Epilepsy Voices is a podcast community that welcomes anyone affected by epilepsy. Through the stories we share, we aim to empower listeners to overcome obstacles, find hope, and thrive. Join us for season 2 where we dive deeper into the epilepsy community.
For our season finale, Derrick shares his inspiring and magnificent story as a person living with epilepsy riding the Wave of Life. We are incredibly thankful to Derrick and all of our guests who beautifully shared their stories, and so grateful to our podcast community for building this important platform. Thank you, as always, for listening and igniting hope for all people affected by epilepsy.
7 Apr 2021
Episode 9: Because Of Not In Spite Of
Emily shares her inspiring and moving journey of lifelong learning as a person living with epilepsy. She guides us through her story of being diagnosed with epilepsy at 16 and how it has informed her passion for public health and research. Hear about how Emily’s own experiences inspire her to be a leader and advocate for other youth living with epilepsy, providing critical and support care to teens in transition. In this journey, she recognizes that it is because of, not in spite of, her epilepsy that she is an accomplished researcher and public health expert, and that her experiences critically drive her work to ensure that high-quality care and support networks are accessible and equitable to all.
EFNE Programming Segment: Massachusetts Walk to Make Epilepsy History, May 1, 2021 (https://epilepsynewengland.org/events/2021-ma-walk)
MA Resource Share: Fenway Health (fenwayhealth.org)
NH Resource Share: Dartmouth-Hitchcock Educational Conference, April 10, 2021 (http://go.d-h.org/EpilepsyEducation)
26 Mar 2021
Episode 8: There iZ Hope (Part 2)
(Part 2)This is the story of an incredible life, magnificent love, loss, and hope. Zsatara Savard was just 31 years old when she passed away due to Sudden Unexpected Death in Epilepsy (SUDEP.) In this two-part series, we celebrate and honor the life of Zsatara, as told by her fiancé, Geoff. Geoff shares with us Zsatara’s incredible gifts and passions in life, from hairstyling to motherhood, and the life that he and Zsatara built together. In the aftermath of her passing, he shares with us how he and their 4 year old son Nathanael coped with the loss, how Geoff honors Zsatara by being an advocate for epilepsy, how he keeps her memory thriving, and finally, how their story reminds us all, ‘There iZ Hope’.
This series is dedicated to the life and legacy of Zsatara Savard.
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Apple Podcasts (US)
5.0 / 5
16 ratings
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