Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
Help 4 HD Live!
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Podcast Overview
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
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Publishing Since
11/15/2010
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Recent Episodes
July 23, 2026
Patient Clinic Survey Update with HD-PACE
How are Huntington's disease clinics doing when it comes to the patient experience?<br /><br />On this episode of Help 4 HD Live, I'm joined by Sarina Smith of HD-PACE to share an update on our Clinical Patient Experience Survey—and we need your help! We're incredibly close to reaching 100 responses from people across the U.S. HD community. Every response helps us better understand what's working, where improvements are needed, and how we can use real patient experiences to advocate for better care.<br /><br />If you've been seen at any HD clinic in the United States or you are a support person who takes a loved one to an HD clinic, your voice matters.🎧<br /><br />Please visit <a href="https://hdpace.org" target="_blank" rel="noreferrer noopener">hdpace.org</a> for more information! You can also access the survey <a href="https://docs.google.com/forms/d/e/1FAIpQLSeXBCbVFqPxmHgG5aM6YYAZUp-9ipc9GkoDDs1X74K-aXaM9Q/viewform" target="_blank" rel="noreferrer noopener">here</a>.
July 9, 2026
Response to Roche Update with HDBuzz
Today, Roche announced they will be ending two of their programs for <a href="https://www.facebook.com/hashtag/huntingtonsdisease?__cft__%5B0%5D=AZbGk6KdawneZFLhInzjmYOGwiuMq0bt2rLO3UfoBf0WwdvxYls38YQ82fev4MAwurpR2hragKb_nTp3Pps39MqTjlYi7_uBTpKMx-zqLqNQ0Pc_PI_5w6MyD8xDtY460pqENv6LrV3T4t-9og4OMsOjD6sBF_pc2691zechQD5b-W6Xt8SIGhUM0ZsZmYHV98Sy0PJasrPcv2aiIa0s0vkj&__tn__=*NK-R" target="_blank" rel="noreferrer noopener">#HuntingtonsDisease</a>. Dr. Rachel Harding of <a href="https://www.facebook.com/groups/228321963887495/user/100063674885594/?__cft__%5B0%5D=AZbGk6KdawneZFLhInzjmYOGwiuMq0bt2rLO3UfoBf0WwdvxYls38YQ82fev4MAwurpR2hragKb_nTp3Pps39MqTjlYi7_uBTpKMx-zqLqNQ0Pc_PI_5w6MyD8xDtY460pqENv6LrV3T4t-9og4OMsOjD6sBF_pc2691zechQD5b-W6Xt8SIGhUM0ZsZmYHV98Sy0PJasrPcv2aiIa0s0vkj&__tn__=-%5DK-R" target="_blank" rel="noreferrer noopener">HDBuzz</a> will be joining Lauren to talk about this and what it means for the HD community.
June 25, 2026
On the Other Side of Approval with Jeremy Renz
For years, we've talked about clinical trials, FDA meetings, setbacks, and progress. Today, we're talking about something many of us have dreamed about for a long time: What happens if AMT-130 gets approved? Approval wouldn't answer every question, and it wouldn't solve every challenge. But it would represent something our community has waited decades for—the possibility of having a disease-modifying treatment for Huntington's disease. On today's Help 4 HD Live, Jeremy Renz and I are taking a realistic look at what could happen next. We'll discuss what approval could mean, what hurdles would still remain, and what patients and families might expect moving forward.💙 #HuntingtonsDisease #AMT130 #GeneTherapy #Help4HDLive #TimeMatters #DelayStealsTime
633 total episodes available
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- What is Help 4 HD Live!?
- How often does this podcast release new episodes?
This podcast updates daily.
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This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
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No, this podcast does not typically feature guests.
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