Welcome to the Caring for EoE podcast where we’ll navigate Eosinophilic Esophagitis together. From diagnosis to daily living, feelings to finances, and restrictions to recipes, let’s create a community that Cares for EoE.
Ep 13: Diagnosed During College: Claire Johnson of EoE Digest Shares her Story
Claire Johnson was diagnosed with EoE in college and shares her journey about how she navigated her new world away from home. Looking to inspire others who are facing similar challenges, she started EoE Digest to help herself and others embrace food restrictions with flare! Follow her on Instagram and Pinterest. Let's keep the conversation going at CaringforEoE@gmail.com.
31 Jan 2020
Ep 12: Empowering Nutritional Advice on Elimination Diets
Tara McCarthy is a pediatric dietician who specializes in working with patients and caregivers diagnosed with Eosinophilic Esophagitis (EoE) and celiac. She has a true passion for her work that helps people thrive in a food-focused world while contending with elimination diets. In this episode, she offers practical advice for daily living with food restrictions. It was such a pleasure talking with Tara - she's a true gift to our community! Let's keep the conversation going at CaringforEoE@gmail.com.
26 Dec 2019
Ep 11: EoE As A Teen - One Mother's Story
Lori's son was diagnosed with Eosinophilic Esophagitis (EoE) a year ago at the age of 13. Looking back, they contended with symptoms of it his entire life. Challenges with keeping food down as a baby, not wanting to eat as a toddler, and weight gain concerns were prevalent in his younger years. While the EoE diagnosis finally gave a name to their experiences, it was the beginning of their journey. Through a roller coaster of food eliminations, endoscopies, Neocate, and confusing allergy test results, they continue to navigate the world of EoE and the added complications it poses for a 14-year-old. Lori's devotion to her son and commitment to helping him find ways to take the lead in his care are inspiring! Hear more about their story in this episode and let's keep the conversation going at CaringForEoE@gmail.com.
12 Nov 2019
Ep 10: One Man's Story of Finding EoE as an Adult
Adulting is hard enough. Add to it a mix of mysterious symptoms with little answers and the demands of work and life are amplified. Zach shares his story of finding his Eosinophilic Esophagitis and other diagnoses while serving in the military, the steps he's taken to deal with the disease, and the emotional struggles that came with it. Join me for this inspirational and informative episode - his mindset and outlook are truly impressive! Let's keep the conversation going at CaringForEoE@gmail.com.
22 Oct 2019
Ep 9: Celiac & EoE - One Family's Journey
In this episode, one of our community members shares her story about becoming an EoE family. Hannah is the mother of 3 1/2 year old twins and their journey started with a Celiac diagnosis. Join us as we explore topics from integrating elimination diets, navigating multiple diagnoses, and partnering with caretakers in supporting our children. As working moms, we also talk about the importance of support networks and getting the help needed for the entire family. Her optimism, mindfulness, and approach to empowering her children are inspiring! I was thrilled she reached out and hope you will, too! Contact caringforeoe@gmail.com and let's share your story.
8 Aug 2019
Ep 8. Friendly Pantry Helps Tackle Meal Prep on an Elimination Diet
It's overwhelming. The moment you realize you or your child can no longer eat certain foods and it seems like they are in just about everything. It's especially difficult when patients with Eosinophilic Esophagitis need to eliminate multiple foods all at the same time. Corinna from Friendly Pantry joins me in this episode to inspire, empower, and motivate us to take charge in our own kitchens. With her experience as a food allergy mom and her dedication to taking the mystery out of meal planning, she gives us valuable tips and resources for living life to the fullest, even on an elimination diet. Follow her blog and find out more about her Inspired Kitchen membership community at www.friendlypantry.com.
Let's keep the conversation going at CaringforEoE@gmail.com
31 Jul 2019
Ep 7: EoE in Australia: Sarah & Bella From ausEE, Inc. Share their Story
Eosinophilic Esophagitis affects so many around the globe. In this episode, I am joined by Sarah Gray and her daughter Bella all the way from Australia. Together, they share their story of Bella's diagnosis as a toddler, their journey to her 16th birthday (today, in fact!), and what inspired Sarah to start ausEE, Inc., a charity dedicated to improving lives affected by eosinophilic disorders. https://www.ausee.org.
Let's keep the conversation going at caringforeoe@gmail.com.
17 Jun 2019
Ep 6: Danielle Travis: My Real World Guide for EoE
Danielle Travis is simply amazing. Diagnosed with EoE at 14 years old, she captured her experiences of navigating EoE during high school in an equally heart-wrenching and heart-warming book called, "My Real World Guide for Eosinophilic Esophagitis". In it, she tells her story and offers concrete tips and advice to both teens and caregivers with the disease. Join us for an incredible conversation about her recent experiences, what she's learned since writing the book, and her uplifting advice for all of us in the EoE Community. Let's keep the conversation going by reaching out to CaringforEoE@gmail.com.
31 May 2019
Ep 5: CURED Foundation: Information, Inspiration & Impact
Ellyn Kodroff joins me from the CURED Foundation - a non-profit organization dedicated to raising vital funds and awareness for eosinophilic disease. Ellyn shares her story and what inspired her to start CURED over 15 years ago. She provides helpful resources and describes the exciting weekend of events at this year's Patient Education Research Conference in November. A jam packed and informative episode! Ellyn graciously offered her email address for anyone who would like more information or to volunteer: ellyn@curedfoundation.org.
20 May 2019
Ep 4: Life After A Diagnosis - Colleen Brunetti
What happens after getting a life altering diagnosis like Eosinophilic Esophagitis (or others)? You feel every emotion and then get clear on what it all means. Colleen Brunetti, author of "Defining The New Normal: A Guide to Becoming More Than Your Diagnosis" talks about her own journey and gives tools for getting clear and taking action. Her newest book, "Aidan the Wonderkid," empowers kids with food allergies and intolerances.
11 May 2019
Ep 3: EoE from a Dad's Perspective
My husband joins me for a special episode where we talk about what it's been like for him as the father who cares for our son with Eosinophilic Esophagitis (EOE). We cover topics from the sadness of letting go of the vision we had for our family before we had kids, working through some bumps in our marriage, and setting our sights on a bright future. We'd love to hear stories about your EoE journey at caringforeoe@gmail.com!
23 Apr 2019
Ep 2: Dr. Yuan, Pediatric GI from MGH & EoE Specialist
Qian Yuan, MD, PhD & Clinical Director of the Food Allergy Center at MGH explains Eosinophilic Esophagitis and the importance of considering physical, developmental and emotional impacts when treating the diagnosis. Dr. Yuan co-wrote two books to help children better understand and cope with EoE: Eating Isn't Always Easy, and Macaroni Isn't The Same Without Cheese.
12 Apr 2019
Ep 1: Our EoE Story
In this episode, I share how we became an EoE family through my son's diagnosis of Eosinophilic Esophagitis. It's been quite a journey and with one year behind us, we have a lifetime ahead. We'd love to hear your stories at caringforeoe@gmail.com
12 Apr 2019
Introducing The Caring for EoE Podcast
In this inaugural episode, I share the vision for the podcast and what we hope to do together as a community of people who Care for Eosinophilic Esophagitis. We'd love to hear from you! Contact us at at caringforeoe@gmail.com
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