This Podcast has been brought to you by the Pumping Marvellous Foundation the UK's Heart Failure Charity. In our series of Podcasts, talking to people about heart failure, we look beyond the cardiologist and delve into what makes people tick, what’s their “Secret Sauce” the Elixir that drives people to overcome and conquer challenging situations in their life.
Heart Failure and Beyond - Patient Fuelled Podcast
Claim This Podcastby Pumping Marvellous, the UK's Heart Failure Charity. Fuelled by patients.
47 episodes
Updated Bi-weekly
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13
Podcast Authority
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Quality27
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Podcast Overview
This Podcast has been brought to you by the Pumping Marvellous Foundation the UK's Heart Failure Charity. In our series of Podcasts, talking to people about heart failure, we look beyond the cardiologist and delve into what makes people tick, what’s their “Secret Sauce” the Elixir that drives people to overcome and conquer challenging situations in their life.
Language
🇺🇲
Publishing Since
9/22/2022
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Quality27
Social0
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Recent Episodes
July 15, 2026
Why Being First Across the Line to Detect Heart Failure Matters | Heart Failure Unfiltered
<p>Heart failure affects over 900,000 people in the UK, yet it remains one of the most underdiagnosed conditions in primary care. Too many patients are only identified after a hospital admission - often following months or years of missed opportunities. This episode asks a simple but urgent question: why aren't we catching it sooner?</p><p><br></p><p>In this episode of Heart Failure Unfiltered, Nick Hartshorne-Evans, founder and CEO of the Pumping Marvellous Foundation - the UK's leading heart failure patient charity - sits down with three experts at the heart of a groundbreaking education initiative. Together, they explore what happened when the Pumping Marvellous Foundation partnered with Health Innovation Northwest Coast to deliver the Marvellous Masterclass - a series of education events designed to upskill over 170 non-specialist clinicians in heart failure awareness, detection, and management.</p><p><br></p><p>You'll learn:</p><p>- Why heart failure is so frequently missed in primary care - and the clinical, historical, and systemic reasons behind it</p><p>- How the BEAT acronym (Breathlessness, Exhaustion, Ankle swelling, Time for an NT-proBNP) gives clinicians a simple, actionable framework for recognising symptoms</p><p>- Why NT-proBNP should be the first-line diagnostic step - and why confusion around diagnostic pathways has led to widespread inconsistency</p><p>- What the Marvellous Masterclass events revealed about baseline knowledge levels among non-specialist clinicians — and why that finding matters</p><p>- How bringing patient educators into a clinical education setting transformed engagement and recall</p><p>- What a delayed diagnosis looks like from a patient's perspective — in this case, a respiratory arrest, three months in hospital, and a life that had to be rebuilt from the ground up</p><p><br></p><p>Meet the guests:</p><p><br></p><p>🎙 Katie: diagnosed with cardiomyopathy and heart failure at 25, Katie became a Pumping Marvellous patient educator and shares her experience of years of missed diagnoses before reaching crisis point.</p><p><br></p><p>🎙 Dr. Sue Kemsley: a GP with 30 years of experience, a GPSI in cardiology, and clinical lead roles at Health Innovation Northwest Coast and the Northwest Coast Cardiac Network. Sue brings essential perspective on how heart failure education has evolved — and where the gaps still exist.</p><p><br></p><p>🎙 Sarah Coburn: senior programme manager at Health Innovation Northwest Coast, leading a two-year heart failure programme. Sarah breaks down what the masterclass data revealed and why embedding learning into clinical practice is essential.</p><p><br></p><p>Key takeaways for clinicians:</p><p>Heart failure is treatable — but only if it's found. The evidence is clear: patients with undiagnosed heart failure are circulating through healthcare systems, often with multiple conditions, seeing various professionals, without anyone connecting the dots. This episode makes the case that upskilling the wider workforce — not just specialists — is one of the most impactful interventions we can make. A curious, open mind, a willingness to challenge your initial hypothesis, and knowledge of a few simple tools could be the difference between a patient being diagnosed early or arriving at A&E in crisis.</p><p>This is Episode 1 of a four-part series. Future episodes will continue to explore the question that runs through every conversation: beat the diagnosis.</p><p><br></p><p>🫀 Support patients living with heart failure: pumpingmarvellous.org</p><p>📩 Find out more about the Marvellous Masterclass and upcoming events at pumpingmarvellous.org</p><p><br></p><p>HeartFailure #HeartFailureAwareness #PumpingMarvellous #PrimaryCare #CardiovascularHealth #EarlyDiagnosis #NHSEducation #HeartHealth #GPTraining #PatientVoice #HeartFailureUnfiltered #MarvellousМастерclass #ChronicIllness #CardiacHealth #HealthInnovation #MedicalEducation #HeartFailureDiagnosis #BeatTheSymptoms #NTproBNP #HeartFailureUK</p>
July 8, 2026
Heart Failure Unfiltered | “You Look So Well”.. But He's Not!
