by MitoAction
Energy In Action by MitoAction will consist of conversations with patients, families, researchers and thought leaders in the mitochondrial disease communities. These podcasts will give you a glimpse into the lives of families affected by mitochondrial disease and the latest in clinical trials, diagnosis, research and the advancement of therapies. If you would like to be a guest or suggest a topic, please email us at info@mitoaction.org.
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Publishing Since
1/5/2021
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July 15, 2026
Nutrition is one of the most talked-about—and most misunderstood—topics in the mitochondrial disease community. In this episode, Marcy sits down with internationally recognized mitochondrial expert Dr. Mark Tarnopolsky for a practical, evidence-based conversation about what actually matters when it comes to food, supplements, brain fog, and long-term health. From the role of sleep in cognitive function to the science behind creatine, protein intake, processed foods, and popular fad diets, Dr. Mark cuts through the noise and explains what the research really says. Whether you're wondering if the mitochondrial cocktail is worth taking, trying to improve your energy levels, or looking for realistic ways to support your health through nutrition, this episode is packed with actionable insights. Dr. Mark Tarnopolsky is a Professor of Pediatrics and Head of the Division of Neuromuscular and Neurometabolic Disorders at McMaster University and McMaster Children’s Hospital. A globally respected researcher and clinician, he has spent decades studying mitochondrial disease, muscle disorders, nutrition, exercise, and metabolic health. His work has helped shape how clinicians think about supplements, creatine, and lifestyle interventions for people living with mitochondrial disease, making him one of the leading voices in the field today. Learn More About MitoAction Website: https://www.mitoaction.org Facebook: https://www.facebook.com/MitoAction Instagram: https://www.instagram.com/mitoaction LinkedIn: https://www.linkedin.com/company/mitoaction Twitter/X: https://x.com/MitoAction
July 1, 2026
Whether you're newly diagnosed or have been living with an FAOD for years, finding trustworthy information and connecting with others who truly understand your journey can make all the difference. In this episode, Marcy is joined by MitoAction’s Stephanie Harry to preview MitoAction’s upcoming virtual FAOD Conference and explain why it has become such a valuable resource for patients and families. They discuss how the conference is shaped by the community itself, what attendees can expect this year, and why topics ranging from gene therapy and emerging research to mental health, pregnancy, school, adulthood, and peer connection make this year's program one of the most comprehensive yet. Stephanie Harry is MitoAction’s FAOD Program Manager and the parent of a son with a fatty acid oxidation disorder. Drawing on both lived experience and years of advocacy, she has helped grow the annual FAOD Conference into a collaborative event that brings together patients, caregivers, researchers, and clinicians from around the world. Whether you're looking to learn, ask questions, or simply connect with others who understand life with an FAOD, this episode offers a helpful introduction to everything the conference has to offer. Register Here: https://events.ringcentral.com/events/2026-international-metabolic-conference/registration Learn More About MitoAction Website: https://www.mitoaction.org Facebook: https://www.facebook.com/MitoAction Instagram: https://www.instagram.com/mitoaction LinkedIn: https://www.linkedin.com/company/mitoaction X: https://x.com/MitoAction
June 16, 2026
Matthew Cech returns to Energy in Action for a conversation that sheds light on a part of disability history many people have never heard. Inspired by a college course on the psychosocial impact of disability and illness, Matthew shares the stories, advocacy efforts, and pivotal moments that helped shape the rights and accommodations people with disabilities rely on today. From the groundbreaking Camp Jened community to the protests that led to the Americans with Disabilities Act, this episode explores how ordinary people created extraordinary change—and why understanding that history still matters. Listeners may remember Matthew from a previous episode where he shared his own mitochondrial disease journey. Now a 21-year-old college student pursuing a degree in allied health, he brings both personal experience and academic insight to a discussion about disability rights, accessibility, accommodations, and the ongoing work of creating a more inclusive world. Thoughtful, hopeful, and deeply informative, this conversation is a reminder that many of the opportunities available today were earned through decades of advocacy, courage, and persistence. Learn More About MitoAction Website: https://www.mitoaction.org Facebook: https://www.facebook.com/mitoaction X (Twitter): https://twitter.com/mitoaction Instagram: https://www.instagram.com/mitoaction LinkedIn: https://www.linkedin.com/company/mitoaction/
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Energy In Action by MitoAction will consist of conversations with patients, families, researchers and thought leaders in the mitochondrial disease communities. These podcasts will give you a glimpse into the lives of families affected by mitochondrial disease and the latest in clinical trials, diagnosis, research and the advancement of therapies.
If you would like to be a guest or suggest a topic, please email us at info@mitoaction.org.
This podcast updates weekly.
This podcast is available on 8 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
Yes, this podcast regularly features guests.
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