Where can I listen to this podcast?

This podcast is available on 8 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.

Does this podcast accept guests?

Yes, this podcast regularly features guests.

Hidden Diagnoses Impact: Unveiling EDS, CCI, and other undiagnosed or underdiagnosed conditions

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by Amy Wang-Hiller

5.0(10 reviews)

12 episodes

Updated Weekly

Accepts GuestsHas SponsorsLocation 🇺🇸

Podcast Authority

Beta

FairBased on show quality, social media presence, reviews, charts, and more

Quality49

Social91

YouTube82

Engagement32

Learn more

Podcast Overview

Hidden Diagnoses Impact shares stories from people living with EDS, CCI/AAI, tethered cord, brainstem compression, and other complex neurological conditions that are frequently delayed or dismissed in medical care. Hosted by violinist and advocate Amy Wang-Hiller, the podcast explores medical gaslighting, trauma-informed care, disability identity, and rebuilding life after diagnosis. Through conversations with patients, clinicians, and advocates, we transform lived experience into actionable insight and community hope. Hidden Diagnoses Impact is owned by Wang-Hiller Impact Media Medical disclaimer: Hidden Diagnoses Impact is for informational and educational purposes only and is not medical advice. It does not create a provider–patient relationship. The views expressed are those of the speakers, not their employers or affiliated institutions. Always consult your own qualified healthcare professional about your condition and treatment.

Language

🇺🇲

Publishing Since

5/2/2024

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🇺🇸 Charts #3

Outreach generated

Apple 142

Spotify 827

Instant mention tracking

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Podcast Authority

Beta

FairBased on show quality, social media presence, reviews, charts, and more

Quality49

Social91

YouTube82

Engagement32

Learn more

Excellent Areas

Good Performance

Growth Opportunities

excellent

Episode Length

11 minutes

Performing excellently!

poor

Publishing Consistency

Every 39 days

Recommendations available

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Recent Episodes

August 13, 2025

Medical Dismissal, Diagnostic Trauma, and Patient Self-Doubt with Dr. Colin Halverson | HDI Podcast

In this powerful episode of Hidden Diagnoses Impact, Dr. Colin Halverson—medical anthropologist and faculty investigator at Indiana University’s Center for Bioethics—joins host Amy Wang-Hiller to unpack the systemic failures facing patients with rare and invisible conditions, particularly Ehlers-Danlos Syndrome (EDS) and craniocervical instability (CCI).We explore the disturbing impact of medical gaslighting, misdiagnosis, and the psychological toll of repeated clinical dismissal. Dr. Halverson introduces the concept of clinician-associated traumatization and shares research findings showing how dismissal erodes patient trust, fuels self-doubt, and creates barriers to care, especially for younger, disabled, and chronically ill individuals navigating the healthcare system.Whether you're a patient, clinician, caregiver, or advocate, this episode offers deep insights into how ethical reform and empathetic communication can transform outcomes for those living with rare and misunderstood conditions.Please follow us on social media <a href="https://www.instagram.com/hiddendiagnosesimpact/" rel="ugc noopener noreferrer" target="_blank">@HiddenDiagnosesImpact</a>, watch the video format on YouTube <a href="https://www.youtube.com/@hiddendiagnosesimpact" rel="ugc noopener noreferrer" target="_blank">@hiddendiagnosesimpact</a> Support this podcast and the mission of our forming nonprofit, which aims to raise awareness of complex neurological conditions like CCI and EDS, uplift disabled artists, and spark systemic change in both medicine and the creative world:<a href="https://inclusivibe.betterworld.org/donate" rel="ugc noopener noreferrer" target="_blank">https://inclusivibe.betterworld.org/donate</a>more detail visit: <a href="inclusivibe.org" target="_blank" rel="ugc noopener noreferrer">inclusivibe.org</a>Please leave your review. Your feedback is so valuable to us! And it will help us reach more listeners like you.Thank you for your support!

October 30, 2024

Redefining Recovery: Christina’s Journey Living with EDS and Its Hidden Challenges

Send us a textIn this episode of Hidden Diagnosis Impact, Christina shares her powerful journey living with Ehlers-Danlos Syndrome (EDS) and the complexities of navigating a healthcare system that often overlooks rare conditions. Christina opens up about her early symptoms, the pain of repeated misdiagnoses, and the emotional toll of being dismissed and mischaracterized by doctors. Her story sheds light on the physical challenges of EDS, from spinal instability to brainstem complications...

August 1, 2024

Patient Advocacy in Need: Kiera’s Dual Journey as a Public Health Scholar and Patient

Send us a textIn this episode, we welcome Kiera Chan, a public health PhD student and patient advocate who shares her unique journey through the healthcare system. Kiera combines her professional insights and personal experiences to highlight the challenges of navigating complex medical issues, advocating for off-label treatments, and addressing healthcare disparities. Please listen to her story and practical advice on empowering patients and improving their quality of life.Bridging Pers...

12 total episodes available

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What is Hidden Diagnoses Impact: Unveiling EDS, CCI, and other undiagnosed or underdiagnosed conditions?: Hidden Diagnoses Impact shares stories from people living with EDS, CCI/AAI, tethered cord, brainstem compression, and other complex neurological conditions that are frequently delayed or dismissed in medical care. Hosted by violinist and advocate Amy Wang-Hiller, the podcast explores medical gaslighting, trauma-informed care, disability identity, and rebuilding life after diagnosis. Through conversations with patients, clinicians, and advocates, we transform lived experience into actionable insight and community hope. Hidden Diagnoses Impact is owned by Wang-Hiller Impact Media

Medical disclaimer: Hidden Diagnoses Impact is for informational and educational purposes only and is not medical advice. It does not create a provider–patient relationship. The views expressed are those of the speakers, not their employers or affiliated institutions. Always consult your own qualified healthcare professional about your condition and treatment.
How often does this podcast release new episodes?: This podcast updates weekly.
Where can I listen to this podcast?: This podcast is available on 8 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
Does this podcast accept guests?: Yes, this podcast regularly features guests.

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