Gut Culture
Claim This Podcastby Global Healthy Living Foundation
Podcast Overview
<p>A podcast that gut checks assumptions about IBD (Inflammatory Bowel Disease) through real conversations with two healthcare leaders. Hosted by Steven Newmark- Director of Policy at Global Healthy Living Foundation and Melodie Narain-Blackwell, President and Founder of The Color of Crohn's and Chronic Illness.</p>
Language
🇺🇲
Publishing Since
12/7/2021
2 verified contact emails on file for Gut Culture
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Recent Episodes
June 2, 2022
S1, Ep 4- The Power of IBD Advocates
<p>Two mothers with inflammatory bowel disease have much in common. But what makes them different is what also makes them so powerful as the “IBD Moms.” In the second of a two-part episode, Brooke Abbott and Amber Tresca talk about how racial disparities impact access to IBD diagnoses and treatment, and why building community is crucial to getting much-needed information into the hands of people living with IBD.</p> <p>“We can help one another in this,” says Amber. “Let's figure out what we need to do to make sure that we're the best moms that we can be. We just found so much joy and so much friendship in one another.”</p> <p><strong>Among the highlights in this episode:</strong></p> <p>2:41: Brooke describes the health inequities based on stereotypes that exist for Black women</p> <p>3:14: “I was told that I had everything except for inflammatory bowel disease,” reveals Brooke</p> <p>3:59: Brooke’s poor medical care continued even after she was diagnosed </p> <p>6:35: Our co-host Melodie describes shutting down and feeling “disqualified, not heard, not seen” by her doctor</p> <p>7:19: Amber realizes so many people are going through their IBD journeys alone</p> <p>8:05: Planning is key for people living with IBD</p> <p>10:09: “The pandemic has shown us that we are creatures who need a community, who need people, who need support,” says Brooke</p> <p>11:42: “Nine times out of 10, patients are just trying to be patients,” believes Melodie. “They don't even know there's validity in what they've just experienced.”</p> <p>13:15: Amber shares the most challenging aspects of living with IBD from the IBD community?</p> <p>15:11: Access to information is important</p> <p>Learn more about <a href="https://ibdmoms.org">IBD Moms </a></p> <p><strong>Contact Our Hosts</strong></p> <p>Steven Newmark, Director of Policy at GHLF: <a href="mailto:snewmark@ghlf.org">snewmark@ghlf.org</a></p> <p>Melodie Narain-Blackwell, President and Founder of The Color of Crohn's and Chronic Illness:<a href="mailto: melodie@cocci.org"> melodie@cocci.org</a></p> <p>Catch up on all our episodes on <a href="https://ghlf.org/gut-culture/">our website</a> or on your favorite podcast channel.</p> <p> </p><p>See <a href="https://omnystudio.com/listener">omnystudio.com/listener</a> for privacy information.</p>
May 23, 2022
S1, Ep 3- Two Mothers Form a Bond Through IBD
<p>A hotel bar is an unlikely place to start a support group for Inflammatory bowel disease. But that’s where Brooke Abbott and Amber Tresca found a special magic to form the group, "IBD Moms." In the first of a two-part episode, get to know Brooke and Amber and how they manage life as mothers living with IBD.</p> <p>“We both realized that going through your journey… you don't just meet people in the wild who are like, ‘Yeah, I have IBD as well,’" says Amber. ”We just found so much joy and so much friendship in one another.”</p> <p><strong>Among the highlights in this episode:</strong></p> <p>2:24: Amber describes being diagnosed at 16 with ulcerative colitis</p> <p>3:27: Brooke talks about first having symptoms in college</p> <p>5:06: How Amber and Brooke started IBD Moms</p> <p>7:51: How IDB impacts Brooke’s life as a single mother</p> <p>9:36: Amber describes her motherhood journey having IBD</p> <p>10:29: IBD forced Amber to stop volunteering as a Cub Scout and Girl Scout leader</p> <p>11:59: Most people don’t understand the ups and downs of having IBD</p> <p>10:24: ”You can have an “A” day or a “D” day within 30 seconds,” says Melodie</p> <p>Learn more about <a href="https://ibdmoms.org">IBD Moms</a> </p> <p><strong>Contact Our Hosts</strong></p> <p>Steven Newmark, Director of Policy at GHLF: <a href="mailto:snewmark@ghlf.org">snewmark@ghlf.org</a></p> <p>Melodie Narain-Blackwell, President and Founder of The Color of Crohn's and Chronic Illness: <a href="mailto:melodie@cocci.org">melodie@cocci.org</a></p> <p>Catch up on all of our episodes on <a href="https://ghlf.org/gut-culture/">our website</a> or on your favorite podcast channel.</p><p>See <a href="https://omnystudio.com/listener">omnystudio.com/listener</a> for privacy information.</p>
March 21, 2022
S1, Ep 2- Are There Any Black People with IBD?
