Herding Hope is a podcast all about finding connection, courage, and community in the world of TGCT and rare diseases. Hosted by Sydney and Virginia, each episode explores the shared experiences that unite rare disease patients alongside the unique journeys that make every story powerful. Through honest conversations with patients, clinicians, and advocates, Herding Hope shines a light on what it’s really like to live with TGCT and the hope that grows when stories are shared.
Created by TGCT Support, this podcast is a place for learning, listening, and lifting each other up. TGCTSupport.org
After more than a decade living with diffuse TGCT of the knee, Erin C has learned that the journey is about far more than a diagnosis. From seeing numerous specialists and navigating different opinions to finding providers she trusts, Erin shares the challenges of advocating for herself through a long and complicated medical journey.
But her story isn’t defined by TGCT. Erin C talks about the family, friends, and patient community who helped carry her through the hardest moments and the importance of surrounding yourself with people who understand. In this episode, she shares the lessons she’s learned, the strength she’s found along the way, and why TGCT may be part of her story, but it will never define who she is.
15 Sept 2026
Episode 19: Serena
For Serena, a TGCT diagnosis came with more questions than answers. Diagnosed with TGCT and undergoing surgery just 1 year ago, she shares what it has been like navigating the unexpected challenges of recovery and finding her way back to strength and balance.
As a patient from Germany, Serena opens up about her experience with TGCT, the physical and emotional realities of recovery, and the patience it takes to rebuild confidence in your body after surgery. Her story is a reminder that healing isn’t always a straight line and that progress can look different than we expect.
1 Sept 2026
Episode 18: Amy
Amy, a patient with diffuse hip TGCT, shares her experience navigating surgery and unexpectedly waking up with a hip replacement. As a young patient in her 20s, she faced difficult decisions about treatment and joint replacement while also thinking about growing her family. Now, with her daughter by her side, Amy reflects on how TGCT and her treatment journey continue to impact her life, mobility, and family.
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
5.0 / 5
4 ratings
Spotify
5.0 / 5
7 ratings
Contact Herding Hope: Zebra and TGCT Talk
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Host of Herding Hope: Zebra and TGCT Talk?
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