BARE IT ALL is about the GOOD, the BAD, and the UGLY parts of Biliary Atresia and we discuss some of the most vulnerable experiences patients & caregivers go through.
If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, please contact us at contactus@bareinc.org. Let's amplify our voices and foster understanding together.
BARE IT ALL Coffee Talk: Episode 3 - Guiding Through the Storm: The Role of Pediatric Liver Social Workers with Katie Sclafani, LCSW, CCTSW
In this episode of BARE IT ALL Coffee Talk, we welcome Katie Sclafani, Licensed Clinical Social Worker and Certified Clinical Transplant Social Worker with the Sala Institute for Child & Family Centered Care at NYU Langone’s Hassenfeld Children’s Hospital.
Katie walks us through the invaluable role social workers play in the pediatric liver disease journey — from diagnosis through transplant and every step in between. As part of the care team, social workers help ensure families are informed, connected to resources, and supported as they navigate complex medical decisions and transitions.
Whether you're a caregiver, healthcare provider, or advocate, this conversation offers an important look into how social workers guide and empower families during some of their most challenging moments.
Links for organizations mentioned.
Ronald McDonald House Charities | RMHC (https://rmhc.org/)
Harboring Hearts (https://www.harboringhearts.org/)
Friends of Karen - Friends of Karen (https://www.friendsofkaren.org/)Lend-A-Hand: Bare Inc. (https://www.bareinc.org/s-projects-side-by-side)
If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, please don't hesitate to contact us at contactus@bareinc.org. Let's amplify our voices and foster understanding together."
Connect with us:
• Bare Inc. (https://www.bareinc.org/)
• Instagram (https://www.instagram.com/bareinc_org/)
• X - Twitter (https://x.com/BAREInc_org)
• Facebook (https://www.facebook.com/profile.php?id=100081124818113)
• YouTube (https://www.youtube.com/@bareinc.2022)
If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association, or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant, and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or visit www.cota.org/getstarted (https://www.cota.org/getstarted) to learn more about how they can help.
Music by Magnetic_Trailer (https://pixabay.com/users/magnetic_trailer-27466606/?utm_source=link-attribution&utm_medium=referral&utm_campaign=music&utm_content=111907) from Pixabay (https://pixabay.com/music//?utm_source=link-attribution&utm_medium=referral&utm_campaign=music&utm_content=111907)
Listen now on Spotify, Apple Podcasts, or wherever you get your shows.#BiliaryAtresia #KasaiProcedure #MedicalJourney #Parenting #BAREItAll #CoffeeTalk
17 Jun 2025
BARE It All Coffee Talk – Episode 3: Special Edition Update with Rachel Perez
Rachel Perez shares her personal reflections and experiences from her emotional meeting with her donor family, offering listeners an intimate glimpse into a story of life, loss, gratitude, and connection in this interview.
10 Jun 2025
🎙️ BARE It All Coffee Talk with Rachel: Life as an Adult Biliary Atresia Survivor
Stephanie interviews Rachel, an adult Biliary Atresia survivor, who shares her experiences navigating adulthood with a rare pediatric liver disease, highlighting challenges and triumphs.
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
YouTube views
73,161
Score snapshot 15 Sept 2025
Apple Podcasts (US)
5.0 / 5
10 ratings
Spotify
5.0 / 5
9 ratings
Podcast Authority Score: 64 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
65
Social presence
0
YouTube
85
Engagement
71
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