Where can I listen to this podcast?

This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.

Does this podcast accept guests?

Yes, this podcast regularly features guests.

Herding Hope: Zebra and TGCT Talk

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by TGCT Support

5.0(4 reviews)

15 episodes

Updated Daily

Accepts GuestsHas Sponsors

Podcast Overview

Herding Hope is a podcast all about finding connection, courage, and community in the world of TGCT and rare diseases. Hosted by Sydney and Virginia, each episode explores the shared experiences that unite rare disease patients alongside the unique journeys that make every story powerful. Through honest conversations with patients, clinicians, and advocates, Herding Hope shines a light on what it’s really like to live with TGCT and the hope that grows when stories are shared. Created by TGCT Support, this podcast is a place for learning, listening, and lifting each other up. TGCTSupport.org

Language

🇺🇲

Publishing Since

1/6/2026

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Recent Episodes

July 21, 2026

Episode 15: Camille

Camille is a patient living with diffuse TGCT of the knee who has found the power behind her voice. In this episode, Camille shares his personal journey navigating her healthcare and mental health. She speaks about the importance of self advocacy, representation of all patients, and counseling and therapy played a role in her acceptance and journey. Camille’s story offers encouragement to others facing similar obstacles and reminding listeners that finding your voice can make a meaningful difference in your journey.

July 7, 2026

Episode 14: Dr Dale Shepard, MD, PhD Part 2

What does managing TGCT treatment really look like day to day? In this episode, Dr. Dale Shepard, MD, PhD, medical oncologist at Cleveland Clinic, shares practical insights into monitoring and managing side effects during systemic therapy for TGCT. From laboratory blood testing to symptom management strategies, Dr. Shepard explains how he guides patients through treatment while helping them stay informed, prepared, and supported along the way.

June 23, 2026

Episode 13: Dr Dale Shepard, MD, PhD Part 1

Join Dr. Dale Shepard, MD, PhD, medical oncologist at Cleveland Clinic, for an insightful and approachable conversation on navigating systemic therapies for TGCT. In this episode, Dr. Shepard breaks down how he helps patients set realistic expectations around treatment outcomes, side effects, and fertility considerations while empowering them to make informed decisions about their care. Whether you’re a patient, caregiver, or clinician, this episode offers practical guidance and compassionate perspective on the TGCT treatment journey.

15 total episodes available

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Frequently asked questions

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What is Herding Hope: Zebra and TGCT Talk?: Herding Hope is a podcast all about finding connection, courage, and community in the world of TGCT and rare diseases. Hosted by Sydney and Virginia, each episode explores the shared experiences that unite rare disease patients alongside the unique journeys that make every story powerful. Through honest conversations with patients, clinicians, and advocates, Herding Hope shines a light on what it’s really like to live with TGCT and the hope that grows when stories are shared.

Created by TGCT Support, this podcast is a place for learning, listening, and lifting each other up. TGCTSupport.org
How often does this podcast release new episodes?: This podcast updates daily.
Where can I listen to this podcast?: This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
Does this podcast accept guests?: Yes, this podcast regularly features guests.

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