The CTNNB1 Connect and Cure Podcast is for anyone looking for information on CTNNB1. Listen to the latest information, research, stories, and ideas while connecting to other people in the CTNNB1 community.
Ashley Werths recap of her first CTNNB1 Connect & Cure conference in 2025
In this episode, Toni spends some time talking with Ashley Werths about her first experience at the 2025 CTNNB1 Connect & Cure Conference. Ashley shares her journey as mom to Chandler, the connections she has made within the community, what she learned from the speakers, and how the experience changed her perspective. From overcoming first-time nerves to finding a place where hope, understanding, motivation, and community come together. Ashley's recap reminds us that we are stronger toget...
7 Sept 2026
Forward Together - 2026 Conference Update with Emily Amerson
In this episode Toni talks with CTNNB1 Connect & Cure President Emily Amerson about the upcoming conference in Boston. They discuss what to expect at this year's conference, including the Natural History Study, Biorepository samples, family activities, exciting research updates, and family connection. There is so much to look forward to as our community comes together to learn, connect and keep moving forward together! https://www.curectnnb1.org/ #raredisease #syndrome
1 Aug 2026
Meet the Newest Board Members for CTNNB1 Connect & Cure
In this episode we get to know the newest members of the CTNNB1 Connect & Cure Board of Directors! Host Toni Paes talks with Ashley Hamic, Chief Operating Officer and Secretary, Anita Chang, Treasurer and Luke Dreckman, Co-Director of Fundraising. They discuss their families' CTNNB1 journeys, the professional experience they bring to the organization, and their vision for strengthening support, advancing research, and building an even stronger community together. https://www.curectn...
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
YouTube views
5,515
Score snapshot 15 Sept 2025
Apple Podcasts (US)
5.0 / 5
20 ratings
Spotify
5.0 / 5
4 ratings
Podcast Authority Score: 43 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
31
Social presence
0
YouTube
68
Engagement
71
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