<p>If you’re part of an ethnic community, you know how difficult it is to get diagnosed and treated for inflammatory bowel disease, or IBD.<strong> </strong>In this episode we hear from<strong> </strong>gastroenterologist Dr. Florence Odufalu, and why she treats patients in ethnically diverse and underserved communities. We also talk with ulcerative colitis patient Joshua Benton, who has been managing his disease for more than 17 years.</p> <p>“It's an incredible challenge for all IBD patients to navigate the health care system. Especially in patients of color, I kind of hear sometimes the same thing that, ‘I didn't really know where to turn. Nobody was really believing my symptoms,’” says Dr. Odufalu.</p> <p><strong>Among the highlights in this episode:</strong></p> <p>1:13: Gut Culture focuses on building a community for people of color and their IBD journeys</p> <p>2:19:<strong> </strong>Dr. Florence Odufalu discusses how she started in IBD care</p> <p>2:56: “I didn't see that there was a focus in understanding the disease course in people of color,” says Dr. Odufalu</p> <p>4:38: Joshua Benton describes his journey as an ulcerative colitis patient</p> <p>5:43: “There wasn't a lot of documentation or any type of valuable information really, for me to relate to, not just specifically being black, but even just being an American with this condition,” says Joshua.</p> <p>6:10: Joshua describes navigating the health care system</p> <p>7:30: Melodie remembers when she was first diagnosed - “People had found me and they were telling me, I'm the first black person to be diagnosed with this disease."</p> <p>8:28: Dr. Odufalu discusses treating patients of color</p> <p>10:20: IBD is a global disease and affects all colors</p> <p>10:57: Joshua shares what an IBD patient should look for in a doctor</p> <p>12:21: Dr. Odufalu shares what patients should look for in a doctor</p> <p>13:58: How has community helped Joshua</p> <p>14:14: Dealing with mental health and anxiety of being diagnosed with IBD</p> <p>15:58: Common misperceptions of IBD is that it “doesn't affect or rarely affects black and brown people,” says Dr. Odufalu</p> <p>16:42: “The overwhelming majority of my friends just legitimately don't understand it,” says Joshua</p> <p>19:47: The intersection of IBD with colorectal cancer (CRC)</p> <p>20:48: Joshua discusses his ulcerative colitis journey</p> <p>24:40: Diet and IBD</p> <p>26:48: March is Colorectal Cancer Awareness Month. Melodie reminds us that it’s “a disease that's preventable, beatable, and treatable. Please, please, please get your screenings”</p> <p><strong>Contact Our Hosts</strong></p> <p>Steven Newmark- Director of Policy at GHLF: <a href="mailto:snewmark@ghlf.org">snewmark@ghlf.org</a></p> <p>Melodie Narain-Blackwell, President and Founder of The Color of Crohn's and Chronic Illness: <a href="mailto:melodie@cocci.org">melodie@cocci.org</a></p> <p>Catch up on all of our episodes on our website or on your favorite podcast channel.</p><p>See <a href="https://omnystudio.com/listener">omnystudio.com/listener</a> for privacy information.</p>
4 total episodes available
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Frequently asked questions
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- What is Gut Culture?
<p>A podcast that gut checks assumptions about IBD (Inflammatory Bowel Disease) through real conversations with two healthcare leaders. Hosted by Steven Newmark- Director of Policy at Global Healthy Living Foundation and Melodie Narain-Blackwell, President and Founder of The Color of Crohn's and Chronic Illness.</p> - How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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