Beyond the Bleeds

About Beyond the Bleeds

Beyond the Bleeds is your go-to podcast for navigating life with bleeding disorders like hemophilia, von Willebrand disease, and more. Each episode brings expert insights, inspiring personal stories, and practical advice for managing these conditions. Whether you’re living with a bleeding disorder or supporting someone who is, this podcast offers support, education, and a sense of community. Join us as we explore the challenges, triumphs, and innovations in care. For more resources, visit hemophiliaoutreach.org.

Publisher

Hemophilia Outreach Center

Category

health & fitness

Language

en

Explicit

No

First episode

5 Sept 2024

Latest episode

26 Oct 2026

Latest episodes

59 episodes in the feed.

1. 

   26 Oct 2026

   AI in Healthcare: Benefits, Risks, and What Patients Should Know with Sara Berger

   Today on Beyond the Bleeds, Heather and John welcome Sara Berger, Director and Senior Research Scientist at IBM, to discuss the growing role of artificial intelligence (AI) in healthcare. They explore how patients can use AI to better understand their health and what they should know before relying on these tools. With a background in neuroscience, technology, and ethics, Sara explains how AI works and clears up common misconceptions. She shares examples of how AI already plays a role in everyday life and healthcare. Sara also discusses how patients can use these tools to understand medical terminology, explore health information, and prepare questions for appointments. The conversation also covers the risks of using AI for medical information. Sara explains how AI can produce inaccurate answers and spread misinformation. She addresses privacy concerns when patients share personal health information with AI tools. For people with rare conditions like bleeding disorders, these challenges can be even greater. AI systems may have less reliable information about rare conditions than more common health concerns. Most importantly, Sara encourages patients to use AI as a tool for understanding, not as a replacement for healthcare professionals. She explains why patients should verify information, protect their privacy, and consult their healthcare team before making medical decisions. Sara also looks ahead at the future of AI in healthcare. She shares why patients and providers should help shape how these technologies develop and how people use them. “Use it as a starting point, not an ending point, and always verify everything.” — Sara Berger This episode of Beyond the Bleeds explores: How artificial intelligence is being used in everyday life and healthcare Ways AI can help patients understand health information and prepare for medical appointments The risks of misinformation, inaccurate answers, and relying on AI for medical decisions Privacy concerns when sharing personal health information with AI tools The future of AI in healthcare and the importance of maintaining trust between patients and providers Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder? Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we share real stories and helpful conversations to support families at every stage. Apple (https://podcasts.apple.com/us/podcast/beyond-the-bleeds/id1766814867) | Spotify (https://open.spotify.com/show/5jdNKKLlU7g6gkfYdn3W2L) | iHeart (https://www.iheart.com/podcast/269-beyond-the-bleeds-212923638/) | Amazon Music (https://music.amazon.com/podcasts/de61094a-a3ea-4837-87ad-2b5a5888f68e/beyond-the-bleeds) | Pandora (https://www.pandora.com/podcast/beyond-the-bleeds/PC:1001092164) | Deezer (https://www.deezer.com/show/1001210951) | YouTube (https://youtube.com/playlist?list=PLCZTmxCF0VOtTZUlmUa-KDxT8yYgIp1Oh&si=cj-qWGLpv_mKQWyA) The post AI in Healthcare: Benefits, Risks, and What Patients Should Know with Sara Berger (https://hemophiliaoutreach.org/ai-in-healthcare/) appeared first on Hemophilia Outreach Center (https://hemophiliaoutreach.org).

2. 

