How can we succeed - despite the life-changing diagnosis of Parkinson's disease - in making life positive, worth living and colorful? In my podcast I talk to people who live positively with Parkinson's in many different ways. A podcast that is meant to encourage, from people with PD for people with PD, relatives and everyone who is looking for a positive approach to the topic of Parkinson's.
"Now more than ever" by Kathrin Wersing
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9 episodes
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Podcast Overview
How can we succeed - despite the life-changing diagnosis of Parkinson's disease - in making life positive, worth living and colorful? In my podcast I talk to people who live positively with Parkinson's in many different ways. A podcast that is meant to encourage, from people with PD for people with PD, relatives and everyone who is looking for a positive approach to the topic of Parkinson's.
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Publishing Since
9/17/2023
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Recent Episodes
November 3, 2023
episode 9 - We are one Parkinson's family with Hannington Kabugo at the WPC2023
Welcome to my podcast "Now more than ever - Living positively with Parkinson's disease." My name is Kathrin Wersing and today I am sharing with you another short episode with impressions from the World Parkinson's Congress. The Congress took place in Barcelona from 4-7 July this year. The four days in Barcelona were colourful, diverse, loud and lively but most of all they were a wonderful opportunity to meet people I knew so far only from online meetings and social media. I was especially looking forward to meeting Hannington Kabugo, a truely inspiring man from Uganda. Unfortunately, my audio recordings from the WPC turned out very poorly and so I have been struggling for a long time whether to publish more episodes from the conference or not. But now I've finally decided that I'm just going to put up with this poor sound quality because I really wanted to give you an update on Hannington's story. Hannington Kabugo from Uganda was a guest on my podcast in April 2022, if you haven't heard that episode I absolutely recommend you listen to it. Here you can find the episode on spotify: https://open.spotify.com/episode/6uj8uJptnFSWHmGDy7K1yI?si=PWLe9AAkQEihONGw0u1eAw Hannington is a person who shows that no matter how hopeless a situation seems, we always have the power to make changes for the better. Hannington's mother had Parkinson's disease. In Uganda, one of the poorest countries in the world, the disease was long considered a curse. Anyone who had Parkinson's symptoms was considered bewitched, they were treated like outcasts and no one was allowed to even come close to these people because Parkinson's was believed to be contagious. Hannington experienced his mother's suffering first hand and after her death decided that never again should a person with Parkinson's suffer so much in Uganda. He founded Parkinson's si Buko, an organisation that today ensures that villages and communities in Uganda are educated about the true background of Parkinson's. With the help of supporters in the USA, Hannington has been able to make an incredible difference. This great commitment was recognised at the World Parkinson's Congress, where Hannington received a very special award. Links to this episode: Homepage of the partner organization in the USA: https://parkinsonssibuko.org/ There you can also find a direct link to donate via PayPal in favor of Parkinson's si Buko USA. All employees work on a voluntary basis and all donations go directly to Uganda. Contact Hannington Kabugo via facebook: https://www.facebook.com/kabugo.hannington.330 via E-Mail: hannyug@hotmail.com Information about Parkinson's Africa: https://www.parkinsonsafrica.org/ Thank you very much for your donation and support I look forward to your feedback on this podcast episode. Feel free to write to me: kontakt@jetzt-erst-recht.info
September 18, 2023
episode 8 - World peace is possible, now! Interview with Nenad Bach at the WPC2023 (17.09.2023)
Welcome to my podcast “Jetzt erst recht – Positiv leben mit Parkinson”. My name is Kathrin Wersing, I am 44 years old and I live in Germany. 4 years ago I was diagnosed with Parkinson’s myself. One year later I started this podcast which is about life-affirming positive inspirations from people living with Parkinson’s disease. II am convinced that – no matter if we live with Parkinson’s or not – WE are in control of our own lives and that the way we look into the future has a huge impact on our own quality of life. A few weeks ago in July, I visited the World Parkinson’s Congress in Barcelona. Those 4 days in Barcelona were not only hot in terms of temperature, but also hot in terms of topics. But what was most important for me during these days: to absorb the spirit of this event. There were so many interesting, committed and absolutely impressive people related to Parkinson’s gathered in one place, as I have never experienced before. More than 2600 people from 73 countries, including over 900 doctors and therapists, 450 people from the caring and therapeutic professions, 685 people with Parkinson’s and 260 relatives. During those days in Barcelona, I had many conversations, I took a lot of photos and audio recordings. Finally, I was faced with the overwhelming task of how to pack all this into just ONE podcast episode. So I decided to publish several short episodes with people and topics that touched ME the most at this World Parkinson’s Congress. Today I’ll start with an interview with a unique man whom I had the pleasure of meeting again at the World Parkinson’s Congress: Nenad Bach is not only a wonderful musician and composer but also the founder of the worldwide movement PingPongParkinson, which has spread like wildfire from NewYork all over the world since 2017. The idea of PingPongParkinson is quite simple: People with Parkinson’s play table tennis together in regional sports clubs in their hometown. The sport helps those affected to stay active in social life and to delay the progression of the Parkinson‘s. I experienced it myself: PingPongParkinson helps a lot of people to improve their quality of life. Nenad Bach is a man of many talents – but above all he is a visionary and an inspiring peace activist. In this interview, he tells us what keeps him moving regarding PingPongParkinson and what table tennis and peace have in common. Links to this episode: Link to Nenad Bachs artice “World peace in 1 hour” in the united Nations Chronicle https://www.un.org/en/un-chronicle/world-peace-one-hour Link to PingPingParkinson worldwide: https://www.pingpongparkinson.org/ Link to PingPongParkinson Germany: https://www.pingpongparkinson.de/ I appreciate your feedback on this podcast episode. Feel free to send me an email: kontakt@jetzt-erst-recht.info
September 18, 2023
episode 6 - Let's talk about women's issues with Dr. Annelien Oosterbaan (22.01.2023)
Hello and welcome to my podcast. My name is Kathrin Wersing and I live in Germany. Two and a half years ago I started this podcast after I was diagnosed with Parkinson’s. I wanted to find out how to live a positive and inspiring life despite the disease. Most of my interviews so far were in German language but last year I also started talking to people from all over the world in English. In my special series Parkinson’s around the world I want to continue to find out how parkinson’s is seen and treated in other countries. My guest today is Annelien Oosterbaan from the Netherlands. She was diagnosed at the age of 33. As a mother of 3 children, she was just about to start her career as a doctor when the diagnosis hit her cold. But Annelien is an impressive fighter and in the last 5 years she has not only thrown herself into Parkinson’s research with great enthusiasm but has also had a fourth child. I can promise you, this woman will impress you! I hope you enjoy this interview! Links to this episode: Article in the Journal for Movement Disorders 2022 Subramanian “Unmet needs of women living with Parkinson’ disease. Gaps and controversies.” Website for the women’s survey, Michael J. Fox Foundation: https://foxinsight.michaeljfox.org The pregnancy registry https://www.pregspark.com/ (The links doesn’t work until the expected kick off medio 2023) Advice to register: https://www.mymovesmatter.com/ Get in touch with Annelien: Twitter: @pdwomen_nl / @OosterbaanA Instagram: @annelienoosterbaan Sponsor link to support Annelien’s research: https://radboudumc.voorradboudfonds.nl/project/vrouw-en-parkinson I appreciate your feedback on this podcast episode. Feel free to send me an email: kontakt@jetzt-erst-recht.info
9 total episodes available
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This podcast updates daily.
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