

Finding Strength: The Spaulding Rehabilitation Podcast
Spaulding Rehabilitation
5.0from 14 ratings
- 17
- Episodes
- 14
- Ratings
- Weekly
- Cadence
- 2023
- First episode
About Finding Strength: The Spaulding Rehabilitation Podcast
A monthly podcast that brings together voices in the rehabilitation community. Monthly episodes will be inspired by research conducted out of the Spaulding Research Institute and stories from people with lived experiences. We aim to show how research has real meaning for real people.
- Publisher
- Spaulding Rehabilitation
- Category
- health & fitness
- Language
- en
- Explicit
- No
- First episode
- 14 Feb 2023
- Latest episode
- 29 Apr 2026
Latest episodes
17 episodes in the feed.

29 Apr 2026
AI, Mental Health, and the Future of Care: How Technology Is Reshaping Mental Health Care
In this episode of Finding Strength: The Spaulding Rehabilitation Podcast, we explore one of the most pressing questions in modern medicine: how artificial intelligence is reshaping mental health care. Joining the conversation is Dr. Dan Barron, a pain physician and psychiatrist who discusses his work on a national steering committee bringing together voices on mental healthcare and AI. Also at the table are Jan Shapiro, a designer and patient advocate whose lived experience gives a personal dimension to the discussion, and Dr. Chris Carter, a psychologist at Spaulding Rehabilitation Hospital who brings a grounded clinical perspective to AI's promise and risks. Together, they examine what AI tools are getting right, where caution is still warranted, and what it means to use technology not as a replacement for human connection, but as a complement to it. Episode Guests Chris Carter, PsyD has been a psychologist specializing in rehabilitation and brain injury for over 40 years. He has been at Spaulding Rehabilitation Hospital since 2002 working primarily as the primary psychologist on the inpatient brain injury unit. He is an instructor at the Harvard Medical School. He currently works with individuals and their families recovering from traumatic injury or living with a disability in the outpatient clinic at Spaulding Charlestown. Dr. Daniel Barron, MD, PhD is Director of the Pain Intervention and Digital Research Program at Spaulding Rehabilitation Hospital and Brigham and Women's Hospital and is an Assistant Professor of Psychiatry at Harvard Medical School. He is an interventional pain physician and psychiatrist whose research, funded by the National Institute on Aging, focuses on developing digital markers of clinically relevant outcomes. He is author of Reading Our Minds: The Rise of Big Data Psychiatry and has written for The Wall Street Journal, TIME, and Scientific American. Jan Shapiro is a designer with decades of experience spanning publishing, fashion, healthcare, and rare disease, including UI work with the National Institutes of Health. She is also a former patient at Spaulding Rehabilitation Hospital, where she recovered from spinal surgery and found support through her work with Dr. Chris Carter. A lifelong artist and advocate for emotional self-awareness, Jan has more recently become an engaged explorer of AI tools, using them for personal reflection, health accountability, and creative brainstorming. Episode Article AI and Mental Health Care: Issues, Challenges, and Opportunities (https://www.amacad.org/publication/artificial-intelligence-ai-mental-health-care-issues) If you are interested in one of the articles highlighted on the show, but are having trouble accessing it, please reach out to us at SRNOutcomesCenter@partners.org (mailto:SRNOutcomesCenter@partners.org). Subscribe to Finding Strength Spotify (https://open.spotify.com/show/19uf6qxbqoAZKoqguy9gQ9?si=itVSivxFQzCU2OAaojKe2Q) | iHeartRadio (https://iheart.com/podcast/109124377/) | Apple Podcasts (https://podcasts.apple.com/us/podcast/finding-strength-the-spaulding-rehabilitation-podcast/id1672657817) Credits Shonali Gaudino, OT, Host, Producer Ellyn Pier, MPH, Host, Producer Chuck Clough, Editor Mary Slavin, PhD, Executive Producer This production is a collaboration between, and partially funded by, the Rehabilitation Outcomes Center at Spaulding (https://spauldingrehab.org/research/programs-labs/rehabilitation-outcomes-center) and our Model Systems: the Boston-Harvard Burn Injury Model System (https://www.bhbims.org/) (NIDILRR Award #90DPBU0008), the Spaulding-Harvard Traumatic Brain Injury Model System (https://spauldingrehab.org/research/programs-labs/traumatic-brain-injury) (NIDILRR Award #90DPTB0027-01-01), and the Spaulding New England Regional Spinal Cord Injury Model System Center (https://www.snerscic.org/) (NIDILRR Award #90SIM0017-01-00).

28 Apr 2026
Heart Health After Brain Injury: The Cardiovascular Impacts of TBI
In this episode, we down with Dr. Shanti Pinto, a physical medicine and rehabilitation physician, and Ralph Good, a traumatic brain injury (TBI) survivor, to discuss the long-term health implications of TBI. Dr. Pinto presents her systematic review and meta-analysis examining the elevated risks of cardiovascular conditions including heart disease, hypertension, and heart failure in people with TBI. Together, the conversation highlights both the current research landscape and the lived experience of TBI as a chronic health condition. Episode Guests Shanti Pinto, MD, MSCS is an Assistant Professor at Harvard Medical School and a physician-scientist at Spaulding Rehabilitation Hospital. Her research, funded by NINDS and NIDILRR, investigates the long-term medical effects of traumatic brain injury, especially its connection to increased cardiovascular risk and mechanisms underlying these outcomes. Ralph Good is a retired clinical trials safety specialist based in Fort Worth, Texas. In 2012, he sustained a traumatic brain injury when he and his wife Sharon were rear-ended while stopped at a red light. Thirteen years later, Ralph actively advocates for traumatic brain injury survivors, sharing his recovery experiences and participating in rehabilitation research to advance the therapeutic approaches that contributed to his progress. Episode Article The Association Between Traumatic Brain Injury and Cardiovascular Disease: A Systematic Review and Meta-Analysis (https://pubmed.ncbi.nlm.nih.gov/41851058/) If you are interested in one of the articles highlighted on the show, but are having trouble accessing it, please reach out to us at SRNOutcomesCenter@partners.org (mailto:SRNOutcomesCenter@partners.org). Subscribe to Finding Strength Spotify (https://open.spotify.com/show/19uf6qxbqoAZKoqguy9gQ9?si=itVSivxFQzCU2OAaojKe2Q) | iHeartRadio (https://iheart.com/podcast/109124377/) | Apple Podcasts (https://podcasts.apple.com/us/podcast/finding-strength-the-spaulding-rehabilitation-podcast/id1672657817) Credits Shonali Gaudino, OT, Host, Producer Ellyn Pier, MPH, Host, Producer, Editor Mary Slavin, PhD, Executive Producer This production is a collaboration between, and partially funded by, the Rehabilitation Outcomes Center at Spaulding (https://spauldingrehab.org/research/programs-labs/rehabilitation-outcomes-center) and our Model Systems: the Boston-Harvard Burn Injury Model System (https://www.bhbims.org/) (NIDILRR Award #90DPBU0008), the Spaulding-Harvard Traumatic Brain Injury Model System (https://spauldingrehab.org/research/programs-labs/traumatic-brain-injury) (NIDILRR Award #90DPTB0027-01-01), and the Spaulding New England Regional Spinal Cord Injury Model System Center (https://www.snerscic.org/) (NIDILRR Award #90SIM0017-01-00).

