by BloodStream Media
Led by science, curiosity, and storytelling, the Global Hemophilia Report from BloodStream Media is an entertaining monthly journey through the investigations and science driving hemophilia research around the world. Produced by: Believe Limited & BloodStream Media Hosted by: Patrick James Lynch Senior Advisor: Dr. Donna DiMichele Featured Advertiser: Sanofi Genzyme #GHRpod #hemophilia #clinicalresearch #bloodstreammedia
Language
🇺🇲
Publishing Since
1/25/2022
Pitch yourself as a guest, propose sponsorships, or reach out directly to the host.
June 18, 2026
<p dir="ltr">At the World Federation of Hemophilia World Congress in Kuala Lumpur, thousands gathered to discuss the future of bleeding disorders care. Gene therapies. Rebalancing agents. Artificial intelligence. New possibilities seemed to be everywhere.</p> <p dir="ltr">But beneath the excitement, one question echoed throughout the meeting: who still gets left behind?</p> <p dir="ltr">In this episode of the Global Hemophilia Report, Patrick Lynch sits down with Believe Limited's Amy Board, WFH Humanitarian Aid Director Assad Haffar, and Sanofi's Bonnie Anderson to explore the promises of innovation, the realities of global inequity, and the humanitarian efforts working to close the gap. From breakthrough science to life-changing access programs, this conversation examines what "Treatment for All" really means in 2026.</p> <p dir="ltr">Guests:<br /> <br /></p> <p dir="ltr">Amy Board – Director, Engagement and Programs, Believe Limited</p> <p dir="ltr">Assad Haffar – WFH Humanitarian Aid Director</p> <p dir="ltr">Bonnie Anderson – Head of Humanitarian Aid, Rare Diseases at Sanofi</p> <p><strong> </strong></p> <p dir="ltr">Senior Advisor: Donna DiMichele, MD</p> <p><strong> </strong></p> <p dir="ltr">Hosted by: Patrick James Lynch</p> <p><strong> </strong></p> <p dir="ltr">Featured Advertiser:</p> <p dir="ltr"><a href= "http://redefininghemophilia.com">Sanofi</a></p> <p><strong> </strong></p> <p dir="ltr">Subscribe to the <a href= "https://www.bloodstreammedia.com/global-hemophilia-report">Global Hemophilia Report</a><br /> <br /> <br /></p> <p dir="ltr">Show Notes:</p> <p><strong> </strong></p> <p dir="ltr">Connect with the Global Hemophilia Report</p> <p dir="ltr"><a href= "https://www.linkedin.com/showcase/global-hemophilia-report/">Global Hemophilia Report on LinkedIn</a></p> <p dir="ltr"><a href="https://twitter.com/GlobalHemReport">Global Hemophilia Report on X/Twitter</a></p> <p dir="ltr"><a href= "https://www.facebook.com/GlobalHemophiliaReport/">Global Hemophilia Report on Facebook</a></p> <p><strong> </strong></p> <p dir="ltr">Connect with BloodStream Media:</p> <p dir="ltr"><a href= "https://www.bloodstreammedia.com/">BloodStreamMedia.com</a></p> <p dir="ltr"><a href= "http://www.facebook.com/BloodStreamMedia">BloodStream on Facebook</a> </p> <p dir="ltr"><a href= "https://twitter.com/BloodStreamInfo">BloodStream on X/Twitter</a> </p> <p> </p>
April 23, 2026
<p dir="ltr">The hemophilia treatment landscape is evolving faster than ever. In this episode of Global Hemophilia Report, Patrick James Lynch and Dr. Donna DiMichele are joined by Drs. Hermans, Carpenter, and Hansen to break down the emerging class of rebalancing agents—therapies that don't replace clotting factor, but target new parts of the coagulation cascade.</p> <p dir="ltr">We explore what these treatments mean for patients, clinics, and shared decision-making around the world. Key takeaways include the urgent need for real-world data, better patient education, and the potential for new therapies to protect joint health in ways never seen before.</p> <p dir="ltr">Tune in to hear expert insights, practical considerations, and the future of hemophilia care.