Welcome to the Haemcast, where we talk about all things haemophilia and bleeding disorders. Join us as we speak with leading experts in the field to tackle and address the latest news, hot topics and research.
When being supported means feeling heard — Two tales from haemophilia mums
Haemcast’s special series in collaboration with Local families with bleeding disorders continues with a reflection on what makes the parents of children with haemophilia feel supported.
Mums Melissa and Alex both acknowledge the importance of the ongoing support they have from their sons’ haemophilia care teams. However, they also describe times when they’ve felt unsupported by medical staff due to not being listened to and feeling unheard, and the resulting stress and anxiety.
Both mums suggest potential solutions to the issues they’ve experienced with their sons’ haemophilia care. They also speak about the role that non-medical support from members of the Local families group has played – and continues to play – in their haemophilia journeys.
For more information on Local families with bleeding disorders, visit www.bleeding-disorders.co.uk (http://www.bleeding-disorders.co.uk/)
CREDITS
Participants: Melissa Lloyd, Alex Akrimini
Interviewer: Kathryn Jenner
Music: Once Again Royalty Free Music by Benjamin Tissot via bensound.com (http://bensound.com/)
25 Jun 2026
Ports, pressure and panic — Coping with haemophilia treatment challenges
In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, we look at some of the challenges that can arise when treating a child with haemophilia.
Getting used to administering treatment can be challenging, particularly in the early days. Until recently, most haemophilia treatments have been given intravenously, which is a challenge in itself, but other issues can arise too.
In ‘Ports, pressure and panic’, we speak with three parents of children with haemophilia about treatment-related challenges they’ve experienced. They discuss how they’ve managed and overcome these challenges, and the impact on them as parents.
If you would like to find out more about Local families with bleeding disorders, visit www.bleeding-disorders.co.uk (https://www.bleeding-disorders.co.uk)
CREDITS
Participants: Sam Keeley, Nicola East, Andrew East
Interviewer: Kathryn Jenner
Music: Once Again Royalty Free Music by Benjamin Tissot via bensound.com (http://bensound.com/)
27 May 2026
"I'm the worrier in our relationship" — Being the partner of a person with a bleeding disorder
The next in our special collaboration between Haemcast and Local families with bleeding disorders focuses on the partners of people who live with haemophilia and von Willebrand disease.
Anya, Emma and Tom agree that while bleeding disorders are significant in their lives, they don’t define their partners’ identities or their relationships.
They talk about teamwork and living in the moment, and they share a pride in their partners’ resilience and advocacy. But they also note a lack of support and awareness for partners themselves, particularly when it comes to medical issues.
For more information about Local families with bleeding disorders, visit www.bleeding-disorders.co.uk (http://www.bleeding-disorders.co.uk/).
CREDITS
Participants: Anya Gorman, Emma Drake, Tom Charles
Interviewer: Kathryn Jenner
Music: Once Again Royalty Free Music by Benjamin Tissot via bensound.com (http://bensound.com/)
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
YouTube views
26,674
Score snapshot 15 Sept 2025
Spotify
5.0 / 5
2 ratings
Podcast Authority Score: 58 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
55
Social presence
94
YouTube
76
Engagement
32
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Guest appearances
Books guests
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Questions about Haemcast
Who hosts Haemcast?
Dr Meila Roy host the show. Published by Haemnet.
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The show publishes monthly, based on its RSS feed.
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