8 Jan 2026
Aging, Osteoarthritis, and Pain: How Menopause Shapes Women’s Musculoskeletal Health
Featuring expert perspectives from Drs. Fabrisia Ambrosio and Gabrielle Gilmer, together with Elise Sargent’s first-hand account, this episode integrates current research on menopause biology and knee osteoarthritis with the tangible effects of joint pain in women. This episode examines the often-overlooked relationship between menopause and joint discomfort, highlighting the intersection of biological mechanisms, scientific inquiry, and lived experience in the context of women's osteoarthritis. Fabrisia Ambrosio, PhD is the Atlantic Charter Director of the Discovery Center for Musculoskeletal Recovery at the Schoen Adams Research Institute and an associate professor in the Department of Physical Medicine & Rehabilitation at Harvard Medical School. Her translational research focuses on developing innovative strategies to improve tissue healing and functional recovery by leveraging mechanical signals to enhance endogenous and donor stem cell function following injury or disease. An international leader in regenerative rehabilitation, she directs the NIH-funded Alliance for Regenerative Rehabilitation Research & Training (AR3T) and founded the International Consortium and Annual Symposium on Regenerative Rehabilitation. Gabrielle Gilmer, PhD is a trainee in the MD/PhD program at the University of Pittsburgh School of Medicine with a research focus at the intersection of women’s health and orthopedic surgery. She completed her PhD in 2024 in Dr. Fabrisia Ambrosio’s lab at Spaulding Rehabilitation Hospital, where her doctoral thesis focused on examining how menopause impacts knee osteoarthritis. Her work spans preclinical models to human clinical trials, with a particular emphasis on how sex and gender influence musculoskeletal pathology and outcomes. She has published in high-impact journals on aging, osteoarthritis, and musculoskeletal health and is planning to pursue orthopedic surgery residency this upcoming year. Elise Sargent is a longtime advocate for osteoarthritis, having spent more than three decades navigating life with the condition while remaining highly active as a dancer, golfer, and fitness enthusiast. She brings a patient-centered perspective shaped by her journey of adaptation, self-advocacy, and engagement with the healthcare system, as well as her volunteer leadership with the Arthritis Foundation, including organizing and fundraising for the Boston Walk to Cure Arthritis. Professionally, Elise is a retired software developer and senior engineering leader who now mentors and teaches leadership skills and project management to graduate and PhD students at Northeastern University. Episode Resources Episode Articles & Related Research Menopause-induced 17β-estradiol and progesterone loss increases senescence markers, matrix disassembly and degeneration in mouse cartilage (https://pubmed.ncbi.nlm.nih.gov/39820791/) Advocacy, Education, & Community Organizations Arthritis Foundation (https://www.arthritis.org/) Walk (https://events.arthritis.org/wtcabostonma) to Cure Arthritis 2026 – Boston, MA News & Services MGB News Release https://spauldingrehab.org/about/news/study-identifies-mechanism-underlying-increased-osteoarthritis-risk-in-postmenopausal-females (https://spauldingrehab.org/about/news/study-identifies-mechanism-underlying-increased-osteoarthritis-risk-in-postmenopausal-females) If you are interested in one of the articles highlighted on the show, but are having trouble accessing it, please reach out to us at SRNOutcomesCenter@partners.org (mailto:SRNOutcomesCenter@partners.org). Subscribe to Finding Strength Spotify (https://open.spotify.com/show/19uf6qxbqoAZKoqguy9gQ9?si=itVSivxFQzCU2OAaojKe2Q) | iHeartRadio (https://iheart.com/podcast/109124377/) | Apple Podcasts (https://podcasts.apple.com/us/podcast/finding-strength-the-spaulding-rehabilitation-podcast/id1672657817) | Google Podcasts (https://podcasts.google.com/feed/aHR0cHM6Ly9hbmNob3IuZm0vcy9jNjc0ZmI2NC9wb2RjYXN0L3Jzcw) Credits Shonali Gaudino, OT, Host, Producer, Co-Creator Ellyn Pier, MPH, Producer, Co-Host Chuck Clough, Editor Mary Slavin, Executive Producer This production is a collaboration between, and partially funded by, the Rehabilitation Outcomes Center at Spaulding (https://spauldingrehab.org/research/programs-labs/rehabilitation-outcomes-center) and our Model Systems: the Boston-Harvard Burn Injury Model System (https://www.bhbims.org/) (NIDILRR Award #90DPBU0008), the Spaulding-Harvard Traumatic Brain Injury Model System (https://spauldingrehab.org/research/programs-labs/traumatic-brain-injury) (NIDILRR Award #90DPTB0027-01-01), and the Spaulding New England Regional Spinal Cord Injury Model System Center (https://www.snerscic.org/) (NIDILRR Award #90SIM0017-01-00).