<br /> <br /></p> <p dir="ltr">Guests:</p> <p dir="ltr">Dr. Cedric Hermans, MD, - Hemophilia Centre, Saint-Luc University Hospital, Brussels </p> <p dir="ltr">Dr. Shannon Carpenter, MD - Pediatric Hematology, Kansas City Hemophilia Center:</p> <p dir="ltr">CJ Hansen BSN, RN - Nurse Coordinator & Program Manager, OSU Comprehensive Cancer Center, Patient Advocate</p> <p><strong> </strong></p> <p dir="ltr">Senior Advisor: Donna DiMichele, MD</p> <p><strong> </strong></p> <p dir="ltr">Hosted by: Patrick James Lynch</p> <p><strong> </strong></p> <p dir="ltr">Featured Advertiser:</p> <p dir="ltr"><a href= "http://redefininghemophilia.com">Sanofi</a></p> <p><strong> </strong></p> <p dir="ltr">Subscribe to the <a href= "https://www.bloodstreammedia.com/global-hemophilia-report">Global Hemophilia Report</a></p> <p><strong> </strong></p> <p dir="ltr"><strong>Show Notes:</strong></p> <p dir="ltr"> </p> <p dir="ltr"><strong>The Bigger Picture in Hemophilia B: </strong></p> <p dir="ltr">Hemophilia A and hemophilia B are different bleeding disorders with unique pathologies and clinical features.1 Due to the distinct behavior of factor IX, multiple PK parameters should be considered when assessing bleed prevention. Learn how a broader view of PK may influence evaluation of treatment and management for patients with hemophilia B.2,3 Learn more at thebiggerpictureinhemb.com </p> <p dir="ltr">1. Castaman G, Matino D. Haematologica. 2019;104(9):1702-1709.</p> <p dir="ltr">2. Dolan G, Benson G, Duffy A, et al. Blood Rev. 2018;32(1):52-60. </p> <p dir="ltr">3. Mann DM, Stafford KA, Poon M-C, Matino D, Stafford DW. Haemophilia. 2021;27(3):332-339.</p> <p><strong> </strong></p> <p dir="ltr"><strong>Connect with the Global Hemophilia Report</strong></p> <p dir="ltr"><a href= "https://www.linkedin.com/showcase/global-hemophilia-report/">Global Hemophilia Report on LinkedIn</a></p> <p dir="ltr"><a href="https://twitter.com/GlobalHemReport">Global Hemophilia Report on X/Twitter</a></p> <p dir="ltr"><a href= "https://www.facebook.com/GlobalHemophiliaReport/">Global Hemophilia Report on Facebook</a></p> <p><strong> </strong></p> <p dir="ltr"><strong>Connect with BloodStream Media:</strong></p> <p dir="ltr"><a href= "https://www.bloodstreammedia.com/">BloodStreamMedia.com</a></p> <p dir="ltr"><a href= "http://www.facebook.com/BloodStreamMedia">BloodStream on Facebook</a> </p> <p dir="ltr"><a href= "https://twitter.com/BloodStreamInfo">BloodStream on X/Twitter</a> </p> <p> </p>
February 26, 2026
<p dir="ltr">This season opener explores comprehensive hemophilia care in 2025: what's working, what's strained, and what needs to evolve. Clinicians from the US, UK, and Ireland join host Patrick James Lynch and Dr. Donna DiMichele to discuss treatment personalization, shared decision-making, psychosocial burden, and global sustainability challenges. Guest Megan Iditarod from Nigeria offers perspective on delivering comprehensive care with limited resources, highlighting the universal need for multidisciplinary support and good data collection.</p> <p><strong> </strong></p> <p dir="ltr">Guests:</p> <p dir="ltr">Megan Iditarod</p> <p dir="ltr">Kate Khair, PhD</p> <p dir="ltr">Amy Dunn, MD</p> <p dir="ltr">Prof Niamh O'Connell, MB PhD</p> <p><strong> </strong></p> <p dir="ltr">Senior Advisor: Donna DiMichele, MD</p> <p><strong> </strong></p> <p dir="ltr">Hosted by: Patrick James Lynch</p> <p><strong> </strong></p> <p dir="ltr">Featured Advertiser:</p> <p dir="ltr"><a href= "http://redefininghemophilia.com/">Sanofi</a></p> <p><strong> </strong></p> <p dir="ltr">Subscribe to the <a href= "https://www.bloodstreammedia.com/global-hemophilia-report">Global