Welcome! It is my pleasure to introduce "Chasing the Light," a podcast created to serve as my personal journal of faith, perseverance, and resilience after being born into darkness. Run alongside during my race against blindness as I embark on a promising and life-changing adventure from darkness to light! I will be sharing my thoughts, emotions, and accounts throughout a clinical treatment trial for my rare blinding inherited retinal disease, Lebers Congenital Amaurosis as I balance marriage, motherhood, and a career. I hope my story serves as an encouragement and inspires others as I share my strengths and struggles throughout my vision journey!
Questions? Please e-mail CTLpodcastjournal@gmail.com
In this week's entry, I share my recent experiences with managing the stresses of life as a blind mom and wife. Specifically, I focus on the past two weeks of craziness which caused an eye-opening stress outbreak and several low vision related collisions. Additionally, my plan for stablishing a more balanced lifestyle along with strategies I am currently using to decrease the stresses of living with blindness. Listeners will have the opportunity to hear the vulnerabilities and daily struggles that I encounter while trying to navigate motherhood, marriage, and a career while living with a disability. As always, thank you all so much for supporting the CTL Podcast Journal!
Questions and/or comments? Please reach out to CTLpodcastjournal@gmail.com
1 Oct 2026
Entry #100: A Walk Down Memory Lane (Celebrating 100 Entries!)
In this week's entry, we celebrate the 100-entry milestone of the Chasing the Light Podcast Journal! I share my favorite highlights since I began to record back in 2023. Also, I discuss the challenges I have conquered, and those that I continue to experience today. Listeners will learn my greatest highs and lows as a participant in the LCA5 clinical trial, including my feelings about being considered a "trailblazer" in the IRD space. Lastly, I express my joy and gratitude for the support my husband and sons provide every day. As always, thank you so much to our listeners who have been with us since we began the CTL podcast, and thank you to those of you who joined us along the way! We appreciate your support, and we are so glad you are here!
Email CTLpodcastjournal@gmail.com to share your questions and comments! I'd love to hear YOUR vision story!
15 Sept 2026
Entry #99: Navigating General Healthcare with Blindness
In this week's entry, I share my experience from recent "routine" medical appointments while independently navigating with my mobility cane. Specifically, I share my process of preparation prior to the appointments, my approach to requesting assistance from medical staff, and my perspective of patient care during the procedures. Also, I am excited to include the link to a new mini documentary from Opus Genetics (sponsor of LCA5 clinical trial) which focuses on the origin story of the company. As always, thank you all so much for supporting the CTL podcast journal!
Questions or comments? Email us at CTLpodcastjournal@gmail.com
The History of Opus Genetics Mini Documentary:
https://youtu.be/6RSPyi10XaI?si=oeoyNJQ-2lnjumtu
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
5.0 / 5
6 ratings
Spotify
5.0 / 5
2 ratings
Podcast Authority Score: 52 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
80
Social presence
0
YouTube
0
Engagement
60
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