Caring for Rare: Stories of Rare Metabolic Disorders
Claim This Podcastby Nutricia North America
Podcast Overview
<div>Nutricia’s Caring for Rare explores what life is like with a rare metabolic disorder – from difficulties at diagnosis to adapting to condition management to thriving in everyday joys. Episodes feature personal experiences with rare inborn errors of metabolism like phenylketonuria (PKU). These stories may not be representative of all rare metabolic disorders, and this podcast in no way replaces the guidance and supervision of metabolic healthcare professionals. Guests on Caring for Rare are compensated for their time. Brought to you by Nutricia North America. </div>
Language
🇺🇲
Publishing Since
9/18/2021
2 verified contact emails on file for Caring for Rare: Stories of Rare Metabolic Disorders
Pitch yourself as a guest, propose sponsorships, or reach out directly to the host.
Recent Episodes
March 18, 2022
6: Parents of children and children with PKU, MSUD and HCU share how they talk about their metabolic disorder.
<div>How do you talk to your kid about their metabolic disorder? How do you address having to get blood draws, a different diet and food choices and explain why their circumstances may be different to another child. Listen as our guest parents and their kids share how they deal with such issues in their own way.</div> <br> <div>This episode was produced by Alletta Cooper, Ulrike Reichert, and Kate Miley for Nutricia North America. The music featured in this episode <a href="https://urldefense.com/v3/__https:/www.shutterstock.com/music/track-397931-look-inside__;!!OUGTln_Lrg!EuaLv3UzEmxgeBwLUpux9-dyrtmqwGZNRDhCJCK9cqfMxiEBazeThqa5Hc1-LUGTav29%24">Look Inside by Sirus Music</a>, <a href="https://urldefense.com/v3/__https:/www.shutterstock.com/music/track-510860-imaginary-place__;!!OUGTln_Lrg!EuaLv3UzEmxgeBwLUpux9-dyrtmqwGZNRDhCJCK9cqfMxiEBazeThqa5Hc1-LVo_WSI_%24">Imaginary Place by L-Ray Music</a>, <a href="https://urldefense.com/v3/__https:/www.shutterstock.com/music/track-495604-endless-story__;!!OUGTln_Lrg!EuaLv3UzEmxgeBwLUpux9-dyrtmqwGZNRDhCJCK9cqfMxiEBazeThqa5Hc1-LTEpyvq6%24">Endless Story by Nick Petrov</a> AND <a href="https://urldefense.com/v3/__https:/www.shutterstock.com/music/track-489866-everything's-ok__;!!OUGTln_Lrg!EnlFA__tfrBRX0_t3xEg3IVm590w_Mn3_InrSQzRmSQbnrqTq4-wN6_LZAi5Lqht4CS1%24">Everything's OK by Porter Productions</a> </div> <br> <div>Contact us at <a href="mailto:NutritionServices@nutricia.com">NutritionServices@nutricia.com</a> or <a href="http://NutriciaMetabolics.com">NutriciaMetabolics.com</a> </div> <br> <div>©2022 Nutricia North America</div>
January 27, 2022
5: Parents of children with PKU, MSUD and HCU share their experiences with a special low protein diet
<div>Being on a special diet can be difficult not only for the child but for the entire family. Families must learn to measure metabolic formula, realize the fact that their child’s diet will be completely different from their own and that of other siblings, family members and friends. Listen in and hear how four families are navigating the challenges of a low protein diet: From the emotional toll, to being short-order cooks, to embracing their “new normal” and finding ways to make life easier.<br> <br> This episode was produced by Alletta Cooper, Ulrike Reichert, and Kate Miley for Nutricia North America. The music featured in this episode <a href="https://urldefense.com/v3/__https:/www.shutterstock.com/music/track-397931-look-inside__;!!OUGTln_Lrg!EuaLv3UzEmxgeBwLUpux9-dyrtmqwGZNRDhCJCK9cqfMxiEBazeThqa5Hc1-LUGTav29%24">Look Inside by Sirus Music</a>, <a href="https://urldefense.com/v3/__https:/www.shutterstock.com/music/track-510860-imaginary-place__;!!OUGTln_Lrg!EuaLv3UzEmxgeBwLUpux9-dyrtmqwGZNRDhCJCK9cqfMxiEBazeThqa5Hc1-LVo_WSI_%24">Imaginary Place by L-Ray Music</a> and <a href="https://urldefense.com/v3/__https:/www.shutterstock.com/music/track-495604-endless-story__;!!OUGTln_Lrg!EuaLv3UzEmxgeBwLUpux9-dyrtmqwGZNRDhCJCK9cqfMxiEBazeThqa5Hc1-LTEpyvq6%24">Endless Story by Nick Petrov</a> </div> <br> <div>Contact us at <a href="mailto:NutritionServices@nutricia.com">NutritionServices@nutricia.com</a> or <a href="http://NutriciaMetabolics.com">NutriciaMetabolics.com</a> </div> <br> <div>©2022 Nutricia North America</div>
