Experiencing My Brain is a podcast devoted to detailed discussion with brain injury survivors about their experiences, problems, and ways that they have found to navigate their lives. These stories are important to help the non brain injured world make sense of the problems that come with brain injury.
Return to Life. A Brain Injury Discussion With Chaandani
Every brain injury is different, but there are invisible layers to this brain injury experience that are often similar. It’s complicated to get to those layers and the similarities, but the perspective Chaandani shares here offers great depth to help others learn more about brain injury and what can help improve.
In 2019 Chaandani had a brain injury, which led to years of invisible problems and struggles. She found ways to shift her mindset, to improve, and to regain her life back . She founded a business that helps clinicians integrate a patient-first approach to concussion treatment. Her company is called Return To Life.
https://www.returntolife.ca/ (https://www.returntolife.ca/)
Additionally, check out a panel Chaandani and I participated in about the impact of brain injury on mental health problems.
https://www.youtube.com/watch?v=foy1cA7-H3Y&t=2581s
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Experiencing My Brain is a podcast devoted to detailed discussions with brain injury survivors about their experiences, challenges, and the ways they have found to navigate their lives. These stories are important in helping the non-brain-injured world better understand the problems that come with brain injury.
23 Jul 2026
The Fight For Reasonable Accommodations
The misunderstanding that surrounds brain injury is the second biggest problem with brain injury, the first is of course is the brain injury. Marc explains his different brain injury problems very well in this recording.
Occipital neuralgia is injury to the occipital nerve, and of course he has as many other brain injury problems. Plus the stimulators he has to manage in order to function. It’s truly unimaginable and I am glad Marc could spell things out.
The the misunderstanding that surrounds brain injury is how the outside world does not understand almost anything about brain injury, and Marc was able to find good doctors and relatively good medical care and rehab for his brain injury problems.
Marc's fight against the legal system in New York fully exposes this lack of understanding, complete discrimination, and intolerance for the needs, limits, and accommodations. Marc’s circumstances are not rare, many individuals who face full on anti-support after brain injury. There are many examples in this podcast.
It is amazing how much Marc has done fighting for disabled peoples rights from jail to start, both for people with brain injury and other disabilities. Plus he is fighting for completely reasonable accommodations, if people only understood the brain injury problems themselves.
What Marc is fighting is against that misunderstanding, injustice, and intolerance that surrounds the treatment of so many individuals with all kinds of disabilities. Here is an article about his advocacy work for the needs of people with disability and fight against unjust officials.
https://blackwestchester.com/former-new-rochelle-lieutenant-demoted-after-harper-drug-case-joins-putnam-county-sheriffs-office-resident-seeks-attorney-general-review/
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Experiencing My Brain is a podcast devoted to detailed discussions with brain injury survivors about their experiences, challenges, and the ways they have found to navigate their lives. These stories are important in helping the non-brain-injured world better understand the problems that come with brain injury.
10 Jul 2026
"Wired Differently." A Brain Injury Discussion with Carmen.
In this discussion with Dr. Carmen Frede, DNP, AGACNP-BC, we get into many details of what brain injury is like. From the start of the injury to the many problems that unfold that make returning to "life before brain injury " not possible. Dr. Frede (Carmen) explains her different challenges and internal struggles, what it takes to work to improve, and how difficult it was to find help and support.
The problems and the efforts Carmen shares can help others learn how to think about the invisible struggles that come with brain injury, also what kinds of supports people may need.
Before her brain injury Carmen worked as a nurse practitioner, after she had her brain injury she went back to school to complete her doctorate in nursing practice (DNP) in order to help remedy the systemic problems that surround brain injury especially in the early stages when patients are first discharged.
I heard Carmen being interviewed on the the Brain Wellness Podcast by Mandi (who I interviewed on episode 40 of my podcast). I had many thoughts and questions, which led to this brain injury discussion.
Check out Carmen's book here: Wired Differently: Navigating Life After Traumatic Brain Injury.
https://www.amazon.com/Wired-Differently-Navigating-Traumatic-Injury-ebook/dp/B0GQP7HPWM
- Her approach can be very helpful for a person first encountering the invisible layers of brain injury, and working on ways to keep track of their own problems to find help and improve over time.
Here is the discussion with Mandi and Carmen on Brain Wellness, the podcast:
https://www.youtube.com/watch?v=JV-_gzO8ySo&t=546s
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Experiencing My Brain is a podcast devoted to detailed discussions with brain injury survivors about their experiences, challenges, and the ways they have found to navigate their lives. These stories are important in helping the non-brain-injured world better understand the problems that come with brain injury.
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
5.0 / 5
12 ratings
Spotify
5.0 / 5
6 ratings
Podcast Authority Score: 42 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
55
Social presence
0
YouTube
0
Engagement
71
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