25 Nov 2025
Synapse National: Recruiting Physiatry’s Next Generation
Episode Description: This episode explores Synapse National, a nonprofit dedicated to helping college students broaden social support networks for individuals affected by brain injury. Episode Guests: Brett Bullington Brett is a tech executive and investor and a longtime Synapse community member at Stanford who sustained a severe brain injury in 2012. He has since been an active mentor and volunteer patient educator. He spends his time walking, connecting with others, and sharing candid insights to support fellow survivors and train future healthcare providers. Jessica Lo Jessica Lo is a graduate of Boston University School of Medicine and is now a resident in physical medicine and rehabilitation at the University of Washington. She founded the Synapse chapter at the University of Washington when she was an undergraduate and remains a mentor for newer chapter leads. She is passionate about advocacy and is planning to pursue training in physical medicine and rehabilitation to care for people with brain injuries. Alissa Totman, MD, MPH Alissa Totman, MD, MPH, is a physical medicine and rehabilitation (PM&R) physician specializing in brain injury medicine at the University of Pittsburgh Medical Center and an assistant professor at the University of Pittsburgh Medical School. She received her medical degree from the Stanford School of Medicine, completed her residency in PM&R at Spaulding Rehabilitation Hospital / Harvard Medical School, and completed her fellowship in brain injury medicine at UPMC. She is board-certified in PM&R and brain injury medicine. Her clinical focus is on providing brain injury care across the continuum, beginning with early multidisciplinary rehabilitation in the acute care setting. She provides care as a consultant at UPMC Presbyterian and has an outpatient practice dedicated to brain injury and spasticity management. She is the Founder and Executive Director of Synapse National, an organization dedicated to expanding social support for individuals with brain injury and inspiring the next generation of leaders in the field. Episode Resources: Episode Articles & Related Research Jumreornvong, O., Haque, A., Tabacof, L., Bolds, A., Sanchez, A., Martinez, C. I., Verduzco-Gutierrez, M., & Escalon, M. X. (2022). Awareness of Physical Medicine and Rehabilitation as a Specialty Among US Medical Students. American journal of physical medicine & rehabilitation, 101(7 Suppl 1), S45–S50. https://doi.org/10.1097/PHM.0000000000001822 (https://doi.org/10.1097/PHM.0000000000001822) Yang, A. J., Haring, R. S., Swenson, T. L., & Jain, N. B. (2021). Factors Influencing Fellowship Decision Making During Physical Medicine & Rehabilitation Residency. American journal of physical medicine & rehabilitation, 100(4), 396–401. https://doi.org/10.1097/PHM.0000000000001608 (https://doi.org/10.1097/PHM.0000000000001608) Advocacy, Education, & Community Organizations · Home | Synapse National (https://synapsenational.wixsite.com/synapse) · Brett's Recovery (tumblr.com) (https://brettsrecovery.tumblr.com/) Synapse in the News · Stanford Daily (https://stanforddaily.com/2018/06/07/synapse/) · New York Times (https://www.nytimes.com/2019/10/10/education/learning/bulletin-board.html) If you are interested in one of the articles highlighted on the show, but are having trouble accessing it, please reach out to us at SRNOutcomesCenter@partners.org (mailto:SRNOutcomesCenter@partners.org). Credits Shonali Gaudino, OT, Host, Producer Chuck Clough, Editor Mary Slavin, PhD, Executive Producer This production is a collaboration between, and partially funded by, the Rehabilitation Outcomes Center at Spaulding (https://spauldingrehab.org/research/programs-labs/rehabilitation-outcomes-center) and our Model Systems: the Boston-Harvard Burn Injury Model System (https://www.bhbims.org/) (NIDILRR Award #90DPBU0008), the Spaulding-Harvard Traumatic Brain Injury Model System (https://spauldingrehab.org/research/programs-labs/traumatic-brain-injury) (NIDILRR Award #90DPTB0027-01-01), and the Spaulding New England Regional Spinal Cord Injury Model System Center (https://www.snerscic.org/) (NIDILRR Award #90SIM0017-01-00).

30 Jun 2025
Systems Science and the Complex Healthcare Journey of People with Aphasia
In this special episode honoring the close of National Aphasia Awareness Month, we share a powerful personal story of stroke and aphasia. Joined by Paul and Yasmèn Guidoboni, along with speech-language pathologist Olivia Gampel and systems science expert Dr. Carla Hendricks, we explore the complex journey faced by people with aphasia, their care partners, and the clinicians who support them.

30 Apr 2025
Conversations on Severe Traumatic Brain Injury and Life Sustaining Treatment
In this episode of Finding Strength, we explore thedifficult decisions families face when a loved one experiences a severe traumatic brain injury (TBI), particularly regarding life-sustaining treatment.In this episode we speak with Debra, whose daughter Marissa sustained a severe TBI in a car accident and spent months as a Spaulding patient. We also hear from Dr. Theresa Williamson, a neurosurgeon and surgical ethics researcher, and Dr. Yelena Bodien, a clinical neuroscientist specializing in disorders of consciousness. Together, they discuss the evolving science of prognosis in TBI, the impact of early decisions to withdraw life-sustaining treatment, and the need for improved patient-doctor communication in critical care settings. Episode Guests Yelena Bodien, PhD is an Assistant Professor at Vanderbilt University Medical Center (VUMC) in the Department of Surgery, Department of Physical Medicine and Rehabilitation, and Department of Neurological Surgery. She is an investigator in the VUMC Critical Illness, Brain Dysfunction, and Survivorship Center where she co-directs the Imaging Core. Previously she was faculty at Massachusetts General Hospital and Spaulding Rehabilitation Hospital where the work described in this podcast was conducted. Dr. Bodien studies recovery after severe brain injury, applying standardized neurobehavioral assessment and advanced neuroimaging techniques to improve diagnostic and prognostic precision. Dr. Bodien holds leadership positions in the Neurocritical Care Society Curing Coma Campaign and the American Congress for Rehabilitation Medicine. Theresa Williamson, MD is a neurosurgeon and surgical ethics researcher who cares for people with all types of spine disorders as well as brain and spinal trauma. Her clinical expertise includes tailoring an approach to best fitthe patient and their disease including using minimally invasive techniques. Her research focus is neurosurgical decision-making and patient-doctor communication as well as health care disparities. She combines bioethics theory with empirical data science to tackle complex decision-making problems in neurosurgery. Dr. Williamson is a member of the Center for Outcomes and Patient Safety in Surgery (COMPASS) at Massachusetts General Hospital. Deb Jones is a proud parent of a 39-year-old daughter who sustained a significant TBI. Her career as an educator spanned over 38 years and included teaching kindergarten through third grade. Over the last 12 years of teaching, Deb served as Math Specialist for Kindergarten through sixth grade in her hometown district. Following her retirement, Deb focused on her many interests of gardening, reading, walking, traveling, and enjoying her new granddaughter! Last year she received a phone call with news that no parent ever wants to hear – her beautiful, vibrant daughter had been in a car accident while traveling from NH to Virginia and was hospitalized with a serious TBI. From that moment on, Deb has focused on advocacy efforts to ensure that her daughter has access to best possible resources. She and her husband serve as caregivers for their daughter. The journey is long and ongoing, but with the results of research, support from dedicated therapists, family and friends, and continued love and prayers from all, the future is promising. The goal is for her daughter to have increased independence, enjoy a high quality of life and return to all that she loves and holds dear! Episode Resources Episode Articles & Related Research Recovery Potential in Patients Who Died After Withdrawal of Life-Sustaining Treatment: A TRACK-TBI Propensity Score Analysis | Journal of Neurotrauma (https://www.liebertpub.com/doi/10.1089/neu.2024.0014?url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org&rfr_dat=cr_pub++0pubmed) Advocacy, Education, & Community Organizations Brain Injury Association of Massachusetts (https://biama.org/) Credits Shonali Gaudino, OT, Host, Producer, Co-Creator Ellyn Pier, MPH, Production Coordinator, Co-Host Chuck Clough, Editor Mary Slavin, PhD, Executive Producer

