- 19
- Episodes
- 1
- Ratings
- 2025
- First episode
- 23K
- YouTube views
About AS Info Share
Welcome to AS Info Share, where we provide helpful information, expert insights, and practical tips on managing Ankylosing Spondylitis (AS). Whether you're newly diagnosed or looking for support, our videos are designed to empower you with the knowledge and resources to live better with AS. Subscribe now, and let's learn more about AS together! Watch and subscribe on YouTube: AS Info Share (https://open.acast.com/networks/67dc49cdfe6b19f2d205a499/shows/67dc4be9782fc3c7c6d4c175/episodes/www.youtube.com/@ASInfoShare) 💬 Follow us on Facebook (https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr), Twitter (https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw), and Instagram (https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr) 🔗 Visit our website: ASInfoShare.com (https://asinfoshare.com/) Buy us a coffee: AS Info Share (https://buymeacoffee.com/asinfoshare) Presented by enXbo (https://www.enxbo.com) Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
- Publisher
- EB Media
- Category
- health & fitness
- Language
- en
- Explicit
- No
- First episode
- 20 Mar 2025
- Latest episode
- 6 May 2026
Latest episodes
19 episodes in the feed.
6 May 2026
How these 2025 Nobel Prize winners could impact A.S. patients
A Nobel Prize-winning discovery could change the landscape of Axial Spondyloarthritis / Ankylosing Spondylitis forever. In this episode of AS Info Share, we break down the 2025 Nobel Prize in Medicine and what it means for our community. We’re moving past just "blocking" inflammation and moving toward Treg Therapies—a revolutionary approach that uses the body’s own Foxp3 gene to restore balance and stop the attack on the spine. We discuss: The Foxp3 Blueprint: Why this "Master Controller" is the key to shutting down the AS fire. Tregs vs. HLA-B27: How this new science can override our genetic glitches. The Future of Treatment: From Low-dose IL-2 to "Precision Tregs" currently in clinical trials. Functional Cures: What it means to "re-educate" your immune system for long-term remission. This discovery may provide the most realistic path to a future without daily pain. Join us as we explore the new blueprint for AS. ---------------------------------------------------------------------------- Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment. ---------------------------------------------------------------------------- 📲 Follow & Support AS Info Share Stay connected for more tips, support, and science-backed info about ankylosing spondylitis: ☕ Support Our Work https://buymeacoffee.com/asinfoshare Support Our Sponsor https:/enXbo.com 🌐 Website https://asinfoshare.com 📘 Facebook https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr 📷 Instagram https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr X (formerly Twitter) https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw ▶️ YouTube https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV 💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation. 🔔 Tap the bell to stay updated! ---------------------------------------------------------------------------- #AnkylosingSpondylitis #AxialSpondyloarthritis #Spondylitis #ChronicIllness #ASInfoShare ---------------------------------------------------------------------------- https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
20 Apr 2026
How the SAA helps patients with Ankylosing Spondylitis / Axial Spondyloarthritis / axSpA with special guest SEAN EWERT
How do you manage the daily realities of life with Ankylosing Spondylitis and Axial Spondyloarthritis? In Part 2 of our series with Sean Ewert from the Spondylitis Association of America (SAA), we look at the support systems available to you. Sean shares his unique perspective on how the SAA is bridging the gap between patients and rheumatologists and offers vital advice for those struggling with the mental health challenges of chronic illness. ---------------------------------------------------------------------------- Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment. ---------------------------------------------------------------------------- The SAA Website:spondylitis.org (https://spondylitis.org/) Official WYASO Event Page: spondylitis.org/walk-your-as-off/ (https://spondylitis.org/walk-your-as-off/) Link to join on Zoom for Walk Your AS Off Day May 3rd: https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration (https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration) Create an account to log steps and join a team: https://spondylitis.org/my-account/?spondylitis-steps=1 (https://spondylitis.org/my-account/?spondylitis-steps=1) Donation: https://spondylitis.org/get-involved/donate-to-walk-your-as-off/ (https://spondylitis.org/get-involved/donate-to-walk-your-as-off/) Fundraise: https://spondylitis.raiselysite.com/ Contact Sean for questions: sean.ewert@spondylitis.org 📸 JOIN THE CELEBRATION This is a celebration! Whether you’re walking, stretching, or finding your own unique way to move, we want to see it. Post your photos and videos using: #WalkYourASOff | #WYASO Link to step converter: 💡 PRO TIPS FOR PARTICIPANTS World AS Day: Remember, World AS Day falls the day before the walk. Wear your orange, share your story, and help make our community visible! Step Converters: Not walking? No problem. You can use a step converter (search Google for "Activity to Step Converter") to turn yoga, swimming, or even household chores into mileage for your team! ---------------------------------------------------------------------------- 📲 Follow & Support AS Info Share Stay connected for more tips, support, and science-backed info about ankylosing spondylitis: ☕ Support Our Work https://buymeacoffee.com/asinfoshare 🌐 Website https://asinfoshare.com 📘 Facebook https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr 📷 Instagram https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr X (formerly Twitter) https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw ▶️ YouTube https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV 💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation. 🔔 Tap the bell to stay updated! ---------------------------------------------------------------------------- #AnkylosingSpondylitis #AxialSpondyloarthritis #Spondylitis #ChronicIllness #SpondylitisAssociationOfAmerica #ASInfoShare #WalkYourASOff | #WYASO ---------------------------------------------------------------------------- https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