December 15, 2021
4: Life with homocystinuria (HCU): Colbie, Cayle and parents Cole and Sarah
<div>Siblings Colbie (11) and Cayle (9) were diagnosed with homocystinuria (HCU), a rare inborn error of metabolism, when they were young children. With their parents Cole and Sarah, they share their feelings on HCU. Cole and Sarah talk about the early days of adjusting to diet management and their journey to accepting HCU and focusing on all that Colbie and Cayle can do. </div> <br> <div>This episode was produced by Alletta Cooper, Ulrike Reichert, and Kate Miley for Nutricia North America. The music featured in this episode is <a href="https://urldefense.com/v3/__https:/www.shutterstock.com/music/track-397931-look-inside__;!!OUGTln_Lrg!CBB-NC4xV8HqswCcQDJ8MrLVyvXGXwrfia6gWKCgJVGOcARmsTIx5vopQMuoAyLLWmN6%24">Look Inside by Sirus Music</a>, <a href="https://urldefense.com/v3/__https:/www.shutterstock.com/music/track-495604-endless-story__;!!OUGTln_Lrg!CBB-NC4xV8HqswCcQDJ8MrLVyvXGXwrfia6gWKCgJVGOcARmsTIx5vopQMuoA8oK4Pma%24">Endless Story by Nick Petrov</a>, and <a href="https://urldefense.com/v3/__https:/www.shutterstock.com/music/track-489866-everything's-ok__;!!OUGTln_Lrg!CBB-NC4xV8HqswCcQDJ8MrLVyvXGXwrfia6gWKCgJVGOcARmsTIx5vopQMuoAwP3BBfC%24">Everything's OK by Porter Productions</a>.</div> <br> <div>Contact us at <a href="mailto:NutritionServices@nutricia.com">NutritionServices@nutricia.com</a> or <a href="http://NutriciaMetabolics.com">NutriciaMetabolics.com</a> </div>
6 total episodes available
Deep-dive analytics for Caring for Rare: Stories of Rare Metabolic Disorders
Frequently asked questions
Have a different question and can't find the answer you're looking for? Reach out to our support team by sending us an email and we'll get back to you as soon as we can.
- What is Caring for Rare: Stories of Rare Metabolic Disorders?
<div>Nutricia’s Caring for Rare explores what life is like with a rare metabolic disorder – from difficulties at diagnosis to adapting to condition management to thriving in everyday joys. Episodes feature personal experiences with rare inborn errors of metabolism like phenylketonuria (PKU). These stories may not be representative of all rare metabolic disorders, and this podcast in no way replaces the guidance and supervision of metabolic healthcare professionals. Guests on Caring for Rare are compensated for their time. Brought to you by Nutricia North America. </div> - How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
Legal Disclaimer
Pod Engine is not affiliated with, endorsed by, or officially connected with any of the podcasts displayed on this platform. We operate independently as a podcast discovery and analytics service.
All podcast artwork, thumbnails, and content displayed on this page are the property of their respective owners and are protected by applicable copyright laws. This includes, but is not limited to, podcast cover art, episode artwork, show descriptions, episode titles, transcripts, audio snippets, and any other content originating from the podcast creators or their licensors.
We display this content under fair use principles and/or implied license for the purpose of podcast discovery, information, and commentary. We make no claim of ownership over any podcast content, artwork, or related materials shown on this platform. All trademarks, service marks, and trade names are the property of their respective owners.
While we strive to ensure all content usage is properly authorized, if you are a rights holder and believe your content is being used inappropriately or without proper authorization, please contact us immediately at hey@podengine.ai for prompt review and appropriate action, which may include content removal or proper attribution.
By accessing and using this platform, you acknowledge and agree to respect all applicable copyright laws and intellectual property rights of content owners. Any unauthorized reproduction, distribution, or commercial use of the content displayed on this platform is strictly prohibited.