Welcome to Diagnosed Dad Podcast, where we delve into the life and experiences of a father living with Motor Neurone Disease (MND). Join us as we follow the heartfelt journey of this courageous dad, navigating the highs and lows of his diagnosis while juggling the responsibilities of parenthood and family life.
Join us on this journey of self-discovery, vulnerability, and compassion as we uncover the true essence of what it means to be a diagnosed dad living with Motor Neurone Disease.
In this captivating episode, I am delving into the inspiring world of adaptations that have helped me living with Motor Neurone Disease (MND)
Adaptations play a vital role in enhancing the quality of life living with MND. From assistive technologies to home modifications, these adaptations allow me to maintain a sense of independance and dignity.
Join me as I uncover my top 5 adaptations that have made a profound impact on me living with MND since my diagnosis.
Lets Connect - https://linktr.ee/diagnoseddad (https://linktr.ee/diagnoseddad)
Sock Aid - https://amzn.eu/d/bN2qsdY
Mouse - https://www.pretorianuk.com/optimax-joystick
Cutlery Set - https://amzn.eu/d/2dcMGFi
Hot Tap - https://www.quooker.co.uk/fusion-round-fusionround.html?finish=217
Wash Dry Toilet - https://www.geberit-aquaclean.com/products/geberit-aquaclean-mera/
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21 Apr 2024
Episode 8 - Speaking in the Houses of Parliament
In this episode, join me as I attend a meeting with The All Party Parliamentary Group at the Houses of Parliament as I share my personal journey with Motor Neurone Disease (MND) Recounting my triumphs, challenges, and moments of resilience in the face of adversity. Witness the power of storytelling as I try to shine a light on the realities of living with MND and advocate for greater awareness and support.
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12 Nov 2023
Episode 7 - Gut Health & Nutrition
In today's episode, we're diving deep into the fascinating world of gut health and nutrition, and exploring why it's so important for our overall well-being. Join us as we unravel the mysteries of our gut and discover the incredible impact it has on our physical and mental health.
We'll be joined by leading expert Sinead O'Flynn from Health 4U (https://www.instagram.com/health4ucork/) who shares her knowledge and insights on the vital role that our gut plays in maintaining optimal health.
In this episode, we'll explore the connection between our gut and the rest of our body, including our immune system, brain, and even our mood. We'll learn about the trillions of beneficial bacteria that reside in our gut, known as the gut microbiota, and how they influence our digestion, nutrient absorption, and overall health, delving into the importance of nourishing our gut with a balanced and nutrient-rich diet. We'll uncover the dietary choices that can either support or harm our gut microbiota. But it's not just about what we eat! We explore other lifestyle factors that can influence our gut health, such as stress management, sleep, and physical activity.
So, get ready to tune in and discover the fascinating world of gut health and nutrition in this episode of "BEYOND MND"
Thank you for listening.
CONTACT SINEAD AT HEALTH 4U (https://www.health4u.ie)
SUPPORT THE PODCAST (https://www.buymeacoffee.com/beyondmnd)
LETS CONNECT (https://linktr.ee/diagnoseddad)
(https://linktr.ee/dadplodz)
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11 Nov 2023
Episode 2 - Fitness & Exercise living with MND
On this episode we speak to a fellow warrior Mark Williams and his wife Steph on how Mark integrates his fitness diet and exercise living with MND on a daily basis.
We have a casual conversation about life living with this condition to hopefully help raise awareness and help those who need it.
Like & Comment your thoughts or questions
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LETS CONNECT (https://linktr.ee/diagnoseddad)
Thank you for listening.
James
Music Intro & Outro https://pixabay.com/music/upbeat-aspire-15201/
MARK WILLIAMS - https://www.instagram.com/markwill_mndefiance/
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11 Nov 2023
Episode 4 - Future Proofing House for MND
Join me in this episode where I dive into my families journey renovating our home to adapt it for my current and future needs living with Motor Neurone Disease.
I discuss the renovations and journey. The help available to me living with a disability in organising adaptive accommodation.
The financial support available that I managed to get and didn't get, the adaptions that I had installed, and the adaptions that I have got pending installation when and if I need it.
So grab your headphone and enjoy.
SUPPORT THE PODCAST (https://www.buymeacoffee.com/beyondmnd)
LETS CONNECT (https://linktr.ee/diagnoseddad)
Thank you for listening.
James
Music Intro & Outro https://pixabay.com/music/upbeat-aspire-15201/
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11 Nov 2023
Episode 6 - Caring for someone with MND
In this episode I meet two amazing people Sarita & Sarah who are caring for their husbands living with Motor Neurone Disease.
Caring for someone with MND can be emotionally and physically exhausting. As a caregiver, it's important to prioritize self-care and ask for help when needed. Simple acts of kindness, like cooking a meal or offering to run an errand, can make a big difference. MND affects speech, so communication can be challenging. Finding new ways to communicate and spending quality time with your loved one is crucial. Remember, you are not alone, and there are support groups available to help Like MND & BEYOND (https://www.facebook.com/groups/831321518182260/?mibextid=oMANbw) and the MNDA (https://www.mndassociation.org) as mentioned and recommended in this episode.
Let's go beyond & explore this journey caring for someone with MND together.
Thank you for listening .
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SUPPORT THE PODCAST (https://www.buymeacoffee.com/beyondmnd)
LETS CONNECT (https://linktr.ee/diagnoseddad)
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16 Oct 2023
Episode 5 - Driving with MND
Come with me as I source a new car for me and my family through the motability scheme.
Discussing costs involved utilising my disability allowance after being diagnosed with motor neurone disease.
So grab yourself a coffee, sit back and let's go Beyond MND.
Motability Operations (https://www.motability.co.uk)
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LETS CONNECT (https://linktr.ee/diagnoseddad)
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24 Aug 2023
Episode 3 - MND Drug Trial
Come with me as I share my experience in starting a Smart Trial for a drug to hopefully help with Motor Neuron Disease.
I also highlight the Latest MND news on Interleukin 2.
Feel free to as any questions.
SUPPORT THE PODCAST (https://www.buymeacoffee.com/beyondmnd)
LETS CONNECT (https://linktr.ee/diagnoseddad)
Thank you for listening.
James
Music Intro & Outro https://pixabay.com/music/upbeat-aspire-15201/
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27 May 2023
Episode 1 - My journey to Motor Neurone Disease Diagnosis
Welcome to episode 1 of Beyond MND.
I bring you up to speed with an insight to my journey and lead up to my diagnosis with MND. Respond to your questions with honest answers and update with the latest news on what's happening in the world of MND/ALS.
I speak about the latest update on a drug from the MNDA. Read full article here - https://www.mndassociation.org/
SUPPORT THE PODCAST (https://www.buymeacoffee.com/beyondmnd)
LETS CONNECT (https://linktr.ee/beyondmndhttps://linktr.ee/diagnoseddad)
Thank you for listening.
James
Music Intro & Outro
https://pixabay.com/music/upbeat-aspire-15201/
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Spotify
5.0 / 5
11 ratings
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