Fragile X Association of Australia is a member-based organisation which serves as the peak body for the Fragile X community across Australia.
We offer information, support, education, advocacy and referrals to individuals who are impacted by Fragile X-associated disorders and to their families, carers and health and disability service providers.
Visit http://fragilex.org.au (http://fragilex.org.au)
Sensory Processing and Fragile X Syndrome (Bev Kadish)
Occupational Therapist Bev Kadish breaks down what sensory processing is and how to build a personalised sensory diet for someone with Fragile X syndrome, covering deep pressure input, sensory snacks, breathing techniques, the emergency backpack, and the withdrawal area.
02:00 What is sensory processing?
06:18 What is a sensory diet?
09:44 Regulation and feeding the need
11:01 Structuring a sensory diet: meals and snacks
16:41 Deep pressure input for organising the nervous system
22:33 Sensory snacks: fidget, vibration and oral input
25:38 Breathing techniques and regulation tools
30:25 The emergency backpack and the withdrawal area
36:35 Knowing when a sensory diet is working
9 Jul 2026
July 2026 - Research Roundup
Four researchers share the latest on Fragile X research, clinical trials and support tools. Professor David Hessl covers the International Fragile X Premutation Registry, Associate Professor Jessica Klusek shares what's being learned about the FMR1 premutation in women, Associate Professor Erin Turbitt gives an update on the NurtureNextGen project, and Katie Clapp from FRAXA Research Foundation covers the latest clinical trial pipeline.
00:42 Professor David Hessl: International Fragile X Premutation Registry
13:25 Associate Professor Jessica Klusek: The FMR1 Premutation in Women
33:23 Associate Professor Erin Turbitt: The NurtureNextGen Project
46:07 Katie Clapp: FRAXA Research Foundation, research and clinical trial update
30 Sept 2025
Understanding FXTAS (Dr Alex Fois)
Presented by Dr Alex Fois BSc (Adv; Hons I, Medal) BM BCh (Oxon) MRCP FRACP PhD. Dr Fois. Dr Fois is a specialist neurologist and has a subspecialty interest and training in movement disorders including Parkinson's disease, tremor, ataxia, dystonia, and in the injection of botulinum toxin for the treatment of neurological symptoms. This webinar provides a comprehensive overview of Fragile X-associated Tremor Ataxia syndrome (FXTAS), a late onset condition which affects some carriers of the Fragile X premutation. Covering: differentiating between conditions caused by FMR1 gene premutation/mutation; cause of FXTAS; incidence; symptoms; diagnostic pathways; research; management of symptoms.
Dr Alex Fois is based in Sydney and practices at Harbour Neurology Group (North Sydney), Macquarie University Hospital, and Fraser Coast Neurology (Hervey Bay, Queensland).
Website:https://dralexfois.com.au/ (https://dralexfois.com.au/)
Reach and audience
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YouTube views
30,759
Score snapshot 15 Sept 2025
Podcast Authority Score: 20 / 100
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Quality
12
Social presence
0
YouTube
72
Engagement
0
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