<p>Heart failure doesn't look the way people think. And that's exactly the problem.</p><p><br></p><p>In this raw, deeply honest episode of Heart Failure Unfiltered, Nick Hartshorne-Evans sits down with Gavin and Julie Redhead — a heart failure patient and his registered carer - for part two of their conversation. What follows is one of the most human, unguarded accounts of what it truly means to live with heart failure, not just survive a diagnosis.</p><p><br></p><p>Gavin was diagnosed years before most people would expect to face this. Julie became his carer long before either of them were ready. Together, they pull back the curtain on what no one sees: the days you can't get out of bed, the social events you have to cancel at the last minute, the household jobs that quietly shift hands, the grief that never gets named, and the words that cut deepest - "But you look so well."</p><p><br></p><p>This isn't a clinical overview. This is the truth from both sides of the kitchen table.</p><p><br></p><p>In this episode:</p><p>00:00 - When heart failure enters your life</p><p>02:11 - The invisible illness nobody sees</p><p>03:26 - The 9-volt battery: understanding heart failure fatigue</p><p>07:00 - "But you look so well" — the words that sting</p><p>08:17 - When household roles are forced to change</p><p>14:16 - The blue badge moment & fighting your corner</p><p>15:56 - Losing control: the hardest thing about a diagnosis</p><p>19:14 - Turning diagnosis into purpose</p><p>19:14 - The grieving process carers don't talk about</p><p>28:15 - The shocking gender gap in heart failure engagement</p><p>32:40 - From can't breathe to walking a marathon</p><p>34:02 - The most important thing Gavin would say to another patient</p><p>35:17 - Closing Message</p><p><br></p><p>Resources:</p><p>🌐 Pumping Marvellous Foundation: www.pumpingmarvellous.org</p><p>💬 Peer support community: Search "Help for Hearts" on Facebook</p><p>💷 Support someone with heart failure today: donate@pumpingmarvellous.org — £10 makes a difference</p><p><br></p><p>Heart Failure Unfiltered is produced by the Pumping Marvellous Foundation — the UK's heart failure charity. Our mission is to make sure no one faces heart failure alone.</p><p><br></p><p>#HeartFailure #HeartFailureAwareness #HeartFailureUnfiltered #PumpingMarvellous #InvisibleIllness #ChronicIllness #CarerSupport #HeartHealth #MensHealth #ChronicFatigue #HeartFailureLife #CarersUK #PatientStories #HeartDisease #LivingWithHeartFailure #MentalHealthMatters #InvisibleDisability #ChronicIllnessCommunity #HeartFailureCarer #YouLookSoWell</p>
July 1, 2026
Heart Failure Unfiltered | One Couple's Raw Truth About a Heart Failure Diagnosis
<p>What really happens the moment you're told you have heart failure? Not the clinical version - the real one.</p><p><br></p><p>In this powerful episode of Heart Failure Unfiltered, Nick sits down with Gavin and Julie - a couple navigating life since Gavin's severe heart failure diagnosis in 2019. Gavin is a patient educator with the Pumping Marvellous Foundation and a long-term heart condition survivor. Julie is his wife, registered carer, and the person who held everything together when the world shifted.</p><p><br></p><p>Together, they share what no one tells you: the shock of the words "severe heart failure," being told to consider a heart transplant in under a minute, the referral that never arrived, the job that had to go, and the invisible weight carried by carers who are never asked how they're doing.</p><p><br></p><p>This is part one of a two-part series - raw, honest, and essential listening for patients, carers, and healthcare professionals alike.</p><p><br></p><p>In this episode:</p><p>00:00 — Welcome & what this series is about</p><p>00:43 — What is the Pumping Marvellous Foundation?</p><p>01:24 — Meet Gavin & Julie</p><p>02:39 — The moment Gavin couldn't breathe</p><p>03:45 — Calling the ambulance — and nearly not going</p><p>05:25 — Waiting overnight in A&E for answers</p><p>06:09 — The diagnosis delivered and gone in under a minute</p><p>09:22 — "You need to talk about a heart transplant"</p><p>11:32 — What patients actually need to hear at diagnosis</p><p>13:07 — The referral that was never made — self-advocacy in action</p><p>17:51 — Why heart failure support doesn't match cancer care</p><p>22:08 — The mental health impact: grief, isolation, and losing your future</p><p>25:29 — Forced into medical retirement — and fighting for it</p><p>28:27 — The carer no one checked in on</p><p>30:52 — Losing income, identity, and your social world</p><p>31:59 — Why "but you look so well" is its own kind of harm</p><p>32:16 — BEAT: why early detection changes everything</p><p><br></p><p>🫀 If heart failure is part of your life, you don't have to face it alone.</p><p>The Pumping Marvellous Foundation is the UK's leading heart failure charity — patient-led, trusted, and here for you.</p><p>🔗 Visit: www.pumpingmarvellous.org</p><p>💛 Donate £5 today and help someone feel less alone</p><p><br></p><p>#HeartFailure #HeartFailureAwareness #PumpingMarvellous #HeartFailureUnfiltered #CarerSupport #ChronicIllness #HeartHealth #PatientStories #HeartTransplant #MentalHealthAndHeartDisease #LivingWithHeartFailure #UKCharity #HeartFailurePatient #Cardiomyopathy #BEAT #EarlyDiagnosis #NHSPatients #HeartDisease #PatientAdvocacy #ChronicIllnessLife</p>
47 total episodes available
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This podcast updates bi-weekly.
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