Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone.
A Raw Conversation About Living Gene Positive - with Charlotte Conn
*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.
Follow Champions/External links:
linktr.ee/championsforhd
(https://linktr.ee/Championsforhd?utm_source=linktree_profile_share&ltsid=afe9cc91-d80b-4a29-a4c5-f35a9ea439af)Website
(https://www.championsforhd.org/)
Follow Shelby:
https://www.shelbylentz.com/ (https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqa0JRWEtyWnRrc3FIdnVWTzZLLUZEWUNTOFpBQXxBQ3Jtc0tuS2h5bi1Bd1BVQ1lvY0txX2RTc3duY2ZkRGhieTBuUEI3bklmMkY5TWhILWxHM1k5RXY2bExvZWNtYjJwalZQRnlnV0RKRHpxbGFMR0tza3l5SkRGZ0Q5R3AyNEN1Qkd5NmdBSVBTeERlcXROSHkwNA&q=https%3A%2F%2Fwww.shelbylentz.com%2F&v=R6pIkiXTU-A)
linktr.ee/shelby_lentz (https://linktr.ee/shelby_lentz?utm_source=linktree_profile_share&ltsid=ff89b2b1-35a7-487d-b6c1-87fbe2987d1c)
In their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through social media and shared advocacy. They discuss managing anxiety, finding support, and coping mechanisms. The conversation covers HD testing, genetic diagnosis, and its impact on family dynamics. Balancing life choices and finances amidst uncertainty is also explored. They emphasize living in the present, gratitude, and the therapeutic value of music and exercise. Shelby and Charlotte highlight the significance of community, self-care, and supportive partners in navigating life with HD. Additionally, they address challenges like infertility, adoption, and the emotional toll of building a family in the context of HD. Overall, their dialogue underscores the importance of connection, resilience, and shared experiences in facing the complexities of HD.
Support the show (https://www.championsforhd.org/donate)
15 Feb 2024
Testing, Finding Support, and Mental Health with HD - With Jenna Woodard
*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.
In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how she found out about her own diagnosis. Jenna also talks about the negative testing process she went through and the lack of support and information she received. She shares the challenges of living with a parent who has HD and the difficulties in convincing them to seek help. Lastly, she discusses the importance of sharing personal experiences and dealing with negativity. In this conversation, Shelby and Jenna discuss various topics related to living with Huntington's disease. They talk about dealing with insensitive comments and the importance of not engaging with negativity. They also share their experiences of being open about their condition and the support they have received from the HD community. The conversation touches on the challenges of starting a family when living with HD and the process of applying for in vitro fertilization. They also discuss mental health and coping strategies, emphasizing the importance of finding support and community.
Follow Champions/External links:
linktr.ee/championsforhd
(https://linktr.ee/Championsforhd?utm_source=linktree_profile_share&ltsid=afe9cc91-d80b-4a29-a4c5-f35a9ea439af)Website
(https://www.championsforhd.org/)
Follow Shelby:
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linktr.ee/shelby_lentz (https://linktr.ee/shelby_lentz?utm_source=linktree_profile_share&ltsid=ff89b2b1-35a7-487d-b6c1-87fbe2987d1c)
Support the show (https://www.championsforhd.org/donate)
Support the show (https://www.championsforhd.org/donate)
16 Apr 2023
The Champions for HD Podcast - Speech-Language Pathology with Paige Wikman
*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.
If you are interested in participating or would like to know more about this study, click here: https://www.championsforhd.org/research (https://www.championsforhd.org/research) to schedule a time with Paige or email her at (wikman.p@northeastern.edu)
Spotify Podcast Link: https://open.spotify.com/show/0UsVV0F... (https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbjFRSFREOEVxVWhTY0NGbzBTQTBrVHhGRzAzZ3xBQ3Jtc0tsMlRyVnNlcC1IYU1NYzlvc1MtcDJCTXM0bWgzdE03bmRsaFY2WHNOVlJnSlJDZE5zQl90ZHBYbGFfZkJqVloyWUhkOVZMcGNNSVNrX2VSOVZzMk9Ccm9iR01wazg4aWRwRDhaenJ6WkZRZG1xV0NjUQ&q=https%3A%2F%2Fopen.spotify.com%2Fshow%2F0UsVV0F9pkiPB4wtku6cJV%3Fsi%3DAxJsP7iUTF-L3AkBI5KYuw%26nd%3D1&v=R6pIkiXTU-A)
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Follow Champions:
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Follow Shelby:
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Support the show (https://www.championsforhd.org/donate)
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
5.0 / 5
13 ratings
Spotify
5.0 / 5
5 ratings
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