18 Mar 2024
Building Bridges for Brain Injury: The Legacy of Marilyn Spivack & Dr. Mel Glenn
In this episode, we spotlight two special figures in the evolution of brain injury rehabilitation: Dr. Mel Glenn and Marilyn Spivack. Episode Guests: Mel Glenn, MD has been a physician specializing in Physical Medicine and Rehabilitation for over 40 years, and on staff at Spaulding Rehabilitation since 1998. He was Chief of the Brain Injury Division of the Department of PM&R from 2015-2023. He is an Associate Professor at Harvard Medical School (HMS.). From 1998 – 2008, Dr. Glenn was Project Director of the Spaulding/Partners TBI Model System at HMS, a research grant funded by the National Institute on Disability and Rehabilitation Research. He has been Medical Director of Brain Injury Services in MA for Mentor ABI/NeuroRestorative since 1991 and Medical Director of Community Rehab Care since 1996. Dr. Glenn was the editor of the Update on Pharmacology column of Journal of Head Trauma Rehabilitation from 1985 to 2013. Marilyn Spivack is a brain injury advocate. She and her husband Dr. Martin Spivack co-founded the National Head Injury Foundation, which grew into what is known today as the Brain Injury Association of America and the Brain Injury Association of Massachusetts. They founded the organization because their daughter, Deborah Price sustained a severe head injury on March 15th, 1975, which left her severely disabled and at the time, there were no dedicated TBI extended rehabilitation or cognitive services available. Marilyn served as President of the National Head Injury Foundation for almost 10 years from 1981 – 1991, and then continued her journey as a consultant and at Spaulding Rehabilitation as a Neurotrauma Outreach Coordinator, serving professionals, patients, and families seeking assistances with resources and services. She has served as Co-Chair of the Policy & Legislation Committee of American Congress of Rehabilitation Medicine since 2006. Episode Resources: Episode Articles & Related Research Twenty years of pharmacology (https://pubmed.ncbi.nlm.nih.gov/15668570/) Advocacy, Education, & Community Organizations Brain Injury Association of America (https://www.biausa.org/) Brain Injury Association of Massachusetts (https://biama.org/) News & Services NeuroRestorative | Rebuilding Lives After Brain Injury (https://neurorestorative.com/)

30 Jan 2024
Which Head Impacts Lead to CTE?
In this episode we discuss findings about the kinds of head impacts that lead to neurodegenerative brain disease. Episode Guests Daniel Daneshvar, MD, PhD Dr. Daneshvar conducts research on the long-term effects of moderate-severe traumatic brain injury, concussion, and repetitive head impacts, including chronic traumatic encephalopathy (CTE). Dr. Daneshvar's work has been published in the Journal of the American Medical Association, Annals of Neurology, and Brain, and has been featured broadly including in the New York Times, the Wall Street Journal, NPR, and ESPN. He also founded Team Up Against Concussions, the first scientifically validated concussion education program for kids. He is the Director of the Institute for Brain Research and Innovation at TeachAids, which created CrashCourse: a free, scientifically validated virtual reality and computer-based concussion education program. He received his S.B. from MIT and completed his M.D./Ph.D. at the BU CTE Center. His research resulted in the first dissertation in history to study CTE. He completed residency at Stanford University before joining the faculty at Harvard Medical School. Lisa McHale Lisa McHale graduated from Cornell University, where she met her husband, Tom McHale (https://secure-web.cisco.com/1FwsmWvGtqsmSgLRSrcbPbnmFe6n2hzha_1ho32nIXOE4lf_URQ4Knwbe-INdz_5wdTsPvZ29m_aGRdY2yIxLHDr8imzp4q7cXk8Bj7rmxY3o_Bpyamz7AYYgkc1sr7W315fOxH6bOsVFOShwzKwLXVTFdXWMavtaQC1op171jwzb_tZ2mbznCDnVj2w0a5aAmUUiUlSZNv_j5pI6GUIblX_m1_aC-wR01W3oMgCO23r0xzTwVuTgH3LTjIT6ywzvZefDCu8iqiA2FNuaZJuVblA-OfXgMPdoD9-b1-jpwDJe4gNpxYtryhkfTSUKSX_S-y_ru9K8YJVtZyQ0irxK4w/https%3A%2F%2Fconcussionfoundation.org%2Fpersonal-stories%2Flegacy-stories%2Ftom-mchale), an All-American Defensive End for the Big Red. They married in 1990 and moved to Tampa, where Tom began his 9-year NFL career with the Tampa Bay Buccaneers (and later the Philadelphia Eagles and Miami Dolphins) and Lisa received a Master’s and Educational Specialist (ED.S) degree in School Psychology from the University of South Florida. Their eldest son T.J. was born in May 1994. He was joined by brothers Michael in January 1998 and Matthew in December 1999. Lisa first became aware of CTE in 2008 when her husband of eighteen years passed away in May and became the second former NFL player diagnosed with Chronic Traumatic Encephalopathy (CTE) (https://secure-web.cisco.com/1akmeiVYkEPlnkYfA_DPqqnLAiqV6zyIR_jpMsQ9xjXTHTjoNCDgPa_GNV-gAGAzdf1nUuKNA_46_V3bRqNtqUfzeIrnDq1ixoM5s5eDKBkNV5OuEr7EHC5dT-FFL2kZJZvaWNZnkzdPhaqbA3UV0bludlgg6f_Umfpw6E8DM-lIa3n_230HNdJ9s1v0aiu9ccoCFiNQEmcV8srpKl4xqB6Z5SSd2-3guE7Rlz9kLTkBQhS15eOJ7LLetHfeCkz1vax6_whVZqk5plzJL2lhRoLjLy5q9lmYhhqKml4GITOH9AUAX9YHKbFf1gP32gdREvA8xhWwYcffTTtZutdphrw/https%3A%2F%2Fconcussionfoundation.org%2FCTE-resources%2Fwhat-is-CTE) by researchers at the CTE Center at Boston University School of Medicine. In early 2010, Lisa joined the team at the Concussion Legacy Foundation (CLF), first serving as the Volunteer and Family Coordinator. She currently serves as the Director of Legacy Family Relations for both CLF and the BU CTE Center, working remotely from her home in Tampa, Florida. Episode Resources Episode Articles & Related Research Leveraging football accelerometer data to quantify associations between repetitive head impacts and chronic traumatic encephalopathy in males | Nature Communications (https://www.nature.com/articles/s41467-023-39183-0) UNITE Brain Bank | CTE Center (https://www.bu.edu/cte/brain-donation-registry/brain-bank/) Advocacy, Education, & Community Organizations Homepage | Concussion Legacy Foundation (https://concussionfoundation.org/?gad_source=1&gclid=CjwKCAiAzc2tBhA6EiwArv-i6bGfu1zPmSsxpSwljA35gZzwzydO3PwrGpwzH3mW7wOZgQzZVhSaoRoCEBwQAvD_BwE) Brain Injury Association of America | BIAA (https://www.biausa.org/?gclid=CjwKCAiAzc2tBhA6EiwArv-i6Zacl8onAtQGcbBiZ2whxMZiqohJOqxFZvBodrNUs7zq-Q9IjPoRiBoCAWkQAvD_BwE) News & Services The FRONTLINE Interview: Lisa McHale | Twin Cities PBS (https://www.tpt.org/frontline/video/frontline-frontline-interview-lisa-mchale/) Collective Force of Head Hits Increases Odds of CTE, Study Says | The New York Times (https://www.nytimes.com/2023/06/20/sports/football/cte-study-concussions-brain-tackle.html)

