by Bare inc
BARE IT ALL is about the GOOD, the BAD, and the UGLY parts of Biliary Atresia and we discuss some of the most vulnerable experiences patients & caregivers go through. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, please contact us at contactus@bareinc.org. Let's amplify our voices and foster understanding together.
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Publishing Since
10/11/2022
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July 17, 2025
<p>In this episode of <strong>BARE IT ALL Coffee Talk</strong>, we welcome <strong>Katie Sclafani</strong>, Licensed Clinical Social Worker and Certified Clinical Transplant Social Worker with the Sala Institute for Child & Family Centered Care at NYU Langone’s Hassenfeld Children’s Hospital.</p><p>Katie walks us through the invaluable role social workers play in the pediatric liver disease journey — from diagnosis through transplant and every step in between. As part of the care team, social workers help ensure families are informed, connected to resources, and supported as they navigate complex medical decisions and transitions.</p><p>Whether you're a caregiver, healthcare provider, or advocate, this conversation offers an important look into how social workers guide and empower families during some of their most challenging moments.</p><p><br></p><p>Links for organizations mentioned.</p><ul><li><a href="https://rmhc.org/">Ronald McDonald House Charities | RMHC</a></li></ul><ul><li><a href="https://www.harboringhearts.org/">Harboring Hearts</a></li></ul><ul><li><a href="https://www.friendsofkaren.org/">Friends of Karen - Friends of Karen</a><a href="https://www.bareinc.org/s-projects-side-by-side" target="_blank" rel="noopener noreferer">Lend-A-Hand: Bare Inc.</a></li></ul><p>If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, please don't hesitate to contact us at <a href="" target="_blank">contactus@bareinc.org</a>. Let's amplify our voices and foster understanding together."</p><p><br></p><p>Connect with us:</p><p>• <a href="https://www.bareinc.org/">Bare Inc.</a></p><p>• <a href="https://www.instagram.com/bareinc_org/">Instagram</a></p><p>• <a href="https://x.com/BAREInc_org">X - Twitter</a></p><p>• <a href="https://www.facebook.com/profile.php?id=100081124818113">Facebook</a></p><p>• <a href="https://www.youtube.com/@bareinc.2022">YouTube</a></p><p><br></p><p>If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association, or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant, and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or visit <a href="https://www.cota.org/getstarted">www.cota.org/getstarted</a> to learn more about how they can help.</p><p>Music by <a href="https://pixabay.com/users/magnetic_trailer-27466606/?utm_source=link-attribution&utm_medium=referral&utm_campaign=music&utm_content=111907">Magnetic_Trailer</a> from <a href="https://pixabay.com/music//?utm_source=link-attribution&utm_medium=referral&utm_campaign=music&utm_content=111907">Pixabay</a></p><p><strong>Listen now on Spotify, Apple Podcasts, or wherever you get your shows.</strong>#BiliaryAtresia #KasaiProcedure #MedicalJourney #Parenting #BAREItAll #CoffeeTalk</p>
June 17, 2025
Rachel Perez shares her personal reflections and experiences from her emotional meeting with her donor family, offering listeners an intimate glimpse into a story of life, loss, gratitude, and connection in this interview.
June 10, 2025
Stephanie interviews Rachel, an adult Biliary Atresia survivor, who shares her experiences navigating adulthood with a rare pediatric liver disease, highlighting challenges and triumphs.
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BARE IT ALL is about the GOOD, the BAD, and the UGLY parts of Biliary Atresia and we discuss some of the most vulnerable experiences patients & caregivers go through.
If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, please contact us at contactus@bareinc.org. Let's amplify our voices and foster understanding together.
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