About European Patients' Podcast: The Voice of Patients in Europe
The European Patients’ Podcast is your source for conversation and news around the world of patient advocacy and empowerment. This podcast is brought to you by the European Patients’ Forum, the leading voice of patient organisations in Europe with 78 members across the continent.
Season 3 of the podcast is funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HADEA. Neither the European Union nor the granting authority can be held responsible for them.
IDERHA Spotlight: Building Trust in Real-World Evidence
In this episode of the EU Patients Podcast, we spotlight the IDERHA (https://www.iderha.org/) project and explore how real-world health data can help shape better healthcare decisions for patients across Europe.
Host Flavia Topan is joined by Prof. Bethany Shinkins and Ine Vandersmissen to unpack the growing role of real-world data and real-world evidence in healthcare decisions.
Together, they discuss why traditional clinical trials do not always capture the full diversity of patient experiences, how real-world evidence can complement existing research, and what needs to happen to build trust in the use of heterogeneous health data.
The conversation also looks at the recommendations developed within the IDERHA project to support the acceptance of real-world evidence in regulatory and HTA decision-making, with a strong focus on transparency, scientific robustness, and meaningful patient involvement.
16 Apr 2026
A Letter to the Future: Living Well and Ageing Well with Bleeding Disorders
In this episode, we mark World Haemophilia Day 2026 by looking both at where the bleeding disorders community stands today and where it hopes to be in the future.
The European Haemophilia Consortium (https://www.ehc.eu/) (EHC) is creating a “Letter to the Future,” a time capsule to be opened in 2039 for its 50th anniversary. This initiative captures the experiences, challenges, and aspirations of people living with haemophilia and other bleeding disorders across Europe.
To explore this journey, we are joined by Dr William McKeown - EHC Steering Committee Member, clinician, researcher, and patient - who shares insights from both personal and professional perspectives. Together, we reflect on progress made, ongoing challenges, and what it means to live well and age well with a bleeding disorder.
What might the future of care, access, and quality of life look like? And what message would today’s community send to the next generation?
23 Mar 2026
EDiHTA Talks #3: Building Trust in Digital Medical Devices
In this final episode of the EDiHTA mini-series, we explore how digital medical devices are transforming healthcare across Europe. Host Flavia Topan is joined by patient advocate Dave Chuter to discuss key issues such as patient safety, trust, data protection, and the role of patients in health technology assessment (HTA). Learn how the EDiHTA project (https://edihta-project.eu/) is working to create a more patient-centred and reliable framework for evaluating digital health technologies.
Who has been a guest on European Patients' Podcast: The Voice of Patients in Europe
Names identified in recent episode analyses. Showing up to five guests.
Béla Dajka
Valentina Strammiello
Jakub Dvořáček
Stine Bosse
Juan García Burgos
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
YouTube views
117,258
Score snapshot 15 Sept 2025
Spotify
5.0 / 5
1 ratings
Podcast Authority Score: 35 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
26
Social presence
0
YouTube
82
Engagement
27
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