13 Sept 2023
Concussion in School Sports
In this episode we discuss concussion education programs for school sports. Episode Guests: Daniel Daneshvar, MD, PhD Dr. Daneshvar conducts research on the long-term effects of moderate-severe traumatic brain injury, concussion, and repetitive head impacts, including chronic traumatic encephalopathy (CTE). Dr. Daneshvar's work has been published in the Journal of the American Medical Association, Annals of Neurology, and Brain, and has been featured broadly including in the New York Times, the Wall Street Journal, NPR, and ESPN. He also founded Team Up Against Concussions, the first scientifically validated concussion education program for kids. He is the Director of the Institute for Brain Research and Innovation at TeachAids, which created CrashCourse: a free, scientifically validated virtual reality and computer-based concussion education program. He received his S.B. from MIT and completed his M.D./Ph.D. at the BU CTE Center. His research resulted in the first dissertation in history to study CTE. He completed residency at Stanford University before joining the faculty at Harvard Medical School. Esther Lovett Esther is an analyst at Guidepost Growth Equity. She joins us in this episode because of her experience as an advocate for post-concussion syndrome. As an eighth grader in 2013, she experienced her first concussion while playing soccer. Over the next few years, Esther, who was an avid athlete playing soccer, hockey, and tennis, experienced a total of five diagnosed concussions. She shares her experiences to support others with insights, suggestions, and information on various platforms including her own website, Headstrong. Episode Resources: Episode Articles & Related Research Athlete Enjoyment of Prior Education Moderates change in Concussion-Reporting Intention after Interactive Education | Inquiry (https://pubmed.ncbi.nlm.nih.gov/34053328/) Evaluating the Effect of Concussion-Education Programs on Intent to Report Concussion in High School Football | Journal of Athletic Training (https://pubmed.ncbi.nlm.nih.gov/33428746/) Participating in Two Video Concussion Education Programs Sequentially Improves Concussion-Reporting Intention | Neurotrauma Reports (https://www.liebertpub.com/doi/10.1089/neur.2021.0033) Advocacy, Education, & Community Organizations The Team Up Against Concussions Speech | Concussion Legacy Foundation (https://concussionfoundation.org/programs/concussion-legacy-captains/tuac-speech) CrashCourse Concussion Education | TeachAids (https://teachaids.org/for-concussions/crashcourse/?gclid=Cj0KCQjwoeemBhCfARIsADR2QCupBzvFvEMIvuXXUtQIm88VOz59YOzEntxm22rDfZNlJzKityI9_hMaAqe-EALw_wcB) Esther Lovett's Post-Concussion Syndrome Blog | Concussion Legacy Foundation (https://concussionfoundation.org/personal-stories/inspiring-stories/esther-lovett-PCS-blog) Headstrong Concussion (https://www.headstrongconcussion.com/) Concussion Story Wall (https://concussionstorywall.org/) If you are interested in one of the articles highlighted on the show, but are having trouble accessing it, please reach out to us at SRNOutcomesCenter@partners.org. Credits Shonali Gaudino, OT, Host, Producer Chuck Clough, Editor This production is a collaboration between, and partially funded by, the Rehabilitation Outcomes Center at Spaulding and our Model Systems: the Boston-Harvard Burn Injury Model System (NIDILRR Award #90DPBU0008), the Spaulding-Harvard Traumatic Brain Injury Model System (NIDILRR Award #90DPTB0027-01-01), and the Spaulding New England Regional Spinal Cord Injury Model System Center (NIDILRR Award #90SIM0017-01-00).

22 Aug 2023
Equity in Elite Sports: The Paralympian
In this episode, we hear about the state of the science of sports medicine in the elite para-athlete. Episode Guests: Cheri Blauwet, MD is an Associate Professor in Physical Medicine and Rehabilitation at Harvard Medical School, the Distinguished Chair in Physical Medicine and Rehabilitation at Brigham and Women’s Hospital, and the Chief Medical Officer of Spaulding Rehabilitation Hospital. She is an attending sports medicine physician at Mass General Brigham, where she also serves as Founding Director of the Kelley Adaptive Sports Research Institute. Dr. Blauwet is also a former Paralympic athlete in the sport of wheelchair racing, competing for the United States Team in three Paralympic Games (Sydney '00, Athens '04, Beijing '08) and bringing home a total of seven Paralympic medals. She is also a two-time winner of both the Boston and New York City Marathons. Professor Wayne Derman is the Executive Head of the Department of Exercise, Sport and Lifestyle Medicine, as well as the Head of Division: Institute of Sport and Exercise Medicine (ISEM) at Stellenbosch University. He is currently a Co-director of the IOC Research Centre in South Africa and heads up one of two FIFA Medical Centres of Excellence in Africa. His research focuses on secondary prevention of chronic diseases of lifestyle, and injury and illness prevention in athletes including those with disabilities. Episode Resources: Episode Articles & Related Research Consensus statement on concussion in sport: the 6th International Conference on Concussion in Sport-Amsterdam, October 2022 (https://secure-web.cisco.com/1jy6WCD__aWANPstLzxFatuh55rWLXnZ5zngQIo42kZV4CvdNB0aTMVY_v6NGhk2awg9bYp20W-1ot8i6F5JfaufboRfmeoe9_kO5-ZbdbVH5YUy9gV_1tlQ_1AAoM1NNAN3OPWWSV_xvFR48cqbwEyZ_LTD5GHTTKBGkf54KjuSy8F5ZvMLzXSDP5iW7kDnKBybEwqhz7xlGhsYgnmpTYkIdeVOA69U3Gr1MSy7DBFwm-1SN0c4_qRseoamftghz2y14d2jFLsJvY2GhrmTLtIaPmU-lvW4Q4i-HUdnvKErr37_osLkroXI2eHfFMVQu/https%3A%2F%2Fbjsm.bmj.com%2Fcontent%2F57%2F11%2F695) Shoulder Pain, Function, and Ultrasound-Determined Structure in Elite Wheelchair-Using Para Athletes | Medicine & Science in Sports & Exercise (https://journals.lww.com/acsm-msse/Fulltext/2022/06000/Shoulder_Pain,_Function,_and_Ultrasound_Determined.2.aspx) Para sport translation of the IOC consensus on recording and reporting of data for injury and illness in sport | British Journal of Sports Medicine (https://bjsm.bmj.com/content/55/19/1068) Kelley Institute for Adaptive Sports Research | Spaulding Rehabilitation Network (https://spauldingrehab.org/research/programs-labs/adaptive-sports) Advocacy, Education, & Community Organizations International Paralympic Committee (https://www.paralympic.org/) News & Services USA goalball makes incredible comeback | NBC Sports (https://www.youtube.com/watch?v=6lfckl8LU_8&t=111s) If you are interested in one of the articles highlighted on the show, but are having trouble accessing it, please reach out to us at SRNOutcomesCenter@partners.org. Credits Shonali Gaudino, OT, Host, Producer Chuck Clough, Editor This production is a collaboration between, and partially funded by, the Rehabilitation Outcomes Center at Spaulding and our Model Systems: the Boston-Harvard Burn Injury Model System (NIDILRR Award #90DPBU0008), the Spaulding-Harvard Traumatic Brain Injury Model System (NIDILRR Award #90DPTB0027-01-01), and the Spaulding New England Regional Spinal Cord Injury Model System Center (NIDILRR Award #90SIM0017-01-00).

