CdLS Connections

About CdLS Connections

Navigating the challenges & triumphs of Cornelia de Lange Syndrome (CdLS) and where we explore, learn, and share everything related to CdLS. We will learn from families, clinicians, researchers & educators and those exploring new frontiers relevant to the CdLS community.

Publisher

Canadian CdLS Foundation

Category

education

Language

en

Explicit

No

First episode

29 Aug 2022

Latest episode

31 Mar 2026

Latest episodes

24 episodes in the feed.

1. 

   31 Mar 2026

   Ep.#17 💜 Family Series: Marci Dunning - Freya's Mother

   In this episode of the CdLS Connections Podcast, we sit down with Marci Dunning—mom to Freya and creator of Freya’s Lucky Arm—for an honest and heartfelt conversation about parenting, resilience, and showing up authentically. Marci shares her journey raising Freya, the power of confidence and advocacy, and what it means to live openly and unapologetically in the rare disease community. Her story is a reminder of the strength, love, and connection that brings families together. This episode a...

2. 

   14 Oct 2025

   Ep. #16 - Maria Watkins & Ella- "Life on M Avenue"

   Maria Watkins is a mother of five children, their middle child Ella was born with CdLS. Her and her husband live near Sioux City, Iowa, USA. They have a small farm, juggle work, a business, and their busy family and have recently started on their fitness journey. Maria shares Ella's early years and how a serious medical emergency helped her in finally accepting the diagnosis of CdLS. Maria shares the meaning of writing her blog in the early days and how circumstances moved her to entrepreneur...

3. 

   26 Aug 2025

   Ep. #15 Dawn Seitz Rauscher - Team Nikki

   Join us for a conversation with Dawn Seitz Rauscher as she shares her journey and and her life with Nikki who passed away ten years ago at the age of 17. Nikki’s memory and legacy lives on in her family, community and the global CdLS Community. Send us a text Support the show

Who has been a guest on CdLS Connections

Names identified in recent episode analyses. Showing up to five guests.

• Ken Pfalzgraf
• Edgar
• Charlotte Nordin
• Elaine
• Canadian CdLS Foundation President & Founder

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

YouTube views

669

Score snapshot 15 Sept 2025

Apple Podcasts (US)

5.0 / 5

1 ratings

Podcast Authority Score: 28 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

31

Social presence

0

YouTube

66

Engagement

0

Contact CdLS Connections

Guest appearances

Books guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.