HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.

HAE Speaks
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Podcast Overview
HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.
Language
🇺🇲
Publishing Since
5/1/2020
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Recent Episodes

June 10, 2026
Summer Safety Tips with the HAEA Health Team
<p>Join HAEA Director of Health & Research Services, Troyce Venturella, and HAEA Health Services Manager, Mandy Granat, as they discuss important summer safety considerations for individuals and families living with HAE. The conversation is designed to help the HAEA community stay safe, healthy, and prepared while enjoying summer activities with family and friends!</p><p><br></p><p>Thank you to our 2026 Sponsors: BioCryst, CSL, IONIS, and Takeda </p>

May 13, 2026
Roundtable with the HAEA CEO – A Conversation with KalVista’s Chief Commercial Officer
<p> In this new HAE Speaks Podcast series, <strong>Roundtable with the CEO</strong>, HAEA CEO & Chairman of the Board, Tony Castaldo, sits down with Nicole Sweeny, Chief Commercial Officer at KalVista Pharmaceuticals.</p><p> Tony and Nicole discuss KalVista’s mission and aspirations for the future health of the HAEA community. They also address <strong>EKTERLY®</strong>, a newly approved oral, on-demand HAE treatment option, and provide practical insights into KalVista’s programs for access, insurance coverage, and efforts to expand treatment options for children.</p><p> <strong>Note:</strong> This podcast is for educational purposes only and is not meant to provide medical advice. The HAEA is company- and product neutral. We don’t endorse specific therapies and we don’t compare products. Treatment comparisons and selection are the sole responsibility of people with HAE and their physicians.</p><p> For more information, please visit <a href="https://www.haea.org" target="_blank" rel="ugc noopener noreferrer">www.haea.org</a>.</p><p> <strong>Sponsored By:</strong> KalVista Pharmaceuticals</p>

May 8, 2026
Perspectives from a Mother and Daughter with HAE
<p>In this episode of HAE Speaks, Cheryl and her daughter Leah share their powerful journey living with hereditary angioedema (HAE) across generations. Together, they open up about navigating diagnosis, managing life with HAE, and the unique perspective of both a parent and child living with the condition. </p><p>They also highlight the importance of advocacy, both within the healthcare system and the broader community, and offer insight into how others can get involved, raise awareness, and make a meaningful impact.</p><p><strong>Sponsored by: </strong>BioCryst Pharmaceuticals </p><p><br /></p>
69 total episodes available
Recent guests on HAE Speaks
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Dr Raffi Tachdjian
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Anne
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Frequently asked questions
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- What is HAE Speaks?
- How often does this podcast release new episodes?
This podcast updates weekly.
- Where can I listen to this podcast?
This podcast is available on 6 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Information about guest appearances is not available.
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