29 Jun 2023
More Than Just a Game: The Public Health Impact of Sport and Physical Activity for People with Disabilities
Episode Description In this episode we discuss the benefits and barriers to fitness in people with disabilities, inspired by the article More Than Just a Game: The Public Health Impact of Sport and Physical Activity for People With Disabilities. Episode Guests Cheri Blauwet, MD Cheri Blauwet is an Associate Professor in Physical Medicine and Rehabilitation at Harvard Medical School, the Distinguished Chair in Physical Medicine and Rehabilitation at Brigham and Women’s Hospital, and the Chief Medical Officer of Spaulding Rehabilitation Hospital. She is an attending sports medicine physician at Mass General Brigham, where she also serves as Founding Director of the Kelley Adaptive Sports Research Institute. Dr. Blauwet is also a former Paralympic athlete in the sport of wheelchair racing, competing for the United States Team in three Paralympic Games (Sydney '00, Athens '04, Beijing '08) and bringing home a total of seven Paralympic medals. She is also a two-time winner of both the Boston and New York City Marathons. Saul Fisher On June 10th, 2018, Saul Fisher was about a mile from his home halfway through his 25-mile bike workout when he was hit by a car and his life changed in an instant. He states: Kathleen Salas, PT, MHA Kathleen Comfort Salas is a physical therapist with extensive experience working with clients with neurologic impairments. She began blending adaptive sports with her rehabilitation approach 30 years ago. In 2009 she led the expansion of Spaulding Adaptive Sports programs from Boston to the North Shore, where she ran programs until becoming the full time Boston Coordinator of Spaulding Adaptive Sports Centers in 2021. Kathleen promotes the power of sport to enhance rehabilitation and achieve recreation goals, and empowerment for people with disabilities in all areas of their lives. Episode Resources Episode Articles & Related Research More Than Just a Game: The Public Health Impact of Sport and Physical Activity for People With Disabilities (The 2017 DeLisa Lecture) | American Journal of Physical Medicine & Rehabilitation (https://pubmed.ncbi.nlm.nih.gov/30286017/) Functional and environmental factors are associated with sustained participation in adaptive sports | PM&R (https://onlinelibrary.wiley.com/doi/abs/10.1016/j.pmrj.2016.10.015) Participant-reported benefits of involvement in an adaptive sports program: a qualitative study | PM&R (https://onlinelibrary.wiley.com/doi/abs/10.1016/j.pmrj.2017.10.008) Developing a Virtual Adaptive Sports Program in Response to the COVID-19 Pandemic | PM&R (https://onlinelibrary.wiley.com/doi/10.1002/pmrj.12481) Advocacy, Education, & Community Organizations Move United: (https://moveunitedsport.org/)A nonprofit with a mission to ensure everyone, regardless of ability, experiences the life-changing power of sport and is included in their community Global Sports Mentoring Program: (https://globalsportsmentoring.org/dc-year/2023/) Sport for Community (S4C), uses an immersive mentorship and cultural exchange model to focus on empowering people with disabilities through community-based sports initiatives Commit to Inclusion: (http://committoinclusion.org/) A global campaign to end the exclusion of people with disability from physical activity and all associated areas National Center on Health, Physical Activity and Disability (NCHPAD): (https://www.nchpad.org/) A CDC-funded public health practice and resource center on health promotion for people with disability ADA Checklists for Existing Facilities (https://www.adachecklist.org/) Other health resources mentioned in the article: Healthy People 2020 (https://health.gov/healthypeople), NFL Play 60 (https://www.heart.org/en/professional/educator/nfl-play-60), Exercise is Medicine (https://www.exerciseismedicine.org/) News & Services Spaulding Adaptive Sports Centers Website: (https://sasc.spauldingrehab.org/default.aspx) View the calendar and register as a participant or volunteer SASC Stories of Strength: (https://spauldingrehab.org/conditions-services/adaptive-sports) “Stories of Strength” highlight the power of early exposure to sport during rehabilitation 3-min video overview of SASC programs (https://drive.google.com/file/d/1qG0zxCA2ht33gvPXAFvZ0aOXcGRlrLfj/view) New England Healing Sports Association (https://nehsa.org/) Vermont Adaptive Ski & Sports (https://www.vermontadaptive.org/) Windrush Farm: Therapeutic Equitation (https://www.windrushfarm.org/) NESN Sports Spotlight: Spaulding Adaptive Sports Ski Program (https://youtu.be/PpU9BcQ_cnE) NESN Sports Spotlight: Spaulding's ExPD Program (https://youtu.be/QtO8_XNiLiM)

