When a child has a rare genetic disorder, families track micro-fluctuations in symptoms, medication shifts, and environmental triggers daily. So why does this invaluable data struggle to find a home in structured health systems?
In this episode of the AdvoSci Health Podcast, we are joined by Kasey Walsh, Founder of Winsights (https://www.winsights.life) and a parent-driven researcher. We examine:
How families become the primary data keepers in rare disease care.
The tension between "anecdotal" observations and clinical data standards.
Whether the healthcare data gap is a technical limitation of EHRs or a cultural bias.
How Winsights is building HIPAA-compliant, low-friction tools to turn real-world patient stories into FDA-grade research data.
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Follow & Subscribe to AdvoSci Health (ASH) on Spotify, Apple Podcasts, and YouTube for conversations at the intersection of advocacy, science, and health technology.
#RareDisease #CaregiverAdvocacy #HealthTech #ASHPodcast #PatientData #RealWorldEvidence #Winsights
12 Mar 2026
A Free Healthcare System at Scale: The Indus Hospital Network with Dr. Zafar Zaidi
In this episode of the ASH Podcast, Dr. Syed Zafar Zaidi, CEO of the Indus Hospital and Health Network, takes us inside one of the world’s most ambitious healthcare models - a hospital system that provides completely free care at scale. Serving millions across Pakistan, the network is redefining what equitable healthcare can look like.
How do you build and sustain a healthcare system where no patient ever receives a bill? Dr. Zaidi shares the vision, challenges, and innovations behind this groundbreaking model - and what the rest of the world can learn from it
Check out Dr. Zaidi's TED Talk to learn more about his journey!
https://www.youtube.com/watch?v=Q2G6H5_YzlI
19 Feb 2026
Episode 19: When Cities Go Global - New York, WHO, And The Future Of Public Health
What happens when a U.S. state joins the World Health Organization — after the United States officially withdraws?
In this episode, we unpack New York State’s decision to join the Global Outbreak Alert and Response Network (GOARN), a WHO-coordinated system designed to detect and respond to disease outbreaks around the world. With the U.S. federal government stepping away from WHO membership, New York — along with a few other states — has chosen to stay connected to global public health infrastructure.
Article: "First look: New York joins WHO network after Trump pulls U.S. from UN agency (https://www.axios.com/2026/02/10/new-york-who-global-outbreak-alert-response-network?)"
#GlobalHealth #PublicHealth #WHO #GOARN #HealthPolicy #PandemicPreparedness #OutbreakResponse #HealthSecurity #InfectiousDisease #GlobalGovernance #PublicHealthNews #AdvoSciHealth #ASHPodcast
Who has been a guest on AdvoSci Health
Names identified in recent episode analyses. Showing up to five guests.
Haris Ahmad
Donna Hartlen
Holly Frances
Sara Ganem
Podcast Authority Score: 21 / 100
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