Hand in Hand Show is a Strokefocus Podcast. It is a show telling stories of stroke survivors, caregivers, their support groups and institutions that support them.
In 2013, Chris Tuley had a stroke at the age of 27. With zero family history of stroke, no risk factors, and no obvious genetic disorders, doctors determined the stroke was caused by a spontaneous vertebral artery dissection. Unfortunately dissections are one of the leading causes of strokes in younger people.
After spending months in therapy to correct the loss of his vestibular function, Chris fully recovered, however he had lingering nerve pain in his face that was getting progressively worse. Chris was diagnosed with central poststroke pain syndrome and received treatment at Vanderbilt’s Pain Management Clinic. After trying over 25 medications, nerve blocks, Botox injections, and eastern medicine therapies with little to no relief, Chris was desperate and despondent. Chris was told his future was likely to be filled with an increasing amount of opiates that only provided temporary pain relief.
Luckily fate stepped in as Chris’ pain management doctor shared his story with a Vanderbilt neurosurgeon who specializes in deep brain stimulation. In 2016 Chris received deep brain and motor cortex stimulators to treat his chronic pain. Since the surgery, Chris has found major pain relief and is no longer on any opiates or any other pain relief medication.
Chris is now an advocate for stroke education, chronic pain management, and the use of deep brain stimulation for pain management (which is still not cleared by the United States’ Food and Drug Administration).
19 Dec 2020
Episode 105 Elyse Newland Part 2 - focusing on low cost but high quality
Elyse is an occupational therapist from Chattanooga, TN. She worked as a travel therapist across the country before returning home in 2019 to take a home health care position. Since she started working she’s recognized that the U.S. healthcare system is broken. She’s seen and heard time and again from survivors that they don’t get the education, quantity, or quality of therapy they need.
This is the 2nd part of the interview in which Elyse goes on to details to explain what she means by low cost but high quality. Exactly the type of support survivors need.
19 Dec 2020
Episode 104 - Elyse Newland Part 1, changing the course
Elyse is an occupational therapist from Chattanooga, TN. She worked as a travel therapist across the country before returning home in 2019 to take a home health care position. Since she started working she’s recognized that the U.S. healthcare system is broken. She’s seen and heard time and again from survivors that they don’t get the education, quantity, or quality of therapy they need.
This is the part 1 of the interview in which Elyse focuses on her story and what made her decide to start her journey to provide additional resource survivors and family needs.
Inside a recent episode
Episode 14, Develop VR Games For Survivors - Interview With Dr Rachel Proffitt
Published 4 Jun 2017 · Transcript excerpt
[…] You just literally stand in front of the camera, move your arms, move your legs, move your body, and is able to track movement. We have it so that you can play sitting, standing, standing with a standard aluminum frame walker in front of you, standing in parallel bars, like in the clinic. You could stand on a phone surface, you could hold weights in your hands. The nice thing is you just have to stay, you just have to be in front of the camera. So, we use that camera with custom software. And the software, it's kind of fun. It allows for the therapists to make the customizations that they need to for each individual patient. […]
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