Hemophilia Report</a></p> <p><strong> </strong></p> <p dir="ltr">Show Notes:</p> <p><strong> </strong></p> <p dir="ltr">#MyHemophiliaTruth. Real stories. Powered by Sanofi. It's time to consider the whole experience when it comes to managing hemophilia and change the conversation. Explore the full story at <a href= "http://www.myhemophiliatruth.com/">www.myhemophiliatruth.com</a></p> <p><strong> </strong></p> <p dir="ltr">Connect with the Global Hemophilia Report</p> <p dir="ltr"><a href= "https://www.linkedin.com/showcase/global-hemophilia-report/">Global Hemophilia Report on LinkedIn</a></p> <p dir="ltr"><a href="https://twitter.com/GlobalHemReport">Global Hemophilia Report on X/Twitter</a></p> <p dir="ltr"><a href= "https://www.facebook.com/GlobalHemophiliaReport/">Global Hemophilia Report on Facebook</a></p> <p><strong> </strong></p> <p dir="ltr">Connect with BloodStream Media:</p> <p dir="ltr"><a href= "https://www.bloodstreammedia.com/">BloodStreamMedia.com</a></p> <p dir="ltr"><a href= "http://www.facebook.com/BloodStreamMedia">BloodStream on Facebook</a> </p> <p dir="ltr"><a href= "https://twitter.com/BloodStreamInfo">BloodStream on X/Twitter</a> </p> <p> </p>
Guests from recent episodes — sign up to see every guest that has ever appeared on this show.
Kate Bazinsky
Guest
Randy Curtis
Guest
Debbie de la Riva
Guest
Jackie Bottacari
Guest
Discover related shows you might enjoy
Have a different question and can't find the answer you're looking for? Reach out to our support team by sending us an email and we'll get back to you as soon as we can.
Led by science, curiosity, and storytelling, the Global Hemophilia Report from BloodStream Media is an entertaining monthly journey through the investigations and science driving hemophilia research around the world.
Produced by: Believe Limited & BloodStream Media Hosted by: Patrick James Lynch Senior Advisor: Dr. Donna DiMichele Featured Advertiser: Sanofi Genzyme
#GHRpod #hemophilia #clinicalresearch #bloodstreammedia
This podcast updates bi-weekly.
This podcast is available on 9 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
Information about guest appearances is not available.
Pod Engine is not affiliated with, endorsed by, or officially connected with any of the podcasts displayed on this platform. We operate independently as a podcast discovery and analytics service.
All podcast artwork, thumbnails, and content displayed on this page are the property of their respective owners and are protected by applicable copyright laws. This includes, but is not limited to, podcast cover art, episode artwork, show descriptions, episode titles, transcripts, audio snippets, and any other content originating from the podcast creators or their licensors.
We display this content under fair use principles and/or implied license for the purpose of podcast discovery, information, and commentary. We make no claim of ownership over any podcast content, artwork, or related materials shown on this platform. All trademarks, service marks, and trade names are the property of their respective owners.
While we strive to ensure all content usage is properly authorized, if you are a rights holder and believe your content is being used inappropriately or without proper authorization, please contact us immediately at hey@podengine.ai for prompt review and appropriate action, which may include content removal or proper attribution.
By accessing and using this platform, you acknowledge and agree to respect all applicable copyright laws and intellectual property rights of content owners. Any unauthorized reproduction, distribution, or commercial use of the content displayed on this platform is strictly prohibited.
