HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has (or is a caretaker of someone with) classical homocystinuria, a cobalamin disorder, or severe MTHFR as well as anyone who has been affected by any of the disorders under the homocystinuria umbrella. Topics to be discussed on the show include patient stories, research updates, recipes, and interviews with experts in the field of homocystinuria. Whether you or someone you know were just diagnosed or have been a patient for years, we hope you find this podcast helpful!
HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.
In the fifth installment of HC&U Bite Sized, we talk to Dr. Hong Li, a clinical and biochemical geneticist in the Division of Medical Genetics at Emory University, about her article concerning pancreatitis and homocystinuria.
Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!
Pancreatitis Article
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What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X! (https://homocystinuria.rare-x.org)
Share your NBS story with HCUNA! (https://www.surveymonkey.com/HCUNBSStory)
#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
29 Sept 2026
Decentralized Clinical Trials: Travere's HARMONY and COMPOSE Studies (3/3)
Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America. We hope you enjoy this new, limited series brought to you in conjunction with Science 37 and Travere Therapeutics. This will be a 3 part series focused on decentralized clinical studies (episode 1), the nurse/patient experience (episode 2), and specifics on Travere's Harmony and Compose studies (episode 3).
We are grateful to have been given the opportunity to work with Science 37 and Travere Therapeutics on getting this information out to the homocystinuria community.
In the final episode of this special series, we hear from Dr. David Kudrow, Principal Investigator for the Travere HARMONY and COMPOSE studies being conducted through Science 37. Dr. Kudrow gets into specifics of HARMONY and COMPOSE, how they relate to each other, what participation for patients and caregivers might look like, and gives the homocystinuria community a clearer understanding of the research and the opportunity to ask questions.
During Lindsey's Pro Snacksss, we talk about BEN'S homemade salsa.
HARMONY/COMPOSE Study Sign-Up (https://sci37.com/hcupodcast)
Check Out Science 37! (https://www.science37.com)
Check Out Travere Therapeutics (https://travere.com)
Check out HCU Network America! (https://www.hcunetworkamerica.org)
HC&U on Facebook (https://www.facebook.com/hcupodcast/)
Find Our Low Protein Ideas on Instagram! (https://www.instagram.com/lowprobites/)
HC&U on Twitter (https://www.twitter.com/HCUPodcast/)
HCU Network America on Twitter (https://twitter.com/hcuamerica)
#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
25 Sept 2026
Decentralized Clinical Trials: The Nurse/Patient Experience (2/3)
Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America. We hope you enjoy this new, limited series brought to you in conjunction with Science 37 and Travere Therapeutics. This will be a 3 part series focused on decentralized clinical studies (episode 1), the nurse/patient experience (episode 2), and specifics on Travere's Harmony and Compose studies (episode 3).
We are grateful to have been givien the opportunity to work with Science 37 and Travere Therapeutics on getting this information out to the homocystinuria community.
In episode 2, we hear from Senior Field Nursing Operations Manager, Heather Molatch. She sheds some light on what a decentralized clinical trial home visit might look like for both nurses and patients.
During Lindsey's Pro Snackssss, we talk about Snacklins.
HARMONY/COMPOSE Study Sign-Up (https://sci37.com/hcupodcast)
Check Out Science 37! (https://www.science37.com)
Check Out Travere Therapeutics (https://travere.com)
Check out HCU Network America! (https://www.hcunetworkamerica.org)
HC&U on Facebook (https://www.facebook.com/hcupodcast/)
Find Our Low Protein Ideas on Instagram! (https://www.instagram.com/lowprobites/)
HC&U on Twitter (https://www.twitter.com/HCUPodcast/)
HCU Network America on Twitter (https://twitter.com/hcuamerica)
#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
Who has been a guest on HC&U
Names identified in recent episode analyses. Showing up to five guests.
Rene van Oorschot
Allison Herrity
Michael Stevenson
Erica Arnaud
Brandon Tornes
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
5.0 / 5
18 ratings
Spotify
5.0 / 5
3 ratings
Podcast Authority Score: 38 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
48
Social presence
0
YouTube
0
Engagement
71
Contact HC&U
Guest appearances
Books guests
Based on episode analysis; this does not confirm that the show is currently accepting guests.
Questions about HC&U
Who hosts HC&U?
Ben and host host the show. Published by Ben and Lindsey Massengale.
How often do new episodes come out?
The show publishes daily, based on its RSS feed.
Does HC&U take guests?
Yes. Guests have been identified in episode analyses.
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