5 Jun 2023
No Easy Game: An Intensive Comprehensive Aphasia Program’s First Five Years
Episode Description: In this episode, we talk about aphasia, the Spaulding-MGH Institute of Health Professions ICAP program, and the story of program participant Dana Lanzillo and his wife Jane. Stories are based on the article Outcomes of an interprofessional intensive comprehensive aphasia program’s first five years. Episode Guests: Esther Ayuk, MS, CCC-SLP, CBIS is an Instructor in the Department of Communication Sciences and Disorders and Coordinator and Clinical Supervisor of the Aphasia Center at the MGH Institute of Health Professions. She is a certified brain injury specialist and has worked as a speech-language pathologist at Spaulding Rehabilitation since 2017. Her clinical research is focused on the standardized assessment of language and cognition across the continuum of care and the role of this information in predicting patient outcomes and influencing health-related quality of life. Randie Black Schaffer, MD, MA is a physiatrist specializing in Stroke Rehabilitation. She founded the first Young Adult Stroke Rehabilitation Program in the country, which has been widely copied regionally and nationally. At Spaulding she started the Young Adult Stroke Service, she directs the SRH Inpatient Stroke Program and serves as Chief of the Division of Stroke and Neurology of the Dept. of Physical Medicine and Rehabilitation of Harvard Medical School. Lynne Brady Wagner, MA, CCC-SLP, MRMC, HEC-C serves as the Chief Learning and Diversity, Equity and Inclusion Officer, Chair of the Ethics Advisory Committee and Associate Director of the Spaulding Stroke Wellness Institute at the Spaulding Rehabilitation Network. In her 25 years at SRN, she has fulfilled many roles including speech-language pathologist, Director of the Stroke Rehabilitation Program, and Director of the Clinical Scholars Program. Mary Hildebrand , OTD, OTR/L is an associate professor and Director of the Tabor-Connor Family Occupational Therapy Center for Learning, Participation, and Rehabilitation (OT CLiPR) at the MGH Institute of Health Professions. Dana Lanzillo and his wife Jane were participants in the the S-IHP’s CAP program (twice!) Marjorie Nicholas, PhD, CCC-SLP, FASHA is Chair of the Department of Communication Sciences and Disorders at the MGH Institute of Health Professions and is a professor specializing in adult neurogenic communication disorders. She founded the MGH Institute's onsite Aphasia Center, which provides diagnostic and treatment services to adults with aphasia and related communication impairments. The Aphasia Center operates on the Life Participation Approach to Aphasia (LPAA) model. Prior to joining the MGH Institute, she was a speech-language pathologist for over 15 years at the VA Boston Healthcare System. Dr. Nicholas became a Fellow of the American Speech-Language-Hearing Association (FASHA) in 2017. Episode Resources: Episode Articles & Related Research Outcomes of an interprofessional intensive comprehensive aphasia program’s first five years | Topics in Stroke Rehabilitation (https://www.tandfonline.com/doi/abs/10.1080/10749357.2021.1970452?journalCode=ytsr20) Advocacy, Education, & Community Organizations S-IHP's CAP Intensive Aphasia Program | MGH IHP (https://www.mghihp.edu/ipc/aphasia-center/aphasia-programs)

1 May 2023
Measuring Function After Spinal Cord Injury: The SCI-FI
In this episode, we discuss the development and use of a tool that measures function after spinal cord injury: the Spinal Cord Injury Functional Index (SCI-FI) / Assistive Technology (AT). Episode Guests: David Estrada, JD, represents United Spinal Association as a peer mentor, board member, and former executive director of its Greater Boston chapter as well as a national chapter liaison. He is a program manager at the Spaulding New England Regional Spinal Cord Injury Model System and the Exercise for Persons with Disabilities Program. Living with a spinal cord injury and wheelchair user for the past 27 years, he has focused on consumer-led advocacy locally and nationally to promote high quality services for better healthcare management and access to resources for the SCI community. For nearly a decade, Dave was an Athletes with Disabilities Coordinator for the Boston Marathon and continues to promote adaptive sports participation. Alan Jette, PT, PhD, MPH, FAPTA currently serves as Editor-in-Chief of the journal PTJ and is Professor & Dean emeritus at Boston University. His scholarship focuses on evaluation of rehabilitation outcomes, the measurement of function, and the prevention and treatment of disability. He served as Dean of Boston University’s Sargent College of Health and Rehabilitation Sciences from 1996-2004, was Professor of Health Policy & Management at the Boston University School of Public Health from 2005-2017, and Professor of Rehabilitation Sciences at the MGH Institute of Health Professions from 2012 to 2021. In 2013, Dr. Jette was elected to the National Academy of Medicine, formerly the Institute of Medicine. Sarah Skeels, BS, MPH has a B.S. in Exercise Physiology from the University of Virginia where she focused in adaptive exercise, and a Master’s Degree in Public Health from George Washington University, where she focused on Health Promotion and Disability. Sarah is a consultant on numerous research projects that involve people with SCI, a member of the Community Advisory Board with the Spaulding New England Regional Spinal Cord Injury Center; Lecturer in the Department of Occupational Therapy at Tufts University; and Senior Teaching Associate in Behavioral and Social Sciences in the School of Public Health and Brown University. Sarah serves on numerous boards of non-profit adaptive sports organizations and is a Commissioner on the RI Governor’s Commission for People with Disabilities. Sarah is a person with an SCI as a result of a bicycle accident 33 years ago, and is an adaptive snowsports instructor, a former Paralympic-level sailor, an avid outdoorswoman and most importantly, a mom. Episode Resources: Episode Articles & Related Research Development and initial evaluation of the SCI-FI/AT (https://pubmed.ncbi.nlm.nih.gov/26010975/) Overview of the Spinal Cord Injury-Functional Index (SCI-FI): Structure and Recent Advances - Archives of Physical Medicine and Rehabilitation (https://www.archives-pmr.org/article/S0003-9993(21)01516-1/fulltext#:~:text=The%20Spinal%20Cord%20Injury%E2%80%93Functional%20Index%20(SCI%2DFI),spinal%20cord%20injury%20(SCI)) News & Services AccessNow App (https://accessnow.com/)

29 Mar 2023
Recovery After Moderate to Severe Brain Injury
In this episode, we discuss our ability to predict outcomes after moderate to severe brain injury. Episode Guests: Dr. Joseph T. Giacino, PhD is a neuropsychologist at Spaulding Rehabilitation and Massachusetts General Hospital in Boston Massachusetts. At Spaulding, he directs the Rehabilitation Neuropsychology Service, Disorders of Consciousness Program and Neurorehabilitation Laboratory. At Harvard Medical School, he is a professor of Physical Medicine and Rehabilitation and teaches neuroethics at the Center for Bioethics. He is adjunct professor in the Rehabilitation Sciences Doctoral Program at the MGH Institute of Health Professions. His work focuses on developing more precise assessment methods and effective treatment interventions for individuals with severe brain injury. He serves as the director of the Spaulding-Harvard Traumatic Brain Injury Model System. Nicole Godaire is chief executive officer of the Brain Injury Association of Massachusetts (BIA-MA) and has been with BIA-MA since 2005. Nicole’s passion is advocating for the brain injury community, improving access to more programs and services for individuals with brain injury and caregivers in the Commonwealth of Massachusetts. Nicole’s relationships within the provider community have made it possible for BIA-MA to increase brain injury awareness and close gaps in services across the state. Tracey Macarty is mother to Will Emery, who lived with a traumatic brain injury until his passing in 2018. Will was an avid car enthusiast, always tinkering with his numerous vehicles. He loved playing drums with his band Arm the Hopeless. Above all, he loved his family and friends and you never walked away without a smile on your face. He guided his mother through the most harrowing time of her life, giving her life purpose. He always made sure he told her, "I love you more." Tracey was a staunch advocate for her son and hopes to continue spreading awareness and compassion for people experiencing traumatic brain injuries. Episode Resources Episode Articles & Related Research Functional Outcomes Over the First Year After Moderate to Severe Traumatic Brain Injury in the Prospective, Longitudinal TRACK-TBI Study (https://jamanetwork.com/journals/jamaneurology/fullarticle/2781523) Recovery of Consciousness and Functional Outcome in Moderate and Severe Traumatic Brain Injury (https://pubmed.ncbi.nlm.nih.gov/33646273/) Traumatic Brain Injury: What Is a Favorable Outcome? (https://pubmed.ncbi.nlm.nih.gov/34861770/) Spaulding-Harvard Traumatic Brain Injury Model System (https://spauldingrehab.org/research/programs-labs/traumatic-brain-injury) Advocacy, Education & Community Resources Welcome to BIA-MA (http://www.biama.org/) Living with Traumatic Brain Injury (TBI) | MSKTC (https://msktc.org/TBI)

