Welcome to CMT Simplified, brought to you by the Hereditary Neuropathy Foundation. This podcast delivers bite-sized updates on the latest research and advancements in Charcot-Marie-Tooth disease (CMT). In episodes under 20 minutes, we cut through the jargon to bring you clear, concise insights into breakthroughs, treatments, and scientific discoveries shaping the future of CMT.
Perfect for busy listeners, *CMT Simplified* is your on-the-go resource for understanding complex information in a straightforward and approachable way. Stay informed, empowered, and up-to-date—one short episode at a time!
Send us Fan Mail Waking up tired after a full night in bed isn’t just frustrating, it’s a biological clue. We dig into why sleep is active work, how broken sleep architecture can leave you depleted, and why “losing consciousness” is not the same as getting real recovery. Using clinical nutritionist and sleep lab veteran Lori Gregory’s ideas, we unpack the vicious cycle where pain disrupts sleep, sleep loss sensitizes the nervous system, and low energy reduces movement until stiffness and infl...
19 May 2026
Adaptive Driving for CMT
Send us Fan Mail Getting into a car feels automatic until your body stops cooperating. One day, you’re running errands on muscle memory, and the next, you’re pulling over because your foot won’t reliably find the brake. That frightening gap between “I’ve driven for decades” and “I’m not safe anymore” is where adaptive driving begins, and it’s far more human and more high-tech than most people realize. We follow Bernadette, who lives with Charcot-Marie-Tooth disease (CMT), as she goes from su...
25 Mar 2026
Why HNF's CMT Summit + Retreat Matters
Send us Fan Mail Learn more at CMTsummit.org Your laptop can give you a thousand links about Charcot-Marie-Tooth disease, but it can’t give you certainty, context, or a hand on your shoulder when the fear spikes at 2 a.m. We dig into the newly released agenda for the HF Clinical Trial Readiness Summit Plus Retreat (April 16–18, 2026 in Ellicott City, Maryland) to answer a blunt question: why show up in person when the internet is overflowing with medical information? We walk through th...
21 Jan 2026
CMT Biomarkers Can't Wait
Send us a text A slow-burning disease like Charcot Marie Tooth can fool even the best trials. Scores swing with sleep and stress, not biology, while tiny changes accumulate out of sight. We set out to replace guesswork with measurement and show how the right biomarkers can compress timelines, cut costs, and turn promising science into treatments that matter. First, we unpack the measurement problem and why functional scales are too noisy for a disease that changes over years. Then we get con...
6 Jan 2026
CMT Resilience Redefined
Send us a text If resilience feels like a buzzword, consider this a reset. We explore a lived-in roadmap shaped by the Charcot-Marie-Tooth community, where change is constant and the goal isn’t to bounce back—it’s to move forward with smarter tools, stronger ties, and a lighter emotional weight. With Lily Sander, the 2025 MDA National Ambassador, and Estela Lugo from the Hereditary Neuropathy Foundation, we trace how connection creates “disabled joy,” a kind of relief that comes from being un...
26 Sept 2025
Applying for Disability with CMT
Send us a text Wading through the Social Security Disability Benefits process feels like navigating a bureaucratic labyrinth—one that becomes even more daunting when you're dealing with Charcot-Marie-Tooth disease. From chronic muscle weakness to mobility challenges, CMT sufferers face enough hurdles without fighting government red tape. This episode cuts through the confusion, offering a specialized roadmap for CMT patients seeking disability benefits. We break down the two distinct pathway...
19 Aug 2025
CMT Work Accommodations
Send us a text Have you ever wondered how to navigate the complex intersection of your Charcot-Marie-Tooth disease and your professional life? This essential episode delivers a powerful roadmap for workplace success, breaking down the often intimidating process of requesting accommodations into clear, actionable steps. We demystify the concept of "reasonable accommodation" under the Americans with Disabilities Act, explaining not just what it means legally, but how to translate this knowledg...
9 Jul 2025
CMT: Newly Diagnosed, You're Not Alone
Send us a text Facing a Charcot-Marie-Tooth diagnosis can feel like being dropped into unknown territory with a flood of questions and uncertainty. Where do you even begin? What steps are truly essential? How do you move from feeling overwhelmed to taking meaningful action? This episode cuts through the noise to deliver a comprehensive roadmap for newly diagnosed individuals and their families. We break down the critical first steps recommended by the Hereditary Neuropathy Foundation, ...
26 May 2025
Inside CMT Foot Surgery: Risks, Recovery, and Results
This episode explores foot surgery for Charcot-Marie-Tooth disease, detailing risks, recovery, and results to improve daily living for individuals with foot deformities.
25 Mar 2025
The ABCs of AFOs: A Guide for CMT Patients
AFOs might just be three letters—but for those living with CMT, they can mean the difference between daily struggle and confident mobility. In this episode, we explore how the right Ankle Foot Orthosis can reduce fatigue, improve stability, and even change the way you walk. From common gait compensations to what makes a good brace great, this conversation is packed with insights that could change your next step—literally. We also highlight two must-have tools, co-written by HNF and CMT orthot...
21 Feb 2025
CMT-SORD: From Discovery to Clinical Trials
This episode explores the rapid advancements in understanding and treating CMT SORD, highlighting community engagement and innovative research, particularly focusing on the potential of the drug Gavorstat. The scientific journey from gene discovery to clinical trial showcases the power of collaboration, emphasizing patient voices in shaping treatment success. • Discussion on what CMT SORD is and its symptoms • Overview of the SORD gene’s role in the disease • Insights into the dr...
3 Feb 2025
GRIN Stats: The Many Symptoms of CMT
Discover the complexities of Charcot-Marie-Tooth disease (CMT) and transform your understanding of this multifaceted condition. Join us on CMT Simplified as we uncover insights from the Global Registry for Inherited Neuropathies (GRIN) about the physical symptoms like foot drop and balance issues, as well as the emotional and social challenges faced by those living with CMT. We'll explore the emotional hurdles such as depression and anxiety that many grapple with, along with the diverse mobil...
8 Jan 2025
Managing Pain in CMT: Strategies and Solutions
This episode dives into HNF's ABCs of CMT Pain Management Guide sharing effective strategies for managing pain associated with Charcot-Marie-Tooth disease (CMT). By exploring topics from dietary changes to the latest research in pain relief, we empower listeners with resources and insights to improve their quality of life. • Understanding neuropathic and musculoskeletal pain • The role of diet in pain management • Anti-inflammatory foods and dietary choices • Exercise as a key component for p...
19 Nov 2024
Wearables and CMT: Data That Makes a Difference
Patients are driving the future of Charcot-Marie-Tooth (CMT) research, and you can be part of the change! In this episode of CMT Simplified, we dive into how wearable technology, like BioSensics devices, is empowering patients to participate in clinical trials from the comfort of their homes. Learn how your everyday experiences can provide researchers with the critical data needed to develop better treatments and improve the quality of life for the entire CMT community. Your voice and partic...
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