About Bruised Not Broken: Life with Glanzmann's Thrombasthenia
We focus on everything and anything Glanzmann Thrombasthenia. From treatments to community spotlights, experts, and of course, the most current updates on the cure. The GRF podcast is sure to have something of interest to the GT community. Please visit our website at curegt.org and consider donating to help us continue our efforts to find a cure.
Lauren's Adoption Journey: Parenthood with Glanzmann's Thrombasthenia
In the latest episode of "Bruised Not Broken: Life with Glanzmann's Thrombasthenia," Melissa Zdziarski and guest Lauren Hurley share their heartfelt stories of navigating motherhood while affected by GT. Lauren, a GT patient from Massachusetts, recounts her lifelong battle with Glanzmann's Thrombasthenia and her determination to become a mother through adoption. The episode explores the complexities of the adoption process, touching on emotional challenges, financial considerations, and the s...
5 Nov 2023
Resilience with Glanzmann's Thrombasthenia: Robie’s Story
In this podcast, host Taylor and guest Robie share a heartfelt conversation about Glanzmann's Thrombasthenia, a rare genetic bleeding disorder. They discuss Robie's journey, struggles, surgeries, and life lessons. The dialogue covers adapting to the disorder, family decisions, and not letting it limit one's life. Want to Sponsor the Podcast? Contact Us Here Have GT? Join Our Support Group Visit Our Website
2 Sept 2023
Young Adults & Teens with Glanzmann's Thrombasthenia
WE'RE BACK!!! After a brief hiatus while planning and organizing the 2023 GRF Conference, Bruised Not Broken: Life with Glanzmann's Thrombasthenia is back. This episode is slightly different than other episodes, and that's because not only were we able to record it together in person, but we sat around a table and just had a conversation about growing up with GT, transitioning to adulthood, and looking toward the future. Want to Sponsor the Podcast? Contact Us Here Have GT? Join Our Sup...
Taylor and Peter chat with Luke Pembroke from Haemnet. Luke is the Director of Community Engagement with Haemnet and spearheads their podcast, Haemcast. Haemnet is a specialist research and communications consultancy in the bleeding disorder community. You might be familiar with their name; they conducted the Glanzmann's 360 survey. It was during a podcast interview about the Glanzmann's 360 survey with Luke and their Director of Research, Kate Khair, that Peter and Taylor discovered tha...
29 Mar 2023
Diagnosing Glanzmann's Thrombasthenia
April’s episode of Bruised Not Broken: Life with Glanzmann’s Thrombasthenia features Dr. Alan Michelson.Dr. Michelson’s achievements throughout his almost 50-year career in medicine are numerous. He is currently Professor of Pediatrics and Medicine, Emeritus at Harvard Medical School. He also serves as the Center for Platelet Research Studies’ Director Emeritus. He was formerly the Director of the Thrombosis and Anticoagulation Program at Dana-Farber/Boston Children’s Cancer and Blood Disorde...
4 Mar 2023
A Glanzmann's Thrombasthenia Patient's Advocacy Journey
Esme Vazquez found her calling in life through her work in occupational therapy. She believes having Glanzmann's Thrombasthenia helps her empathize and better care for the children she works with. Advocating for her patients became a passion that spilled over into her personal life and fueled her drive to advocate for the voiceless in her world of ultra-rare bleeding disorders.In a short time, she has become a champion for those underserved and is making waves in the national bleeding disorde...
5 Feb 2023
Mom's Side of Glanzmann's Thrombasthenia
Jessica and her husband, Nick, were informed of Mia’s Glanzmann’s Thrombasthenia diagnosis when Mia was just four months old. Now, two years after that diagnosis, Jessica is her daughter’s biggest advocate and is determined to spread awareness and education throughout her community. Join us with special guest host Glanzmann’s Research Foundation’s secretary, Melissa Zdziarski, as we speak with Jessica about navigating through a GT diagnosis for her daughter, Mia. Want to Sponsor the Pod...
1 Jan 2023
The Highs and Lows of Glanzmann's Thrombasthenia
In this episode, we turn inward and speak with our very own Peter Zdziarski and Julia Smith. They allow us to take a glimpse into their lives growing up with Glanzmann's Thrombasthenia by sharing their highs and lows throughout the years. These two jump outside of their comfort zones to encourage more people within the GT community to share their stories. If you want to share your story, you can do so in our website's Faces of GT section. Want to Sponsor the Podcast? Contact Us Here Ha...
3 Dec 2022
A Cure to Glanzmann's Thrombasthenia on the Horizon?
Join Peter and Taylor as they speak with Dr. David Wilcox, who has spent close to 30 years researching a cure and advocating in the medical research community for Glanzmann’s.Tune in to hear how advances in the medical field have brought him close to a cure and how you can help him get even closer.DISCLOSURE: Dr. David A. Wilcox, Ph.D., is the inventor, President, and Founder of Platelet Targeted Therapeutics, LLC.He has an equity interest and intellectual property rights in the company.Dr. W...
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