Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
When you're at risk for Huntington's disease, deciding whether or not to undergo genetic testing is one of the most personal and life-changing decisions you may ever face.
But what happens after you get your results?
On this episode of Help 4 HD Live, I'm joined by a special guest, "Jules," who is sharing her genetic testing journey while choosing to remain anonymous.
For years, Jules wrestled with the decision of whether or not to test. When would she be ready? Did she really want to know? And how would knowing change her life?
Eventually, she reached a point where she felt ready to take that step.
Jules ultimately tested negative for Huntington's disease. But receiving a negative result doesn't necessarily mean the emotional journey ends there.
We talk about what led her to finally pursue testing, the emotions and challenges she experienced along the way, and what life has looked like since learning her results.
Because genetic testing isn't just about getting an answer. It's about everything that comes before it, everything that follows, and learning how to navigate life on the other side of uncertainty.
Whether you've tested positive, tested negative, decided not to test, or are still trying to figure out what's right for you, this is a conversation worth hearing.
💙 There is no right or wrong decision when it comes to genetic testing. There is only the decision that's right for YOU.
🎙️ Join us for an honest, personal conversation about genetic testing, identity, uncertainty, and life after the results.
#Help4HDLive #HuntingtonsDisease #GeneticTesting #LifeAfterTesting #HDCommunity #HDAwareness
1 Oct 2026
Genetic Testing: Time to Test and Process
In this episode of Help 4 HD Live, host Katie Jackson sits down with Wes, a certified genetic counselor and director of HD Genetics, to explore the complexities of genetic testing for Huntington’s disease. Now in its fourth year, HD Genetics provides remote genetic counseling and testing services for the HD community, supporting families as they navigate difficult decisions around predictive genetic testing. The conversation covers the personal journey of deciding when—or if—to get tested, the emotional and practical implications of positive, negative, or ambiguous results, and the importance of individualized support. Wes explains the different testing methods available, their accuracy, and what test outcomes mean for individuals and their families. The episode also delves into common misconceptions, the role of genetic counseling in managing expectations, and the significance of timing in the decision-making process. Whether you’re considering genetic testing, supporting a loved one, or simply want to better understand Huntington’s disease, this episode offers compassionate guidance and expert insights into one of the most personal choices facing the HD community.
24 Sept 2026
Katrina and Jamie - Help 4 HD Toolkit Part 2
To read/Print the safety planning chapter of the Help 4 HD Toolkit, click here: Help4HD Database (https://digitalgrowthfirm.adalo.com/help4hd-database?target=d8zbtxk64am4x0npr3ocsup6f&params=%7B%22884i1bgoxz38p2yh0mazdp0qw.t_0j04ssk9wizp5wqo1uk4j80gm%22%3A886%7D)
Who has been a guest on Help 4 HD Live!
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Jeremy Renz
Katie Jackson
Jennifer Goddard
Erin Paterson
Dr Ed Wild
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5.0 / 5
1 ratings
Podcast Authority Score: 13 / 100
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26
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YouTube
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Lauren and Lauren Holder host the show. Published by Help 4 HD Live!.
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