FabryCast
Claim This Podcastby Canadian Fabry Association
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Podcast Overview
<p><b>The FabryCast brings the human element of living with a rare disease. It’s a podcast for important conversations that teaches small bits of information, practical insights, and things you can do today to positively impact your life with Fabry. </b></p><p><br /></p><p><b>Hear from experts in the field, have the opportunity to “Ask a Doctor Anything” and keep up to date with what's happening in the Fabry space. </b></p><p><br /></p>
Language
🇺🇲
Publishing Since
1/12/2024
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Recent Episodes
May 26, 2026
A Rare Story of Love & Loss
<p>Donna Strauss's journey with Fabry disease reveals how resilience, hope, and community can transform despair into purpose. After losing her husband to this rare disease, Donna shares insights on caregiving, the emotional toll of diagnosis, and her commitment to advocacy. Discover how education and community can empower families to face the future with courage. Donna’s story underscores a vital message: even in the darkest hours, hope and community are your greatest allies, reminding us that strength is the courage to keep moving forward.</p>
April 27, 2026
Jerry Walter's Life with Fabry: Resilience in Action
<p>Learn about Jerry Walter's extraordinary journey living with Fabry disease, including his experiences with cardiac complications, a heart transplant, and his inspiring perspective on resilience and living a full life. This episode offers valuable insights into managing Fabry disease and the power of a positive mindset.</p>
December 26, 2025
Fabry & The Kidneys with Dr. Michael West
<p>In this episode, we're joined by Dr. Michael West, a leading nephrologist, to explore the impact of Fabry disease on kidney health. We discuss the early signs of kidney involvement, the importance of regular monitoring, and the latest advancements in treatment options. Dr. West shares his expertise on managing kidney function and offers hope for future therapies. Discover how proactive steps can protect kidney health and enhance the quality of life for individuals affected by Fabry disease.</p>
16 total episodes available
Recent guests on FabryCast
Guests from recent episodes — sign up to see every guest that has ever appeared on this show.
Dr John Jefferies
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Frequently asked questions
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- What is FabryCast?
<p><b>The FabryCast brings the human element of living with a rare disease. It’s a podcast for important conversations that teaches small bits of information, practical insights, and things you can do today to positively impact your life with Fabry. </b></p><p><br /></p><p><b>Hear from experts in the field, have the opportunity to “Ask a Doctor Anything” and keep up to date with what's happening in the Fabry space. </b></p><p><br /></p> - How often does this podcast release new episodes?
This podcast updates bi-weekly.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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