This podcast is about living life with Muscular Dystrophy. It looks at what it’s like to be diagnosed at a young age, navigating relationships, employment, university alongside a disability. There will be weekly guests who will share their knowledge and experience. There will be episodes focused on Parental Nutrition, being an ambulant wheelchair user, growing up with muscular dystrophy, navigating my relationship with my disability and many other topics. This is an exciting podcast for listeners of all abilities!
Welcome to episode 40 (I can’t quite believe it!)
I’m sorry I’ve been a bit MIA lately, I’ve had a few personal things to manage - but I’m back now and can’t wait to get back into the swing of filming 🤍
First up, is this episode featuring Ross Hovey! You may know Ross from LinkedIn as he is a powerful voice in the world of workplace inclusion and disabled advocacy.
Ross has Spinal Muscular Atrophy and discusses what has inspired his career and how he balances disability admin and a full time job!
If you enjoy this episode, please like and subscribe and maybe even have a little natter in the comments with me 🥰!
#accessibility #awareness #disability #disabilitypodcast #musculardystrophy #podcast #chronicillness #cardiomyopathy #SMA #spinalmuscularatrophy #workplacewellness #linkedin #disabledadvocate
4 Dec 2025
Episode 39: Cardio Queens ft Hannah Keime of HeartCharged
What an episode to share!
Meet Hannah, you may know her from her social media page @heartcharged that she created with her sister Bethany!
Hannah and Bethany both have cardiomyopathy, with Hannah having suffered a cardiac arrest at age 17. They created HeartCharged, a nonprofit that helps to advocate and support for the cardiomyopathy community!
I had such a lovely chat with Hannah and felt so grateful to connect with someone so passionate and someone who I could relate to. I hope you learn more about life with cardiomyopathy from this episode and enjoy hearing more about Hannah’s journey!
#disability #disabilitypodcast #musculardystrophy #podcast #cardiomyopathy #accessibility #awareness #chronicillness #heart #cardiology #cardiacwellness #cardiac #medicaleducation #medical
4 Dec 2025
Episode 38: The AuDHD hangout ft Alex Markovits
Over the summer, Alex joined me on my podcast to chat about his neurodivergent journey and what advice he would give to people about how best to support people like himself!
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
YouTube views
7,658
Score snapshot 15 Sept 2025
Spotify
4.3 / 5
11 ratings
Podcast Authority Score: 33 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
19
Social presence
0
YouTube
68
Engagement
50
Contact Dystrophy Diaries
Guest appearances
Does not typically book guests
Based on episode analysis; this does not confirm that the show is currently accepting guests.
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