12 Apr 2026
Walk Your A.S. Off
Movement is medicine. For those living with Ankylosing Spondylitis (AS) and Axial Spondyloarthritis (AxSpA), staying active isn't just a goal—it’s a vital part of managing the condition. In part one of this special two-part series on AS Info Share, we sit down with Sean Ewert, the Director of Member Engagement for the Spondylitis Association of America (SAA). We dive deep into the origin of the "Walk Your AS Off" (WYASO) event and discuss why this movement is more than just a walk—it’s a celebration of resilience. In this episode, Sean explains how the event can help you stay active throughout the year, how you can be part of the celebration, and the many ways you can support the movement. LET’S DO THIS! ---------------------------------------------------------------------------- Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment. ---------------------------------------------------------------------------- The SAA Website:spondylitis.org (https://spondylitis.org/) Official WYASO Event Page:spondylitis.org/walk-your-as-off/ (https://spondylitis.org/walk-your-as-off/) Link to join on Zoom for Walk Your AS Off Day May 3rd: https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration (https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration) Create an account to log steps and join a team: https://spondylitis.org/my-account/?spondylitis-steps=1 (https://spondylitis.org/my-account/?spondylitis-steps=1) Donation: https://spondylitis.org/get-involved/donate-to-walk-your-as-off/ (https://spondylitis.org/get-involved/donate-to-walk-your-as-off/) Fundraise: https://spondylitis.raiselysite.com/ Contact Sean for questions: sean.ewert@spondylitis.org 📸 JOIN THE CELEBRATION This is a celebration! Whether you’re walking, stretching, or finding your own unique way to move, we want to see it. Post your photos and videos using: #WalkYourASOff | #WYASO Link to step converter: 💡 PRO TIPS FOR PARTICIPANTS World AS Day: Remember, World AS Day falls the day before the walk. Wear your orange, share your story, and help make our community visible! Step Converters: Not walking? No problem. You can use a step converter (search Google for "Activity to Step Converter") to turn yoga, swimming, or even household chores into mileage for your team! ---------------------------------------------------------------------------- 📲 Follow & Support AS Info Share Stay connected for more tips, support, and science-backed info about ankylosing spondylitis: ☕ Support Our Work https://buymeacoffee.com/asinfoshare 🌐 Website https://asinfoshare.com 📘 Facebook https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr 📷 Instagram https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr 🐦 X (formerly Twitter) https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw ▶️ YouTube https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV 💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation. 🔔 Tap the bell to stay updated! ---------------------------------------------------------------------------- #AnkylosingSpondylitis #AxialSpondyloarthritis #Spondylitis #ChronicIllness #SpondylitisAssociationOfAmerica #ASInfoShare #WalkYourASOff | #WYASO ---------------------------------------------------------------------------- https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
6 Apr 2026
Mental Health and Late Diagnosis for Women
In our final episode with patient advocate Michael Mallinson, we peel back the layers of the "invisible" side of Axial Spondyloarthritis. Living with a chronic condition isn't just a physical battle; it’s a mental one, too. We discuss the critical role of mental health support and why it should be a standard part of every treatment plan. We also dive deep into a major gap in the healthcare system: the diagnostic challenges women face. From being dismissed by doctors to waiting years longer than men for an accurate diagnosis, we explore why the female experience with AxSpA is often misunderstood and what needs to change. ---------------------------------------------------------------------------- Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment. ---------------------------------------------------------------------------- ASIF - Axial Spondyloarthritis International Federation Canadian Spondyloarthritis Association http://www.sparthritis.ca NASS - National Axial Spondyloarthritis Society http://www.actonaxialspa.com Spondylitis Association of America http://www.spondylitis.com ASAS - Assessment of Spondyloarthritis International Federation http://www.asas-group.org EULAR - European Alliance of Associations for Rheumatology http://www.eular.org ACR - American College of Rheumatology http://www.rheumatology.org SPARTAN - Spondylarthritis Treatment and Training Network https://spartangroup.org/ Axial Spondyloarthritis Resources https://www.facebook.com/profile.php?id=100089425921229 PubMed https://pubmed.ncbi.nlm.nih.gov/ Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023 https://amzn.to/3NnXbKW ---------------------------------------------------------------------------- 📲 Follow & Support AS Info Share Stay connected for more tips, support, and science-backed info about ankylosing spondylitis: ☕ Support Our Work https://buymeacoffee.com/asinfoshare 🌐 Website https://asinfoshare.com 📘 Facebook https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr 📷 Instagram https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr 🐦 X (formerly Twitter) https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw ▶️ YouTube https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV 💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation. 🔔 Tap the bell to stay updated! ---------------------------------------------------------------------------- #AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #ASDiets #ASInfoShare ---------------------------------------------------------------------------- https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
29 Mar 2026
Fear of biologics and opinions on A.S. diet trends.