13 Mar 2023
From Survival to Survivorship, Part II
Join us for our special 2-part kickoff series inspired by the New England Journal of Medicine article “From Survival to Survivorship – Framing Traumatic Injury as a Chronic Condition.” In this episode, we discuss finding common language in our data. Episode Guests David Estrada, JD, represents United Spinal Association as a peer mentor, board member, and former executive director of its Greater Boston chapter as well as a national chapter liaison. He is a program manager at the Spaulding New England Regional Spinal Cord Injury Model System and the Exercise for Persons with Disabilities Program. Living with a spinal cord injury and wheelchair user for the past 27 years, he has focused on consumer-led advocacy locally and nationally to promote high quality services for better healthcare management and access to resources for the SCI community. For nearly a decade, Dave was an Athletes with Disabilities Coordinator for the Boston Marathon and continues to promote adaptive sports participation. Dr. Juan Herrera-Escobar, MD, MPH, is a physician scientist from Colombia with advanced training in trauma outcomes research methodology. Dr. Herrera-Escobar serves as Research Director in Long Term Outcomes in Trauma at Brigham & Women’s Center for Surgery and Public Health. His academic interests are in studying the long-term physical, mental, and social health consequences of traumatic injuries, as well as in the implementation of trauma registries and trauma systems design. His work has led to several publications on the long-term impact of traumatic injuries and the factors associated with poor outcomes, emphasizing the role of patient and socioeconomic factors in recovery. Episode Resources Articles & Related Research From Survival to Survivorship — Framing Traumatic Injury as a Chronic Condition | NEJM (https://www.nejm.org/doi/full/10.1056/NEJMp2205162) Stepping Strong Center for Trauma Innovation (https://steppingstrong.bwh.harvard.edu/) Spaulding New England Regional Spinal Cord Injury Center (https://www.snerscic.org/) Mental Health Evaluation for Non-English Speaking Survivors of Traumatic Injury (https://csph.brighamandwomens.org/nests/) Advocacy, Education & Community Organizations United Spinal Association (https://unitedspinal.org/) Greater Boston Chapter of the United Spinal Association (//www.sciboston.org) Disabilities Commission, City of Boston (https://www.boston.gov/departments/disabilities-commission) National Rehabilitation Information Center (https://www.naric.com/) How to Become a Mentor: Mass Mentors (https://massmentors.org/engage/find-a-mentoring-program/?utm_source=Commission+for+Persons+with+Disabilities&utm_campaign=Community+Update+-+1%2F17%2F2023&utm_medium=email) News & Services Traumatic Spinal Cord Injury Facts and Figures (https://www.nscisc.uab.edu/public/Facts and Figures 2022 - English Final.pdf) Lee Park, MD Q&A: Bridging the Digital Divide (https://www.massgeneralbrigham.org/en/about/newsroom/articles/lee-park-md-qa-bridging-the-digital-divide?cid=cor4793f&utm_medium=social&utm_source=linkedin&utm_campaign=mgb-corporate-uar-campaign) How to Embed a Disability Economic Justice Policy Framework in Domestic Policy Making (https://tcf.org/content/commentary/how-to-embed-a-disability-economic-justice-policy-framework-in-domestic-policy-making/)

6 Mar 2023
From Survival to Survivorship – Framing Traumatic Injury as a Chronic Condition, Part I
Join us for our special 2-part kickoff series inspired by the New England Journal of Medicine article “From Survival to Survivorship – Framing Traumatic Injury as a Chronic Condition.” In this episode, we discuss coordinated care across the lifespan of those with traumatic injuries. Episode Guests: Dr. Jeffrey Schneider is the medical director of Trauma and Burn Rehabilitation at Spaulding Rehabilitation and associate professor of Physical Medicine and Rehabilitation at Harvard Medical School. He serves as project director of the Boston Harvard Burn Injury Model System, a multi-institutional center grant focused on long-term outcomes in the burn population. His interests also include utilizing large data to explore rehabilitation outcomes and he is the co-Director of the Rehabilitation Outcomes Center at Spaulding. Diana Tenney is a burn survivor who sustained a burn injury to over 90% of her body 13 years ago. She has completed well over 1000 peer support visits and speaks locally and nationally about her experience as a burn survivor. Diana currently serves as Co-Director of Knowledge Translation for the Boston-Harvard Burn Injury Model System. She is past-President and Board member of BSONE, the Burn Survivors of New England, Co-Director of the Diana Tenney Burn Research Fund, and a member of the Spaulding Council on Disability Awareness. Episode Article & Related Research From Survival to Survivorship — Framing Traumatic Injury as a Chronic Condition | NEJM (https://www.nejm.org/doi/full/10.1056/NEJMp2205162) Boston-Harvard Burn Injury Model System (https://www.bhbims.org/) Life Impact Burn Recovery Evaluation (LIBRE) Profile (https://spauldingrehab.org/research/programs-labs/rehabilitation-outcomes-center/life-impact-burn-recovery-evaluation) Advocacy, Education, & Community Organizations Burn Survivors of New England (https://www.bsone.org/) Phoenix Society for Burn Survivors (https://www.phoenix-society.org/) World Burn Congress (https://phoenix-society.org/phoenix-wbc) Face Equality International (https://faceequalityinternational.org/) Judy Heumann Judy Heumann’s Website (https://judithheumann.com/) Judy’s Book: Being Heumann – An Unrepentant Memoir of a Disability Rights Activist (https://judithheumann.com/being-heumann/) Watch ‘Crip Camp: A Disability Revolution’ on Netflix (https://www.netflix.com/title/81001496) Judy’s TED Talk: Our fight for disability rights – and why we’re not done yet (https://www.ted.com/talks/judith_heumann_our_fight_for_disability_rights_and_why_we_re_not_done_yet?language=en)

14 Feb 2023
Finding Strength: The Trailer
2-minute introduction to the podcast.
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- YouTube
- 0
- Engagement
- 60
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