CAH Pulse takes us on a journey to educate and bring attention to the challenges and triumphs of individuals living with Congenital Adrenal Hyperplasia (CAH). Each month patients, family members, medical professionals, researchers and caregivers share their stories, experiences and advice living with this challenging condition. Our hope is to further connect and champion this incredible community.
*This podcast was recorded under a SAG-AFTRA Collective Bargaining Agreement*
Allyson’s Journey: “Different is What Makes You Good”
In this encouraging episode of CAH Pulse, Dina and Stephanie talk to Allyson who is gracefully navigating life with CAH. Allyson eagerly shares her journey from being diagnosed at birth to becoming an athlete, an aspiring mentor for others in the CAH community and a motivated, thriving young adult.
An avid swimmer and rock climber, there’s no mistaking Allyson’s positivity and drive when she lovingly mentions her supportive parents who allowed her to live as a typical child. When she opens up about her surgeries, her seizures, college life and the biggest challenge of all; finding an adult endocrinologist who actually knows what CAH is… it becomes apparent that Allyson finds power in being an open book.
Finally, Allyson doesn’t miss a chance to share her mindset about living with this rare and difficult condition; giving sage advice to parents, kids and young adults so they too can gain the strength to resist limitations and most of all shame. Her inspiring words that being different “is what makes you, good” is also what makes this memorable episode of CAH Pulse so hopeful.
20 May 2026
Season 3 | Episode 4: From Patient to Pioneer: Julia Anthony Always Goes Big
Born with salt-wasting CAH before newborn screening existed, Julia Anthony spent much of her childhood, high school and even college days in hospitals dealing with adrenal crises; which did not stop her from playing sports or having plenty of fun. However, in hindsight, it did change her in a most positive way. In this inspiring and animated conversation, Dina and Stephanie uncover how Julia’s experiences have shaped her into a humble CAH patient, fierce advocate and ambitious entrepreneur.
Julia opens up about the lessons she has learned, what has driven her to start her own company and why community, self-advocacy, and resilience matter so much. Honest, playful and emotional, this episode gives us a powerful reminder that it’s possible to turn challenges into purpose.
7 Apr 2026
Season 3 | Episode 3: A Mother’s Gut is Never Wrong - Becky’s Unexpected Journey
In this powerful episode of CAH Pulse, Becky, shares her deeply personal journey navigating her newborn daughter’s unexpected CAH diagnosis. What was planned to be a joyful home birth turned into a whirlwind of uncertainty, medical urgency, and a near death experience for her newborn.
From frustrating medical guidance and the uncertainty of not knowing the sex of her baby to the emotional highs and lows and finding the right support, Becky’s story highlights the importance of community, and trusting your gut as a mother.
Join Stephanie and Dina for this heartfelt conversation which will serve as an inspiring reminder of a mother’s intuition, the importance of finding a center of excellence, and the resilience families ultimately discover when faced with the unexpected.
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
5.0 / 5
15 ratings
Spotify
5.0 / 5
9 ratings
Podcast Authority Score: 17 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
6
Social presence
0
YouTube
0
Engagement
71
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