Biologics: life-changing medicine or something to fear? And can a specific diet really 'cure' an autoimmune condition? On this episode, we’re cutting through the noise. AxSpA patient advocate Michael Mallinson is back with us to tackle the anxiety surrounding medication and the dietary myths that flood our social feeds. You don’t want to miss this. ---------------------------------------------------------------------------- Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment. ---------------------------------------------------------------------------- ASIF - Axial Spondyloarthritis International Federation http://www.asif.info Canadian Spondyloarthritis Association http://www.sparthritis.ca NASS - National Axial Spondyloarthritis Society http://www.actonaxialspa.com Spondylitis Association of America http://www.spondylitis.com ASAS - Assessment of Spondyloarthritis International Federation http://www.asas-group.org EULAR - European Alliance of Associations for Rheumatology http://www.eular.org ACR - American College of Rheumatology http://www.rheumatology.org SPARTAN - Spondylarthritis Treatment and Training Network https://spartangroup.org/ Axial Spondyloarthritis Resources https://www.facebook.com/profile.php?id=100089425921229 PubMed https://pubmed.ncbi.nlm.nih.gov/ Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023 https://amzn.to/3NnXbKW ---------------------------------------------------------------------------- 📲 Follow & Support AS Info Share Stay connected for more tips, support, and science-backed info about ankylosing spondylitis: ☕ Support Our Work https://buymeacoffee.com/asinfoshare 🌐 Website https://asinfoshare.com 📘 Facebook https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr 📷 Instagram https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr 🐦 X (formerly Twitter) https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw ▶️ YouTube https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV 💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation. 🔔 Tap the bell to stay updated! ---------------------------------------------------------------------------- #AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #ASDiets #ASInfoShare ---------------------------------------------------------------------------- https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
22 Mar 2026
Stop Feeling Dismissed: How to Advocate for Your AS / AxSpA Care
Stop Feeling Dismissed: How to Advocate for Your AxSpA Care Have you ever walked out of a doctor’s office feeling unheard? In this episode of AS Info Share, we continue our deep-dive interview with patient advocate Michael Mallinson. We’re tackling the "doctor-patient" dynamic head-on, discussing how to handle clinical dismissal and providing you with the tools to become a more educated, confident advocate for your own health. In this episode, you’ll learn: What to do when a medical professional minimizes your symptoms. How to bridge the communication gap with your healthcare team. Practical steps to transition from "patient" to "empowered advocate." ---------------------------------------------------------------------------- Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment. ---------------------------------------------------------------------------- WORLD AS DAY https://asif.info/worldasday/ WALK YOU AS OFF https://spondylitis.raiselysite.com/ ASIF - Axial Spondyloarthritis International Federation http://www.asif.info Canadian Spondyloarthritis Association http://www.sparthritis.ca NASS - National Axial Spondyloarthritis Society http://www.actonaxialspa.com Spondylitis Association of America http://www.spondylitis.com ASAS - Assessment of Spondyloarthritis International Federation http://www.asas-group.org EULAR - European Alliance of Associations for Rheumatology http://www.eular.org ACR - American College of Rheumatology http://www.rheumatology.org SPARTAN - Spondylarthritis Treatment and Training Network https://spartangroup.org/ Axial Spondyloarthritis Resources https://www.facebook.com/profile.php?id=100089425921229 PubMed https://pubmed.ncbi.nlm.nih.gov/ Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023 https://amzn.to/3NnXbKW ---------------------------------------------------------------------------- 📲 Follow & Support AS Info Share Stay connected for more tips, support, and science-backed info about ankylosing spondylitis: ☕ Support Our Work https://buymeacoffee.com/asinfoshare 🌐 Website https://asinfoshare.com 📘 Facebook https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr 📷 Instagram https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr 🐦 X (formerly Twitter) https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw ▶️ YouTube https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV 💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation. 🔔 Tap the bell to stay updated! ---------------------------------------------------------------------------- #AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #WorldASDay2026 #ASInfoShare ---------------------------------------------------------------------------- https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
12 Mar 2026
Celebrate World AS Day and Walk Your AS Off Day with Special Guest Michael Mallinson
Patient advocate Michael Mallinson joins host [Host Name] to discuss the significance of World AS Day and community advocacy for Axial Spondyloarthritis.
