode is titled “Adult ADEM.” Dr. Mateen discussed how adults typically present with ADEM, the diagnostic process, and how it differs in other stages of life. She explained how ADEM can affect adults cognitively, psychologically, and behaviorally, as well as considerations for geriatric patients. Dr. Mateen also described strategies for patients who have MOGAD, bowel and bladder issues, sexual dysfunction, and summarized the diagnostic and treatment process. The episode ended with questions from the online audience.
23 Jan 2023
01. Pediatric and Adolescent ADEM
Dr. GG deFiebre of SRNA and Peter Fontanez from The MOG Project were joined by Dr. Jonathan D. Santoro for the first episode of “ADEM Academy,” an ongoing podcast series about ADEM or acute disseminated encephalomyelitis. This episode is titled “Pediatric and Adolescent ADEM.” Dr. Santoro described the diagnosis process for ADEM, testing, treatments, and antibodies such as MOG-Ab, AQP4-Ab, and NMDA. He discussed symptoms to look for during a possible relapse, as well as rehabilitation, therapy, and ongoing research. Dr. Santoro also answered questions from the online audience.
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