This is a passion project to highlight the lived experienced of modern Endometriosis patients. Endometriosis patients experience systemic medical abuse. Intentional and unintentional. We experience high rates of "Sudden Adult Death Syndrome" and mental health crises with minimal explanations from the medical field. This project is aimed to explore these topics and what we can do to create a change in the system.
We don't want your stories to stop with life's craziness. We have created an Endometriosis anonymous hotline to share your stories! The number is 630.866.6319
2 Jun 2022
Quick Update
Jojo gives us a quick update on life in general and how it effects EndoTrauma recordings. Hang in there with us. Episodes are still coming.
13 Mar 2022
Case 2- Amare "Can I cook myself?" *TW* Suicide mentioned
Amare is the CEO and Founder of the Transition Closet. They are also a peer advocate and admin with the Endometriosis Crisis Connection. Amare and Jojo discuss the Endometriosis Crisis Connection cases we have taken on, accidental overdoses, sudden adult death syndrome and more. We tackle topics of EndoComa, Before and After hysterectomy, and EndoParenting.
Amare also shares an EndoVeteran secret on how to find a good doctor.
1:48- Amare Intro
2:24- Amare and EndoTrauma- Suicide, Medical PTSD, Treated like an Addict, etc
5:02- Actively Suicidal EndoFam
5:52- Our Endo Survey from Endo Crisis Connection discusses suicide
6:07- Quite the Responsibility
7:52- Hard Questions got Hard Answers
8:22- Lies and Misinformation from the Medical Community
9:04- Accidental OD's from brain fog
9:27- Honoring Fallen EndoFam
10:47- Opiates, OTC medications, Diet, Heating Pads
12:52- Can I cook myself?
13:20- Scars from Heating Pads
14:27- 3rd Degree Burns from Heating Pad
15:42- Everything Possible for Pain
18:12- Pain Management
21:02- Anchor Ad
23:00- Amare VS Spoons
22:18- EndoComa
24:02- EndoParenting
25:32- Dr's choosing Hysterectomy
27:02- Dangerous Ways Patients Relieve Pain
28:42- Excision Cancelled and Left Amare High and Dry
31:02- Low Testosterone Treatments
31:22- EndoVeteran Secret to Find Great Doctor
32:42- Amare's NonBinary Journey
34:02- Cannabis
35:42- Tolerance
37:02- Know Your Limits- Know How Much Tylenol is Safe for Your Weight and Check Every Label
37:37- Drugs.com Interaction Checker and MediSafe App
39:08- Amare's Accidental OD on Meloxicam
42:42- How or What Can ACOG Do to Benefit from Changing Endometriosis Policies?
44:14- Lost 6 organs to Endometriosis
46:12- The Transition Closet
5 Mar 2022
Case 1- Candice "We don't need to die!"
Trigger Warning
In this episode, we cover topics of mental and physical health, psychosis, hysteria, hysterectomy, and ACOG. We touch on topics of suicide, accidental death, and Sudden Adult Death Syndrome towards the end of the episode. There may be some adult language in this episode.
4:00- Psychosis
6:20- Abusive Marriage
8:15- They used to call it hysteria
15:00- Mental Health
16:40- How are we to prove ourselves
18:20- How Candice keeps herself in check
20:00- Exercise
21:00- You Got This!
Please contact us at the.jojo.endo@gmail.com with questions, comments, or to share your EndoTrauma journey.
19 Mar 2021
Endo Trauma- You Can't Make This Up
Coming to Podcasts and Socials March 23, 2021!
Contact Endo Trauma
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