21 Aug 2025
Can Cannabis Help with Ankylosing Spondylitis - Axial Spondyloarthritis?
Host [Host Name] explores how THC and CBD may impact pain, inflammation, and sleep for Ankylosing Spondylitis patients, comparing them to current treatments in this interview.
25 Jul 2025
Fighting Fatigue: Strategies and tools to help with Axial Spondyloarthritis / Ankylosing Spondylitis
This episode of AS Info Share examines the causes of fatigue related to Axial Spondyloarthritis / Ankylosing Spondylitis and explores strategies and tools for managing it.
14 Jul 2025
When a treatment doesn't work, you didn't fail.
AS Info Share discusses the common feelings of failure when Axial Spondyloarthritis treatments don't work, emphasizing that individuals are not alone in their experiences.
26 Jun 2025
The Name of the Disease
This episode clarifies the confusing terminology surrounding Axial Spondyloarthritis, including Ankylosing Spondylitis, Radiographic axSpA, and Non-radiographic axSpA, offering listeners a clearer understanding of these conditions.
6 Jun 2025
An Interview with NASS Board Trustee Gillian Eames
NASS Board Trustee Gillian Eames shares her experiences with ankylosing spondylitis, early biologic drug trials, and advocating for broader access to life-changing treatments in this interview.
18 May 2025
Targeted Therapies for Ankylosing Spondylitis: Biologics, JAK Inhibitors & How They Work
In this episode, we discuss two powerful treatment options for Ankylosing Spondylitis, biologics and JAK inhibitors. Learn the differences between the treatment options and how they work to help manage Ankylosing Spondylitis. Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
6 May 2025
THE HLA-B27 GENE AND MISDIAGNOSING ANKYLOSING SPONDYLITIS
In this episode, we explore the truth behind the HLA-B27 gene and its connection to ankylosing spondylitis (AS). We break down common misconceptions, especially those circulating on social media, and explain why a positive or negative test result isn't enough for a diagnosis. You'll learn how misinterpretation of this gene — by both patients and doctors — can lead to misdiagnosis, and why a full clinical picture is essential for understanding AS. Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
30 Apr 2025
The Seven Pillars of Managing Ankylosing Spondylitis
In this segment, I share my approach to managing Ankylosing Spondylitis (AS) through a "Seven Pillars" framework. I share insights into each pillar that I used on my journey toward improved well-being with AS. Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
26 Apr 2025
From Rome, Italy
A quick update from my vacation in Rome, Italy, with a lot of walking and stair climbing. Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
31 Mar 2025
An interview with Kamal Joshi from Ankylosing Spondylitis - Beyond The Pain
Join us as we chat with Kamal Joshi, creator of Ankylosing Spondylitis: Beyond the Pain! Kamal is dedicated to raising awareness and helping others with AS live healthier, symptom-free lives. He shares his personal journey, practical strategies for pain relief, and wellness tips that can make a real difference. 💡 Whether you're newly diagnosed or have been battling AS for years, this episode is packed with valuable insights you won’t want to miss! Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
24 Mar 2025
An interview with Ivy Asmus from Uniquely Me & Loving It.
We interview AS Warrior, Ivy Asmus, host of the blog Uniquely Me & Loving It: My Journey with Ankylosing Spondylitis. Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
20 Mar 2025
The intro Episode
Our first episode will briefly introduce what the show is about and what we hope to achieve. Enjoy, and please stay tuned. Hosted on Acast. See acast.com/privacy (https://acast.com/privacy) for more information.
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
- YouTube views
- 23,357
- Score snapshot 15 Sept 2025
- Apple Podcasts (US)
- 5.0 / 5
- 1 ratings
Podcast Authority Score: 32 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
- Quality
- 33
- Social presence
- 0
- YouTube
- 76
- Engagement
- 0
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