CODED is a podcast brought to you by Genetic Support Foundation and hosted by Katie Stoll, MS, CGC and Dr. Stephanie Meredith. We explore the most pressing issues at the intersection of genetics, healthcare policy, and bioethics. CODED will be of interest to healthcare professionals, policy makers, and anyone interested in understanding how advances in genetic medicine are reshaping healthcare delivery and society at large.
Unfortunately and inaccurately, the phrase "incompatible with life" still shows up around trisomy 13 and trisomy 18, even as survival data, clinical experience, and professional guidance continue to evolve. We sit down with two leaders who have helped shape a more accurate and humane standard of care: Dr. John Carey, longtime clinical geneticist and SOFT co-founder, and Nick Holladay, president and CEO of the Support Organization for Trisomy (SOFT). We talk through what families were told de...
1 Apr 2026
World Down Syndrome Day: Reframing a Diagnosis with Jack's Basket
The first seconds after a Down syndrome diagnosis can echo for a lifetime and the difference often comes down to a few words. We sit down with Carissa Carroll, founder of Jack’s Basket, and Lauren Talhelm, Jack’s Basket Medical Education Coordinator, to talk about what families actually experience when trisomy 21 is identified at birth or through prenatal screening, and why the “bad news” framing can quietly shape fear, stigma, and expectations. Carissa takes us back to Jack’s birth diagnosi...
19 Mar 2026
How QALYs Lives of Disabled People And What We Can Do About It
A single number deciding who gets care sounds efficient—until that number discounts your life. We dive into the world of QALYs (quality-adjusted life years) with attorney and policy leader Sylvia Yee from the Disability Rights Education and Defense Fund to unpack how “objective” health economics can quietly devalue disabled people, shape coverage decisions, and ripple through prenatal testing and public policy. We break down how the EQ-5D survey compresses life into five domains—mobility, se...
31 Dec 2025
Echoes Of Eugenics In Modern Tech
Genetic counselors Laura Hercher and Bob Resta examine how eugenic ideas reappear in modern technology through pronatalism, IVF add-ons, and polygenic embryo selection in this interview.
3 Dec 2025
Holiday DNA Deals Or Pandora's Box
Genetic counselor Devin Shuman discusses the complexities of direct-to-consumer DNA tests, revealing how misinterpreted raw data impacts families and reshapes medical care in this interview.
17 Sept 2025
Beyond Headlines: Down Syndrome and CRISPR
Dr. Nicole White discusses the complexities of Down syndrome research and the ethical considerations surrounding CRISPR technology, highlighting the importance of accurate scientific communication in an interview.
2 Sept 2025
Genetic Counseling Reimbursement: Challenges and Solutions for Patient Access
Host Dr. Sarah Chen interviews billing expert Brian Reyes, MS, CGC, exploring reimbursement challenges and solutions to improve patient access to genetic counseling.
27 May 2025
Medicaid and the Devastating Ripple Effect of Budget Cuts on People with Disabilities
Hosts Katie and Stephanie analyze the potential impact of proposed budget cuts to Medicaid and Medicare, which could disproportionately affect individuals with disabilities.
9 Apr 2025
23andMe's Bankruptcy: What It Means for Your DNA Data
When 23andMe announced its bankruptcy filing in early 2024, it wasn't just the end of a once-promising business – it raised profound questions about the future of millions of Americans' genetic data and the direct-to-consumer testing industry itself. In this deep dive, we're joined by genetic counselor Austin McKittrick to unpack what happened to this genetic testing giant that went from a $6 billion valuation to bankruptcy. We trace 23andMe's journey from its 2006 founding through its regul...
20 Mar 2025
Celebrating World Down Syndrome Day with Andy and Will
Today, Katie and Stephanie celebrate World Down Syndrome Day by interviewing Stephanie's son, Andy, and his support staff, Will, about what life is like for people with Down syndrome and how support staff help people with disabilities to access the world and meaningfully engage with their communities. Find out what they do on normal days, who they serve, and what they think is important for you to know about Down syndrome. Please consider making a donation to the Genetic Support Foundation to...
24 Feb 2025
Understanding Medicaid's Crucial Role for People with Disabilities
Join us as we explore the vital role Medicaid plays for individuals with disabilities and genetic conditions in our latest podcast episode. With heartfelt stories from families navigating the complexities of disability support, we dive into the importance of advocacy. This episode features insights from seasoned advocates and personal anecdotes that highlight how Medicaid is more than just insurance; it is a lifeline that ensures essential services are accessible to people with disabilities. ...
24 Feb 2025
Introduction
Genetics is reshaping healthcare and society faster than ever—but what does it really mean for professionals, individuals, families, and communities? Coded dives into the biggest questions at the intersection of genetics, healthcare policy, bioethics, and disability rights. Join hosts Katie Stoll, MS, CGC, genetic counselor and Executive Director of Genetic Support Foundation (GSF), and Dr. Stephanie Meredith, GSF Development Director and Supervisor of the Lettercase National Center for Prena...
Who has been a guest on CODED: Genetics
Names identified in recent episode analyses. Showing up to five guests.
Laura Hercher
Bob Resta
Devin Shuman
Dr Nicole White
Brian Reyes MS CGC
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
5.0 / 5
1 ratings
Spotify
5.0 / 5
1 ratings
Podcast Authority Score: 10 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
7
Social presence
0
YouTube
0
Engagement
32
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Guest appearances
Does not typically book guests
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