   12 Oct 2026

   Why Primary Care Matters for People with Bleeding Disorders with Angie Beach

   Today on Beyond the Bleeds, Heather and John are joined by Angie Beach, Family Nurse Practitioner at HOC, to explore the importance of primary care for people with bleeding disorders and how comprehensive care goes beyond managing a bleeding disorder alone. Drawing on her years of experience in traditional primary care, Angie shares what she’s learned since joining HOC, including some of the misconceptions she previously had about bleeding disorders and the unique challenges patients can face when navigating healthcare. She also discusses what makes the comprehensive care model at Hemophilia Treatment Centers different and how access to specialized services and coordinated care can benefit patients and families. The conversation explores the relationship between primary care providers and HTCs, including the importance of communication, collaboration, and understanding each patient’s individual needs. Angie explains why primary care providers don’t need to know everything about every rare disorder, but they do need to listen, respect their patients’ experiences, and work alongside specialists to provide the best possible care. Most importantly, Angie emphasizes why having a primary care provider is essential, even for patients who regularly visit their HTC. From preventive screenings and vaccinations to managing everyday health concerns and chronic conditions, primary care plays an important role in maintaining overall health. Angie also shares how HOC’s primary care services can help patients access this care alongside their bleeding disorder treatment. “We do owe it to them to listen and to validate their experiences, learn what we can about their diagnosis and needs, admit what we don’t know and respect their level of knowledge about their own health and conditions.” — Angie Beach This episode of Beyond the Bleeds explores: Why primary care is important for people living with bleeding disorders Angie’s transition from traditional primary care to HOC’s comprehensive care model How primary care providers and HTCs can collaborate to support patients The importance of preventive screenings, vaccinations, and managing other health conditions How HOC’s primary care services help patients address their overall health and wellness Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder? Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we share real stories and helpful conversations to support families at every stage. Apple (https://podcasts.apple.com/us/podcast/beyond-the-bleeds/id1766814867) | Spotify (https://open.spotify.com/show/5jdNKKLlU7g6gkfYdn3W2L) | iHeart (https://www.iheart.com/podcast/269-beyond-the-bleeds-212923638/) | Amazon Music (https://music.amazon.com/podcasts/de61094a-a3ea-4837-87ad-2b5a5888f68e/beyond-the-bleeds) | Pandora (https://www.pandora.com/podcast/beyond-the-bleeds/PC:1001092164) | Deezer (https://www.deezer.com/show/1001210951) | YouTube (https://youtube.com/playlist?list=PLCZTmxCF0VOtTZUlmUa-KDxT8yYgIp1Oh&si=cj-qWGLpv_mKQWyA) The post Why Primary Care Matters for People with Bleeding Disorders with Angie Beach (https://hemophiliaoutreach.org/primary-care-and-bleeding-disorders/) appeared first on Hemophilia Outreach Center (https://hemophiliaoutreach.org).

3. 

   28 Sept 2026

   Procedures and Bleeding Disorders: When to Contact Your HTC with Kristin Petrie

   Today on Beyond the Bleeds, Heather and John are joined by Kristin Petrie, HOC Nurse Coordinator, to talk about what people with bleeding disorders should know before their next procedure and why contacting your Hemophilia Treatment Center ahead of time is so important. When most people hear the word “procedure,” they think of major surgery, but for someone with a bleeding disorder, the list can be much broader. Kristin explains why patients should reach out before dental work, colonoscopies, biopsies, joint injections, tattoos, piercings, physical therapy, dry needling, and other activities that could potentially cause bleeding. Kristin also takes listeners behind the scenes to explain what happens after a patient calls HOC. From developing an individualized treatment plan and coordinating with outside providers to making sure medication is available and working through insurance approvals, there can be a lot to put in place before the day of a procedure. Calling early gives the care team more time to prepare and coordinate the details. Most importantly, Kristin reminds patients that they should never worry about bothering their HTC or wonder whether something is important enough to call about. Every patient and situation is different, and the HOC team would much rather answer a question ahead of time than address bleeding afterward. When in doubt, reach out. “The earlier we know, the more options we have. As soon as you know that you’re going to have a procedure, as soon as you get it scheduled, the next step should be to call us.” — Kristin Petrie This episode of Beyond the Bleeds explores: What counts as a procedure for someone with a bleeding disorder Why contacting your HTC early can help prevent bleeding complications Dental work, tattoos, physical therapy, and other procedures you may not think to call about How HOC coordinates treatment plans, medication, providers, and insurance before a procedure Why every patient and situation is different and, when in doubt, you should reach out to your HTC Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder? Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we share real stories and helpful conversations to support families at every stage. Apple (https://podcasts.apple.com/us/podcast/beyond-the-bleeds/id1766814867) | Spotify (https://open.spotify.com/show/5jdNKKLlU7g6gkfYdn3W2L) | iHeart (https://www.iheart.com/podcast/269-beyond-the-bleeds-212923638/) | Amazon Music (https://music.amazon.com/podcasts/de61094a-a3ea-4837-87ad-2b5a5888f68e/beyond-the-bleeds) | Pandora (https://www.pandora.com/podcast/beyond-the-bleeds/PC:1001092164) | Deezer (https://www.deezer.com/show/1001210951) | YouTube (https://youtube.com/playlist?list=PLCZTmxCF0VOtTZUlmUa-KDxT8yYgIp1Oh&si=cj-qWGLpv_mKQWyA) The post Procedures and Bleeding Disorders: When to Contact Your HTC with Kristin Petrie (https://hemophiliaoutreach.org/bleeding-disorders-and-procedures/) appeared first on Hemophilia Outreach Center (https://hemophiliaoutreach.org).

Who has been a guest on Beyond the Bleeds

Names identified in recent episode analyses. Showing up to five guests.

• Dr Bridget Freeman
• Chris Bivens
• Andrea Buxton
• Renata Seiler
• Kate Bazinsky

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)

5.0 / 5

7 ratings

Spotify

5.0 / 5

6 ratings

Podcast Authority Score: 23 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

33

Social presence

0

YouTube

0

Engagement

32

Contact Beyond the Bleeds

Guest appearances

Books guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.