About Hidden Diagnoses Impact: Unveiling EDS, CCI, and other undiagnosed or underdiagnosed conditions
Hidden Diagnoses Impact shares stories from people living with EDS, CCI/AAI, tethered cord, brainstem compression, and other complex neurological conditions that are frequently delayed or dismissed in medical care.
Hosted by violinist and advocate Amy Wang-Hiller, the podcast explores medical gaslighting, trauma-informed care, disability identity, and rebuilding life after diagnosis. Through conversations with patients, clinicians, and advocates, we transform lived experience into actionable insight and community hope.
Hidden Diagnoses Impact is owned by Wang-Hiller Impact Media
Medical disclaimer:
Hidden Diagnoses Impact is for informational and educational purposes only and is not medical advice. It does not create a provider–patient relationship. The views expressed are those of the speakers, not their employers or affiliated institutions. Always consult your own qualified healthcare professional about your condition and treatment.
Medical Dismissal, Diagnostic Trauma, and Patient Self-Doubt with Dr. Colin Halverson | HDI Podcast
In this powerful episode of Hidden Diagnoses Impact, Dr. Colin Halverson—medical anthropologist and faculty investigator at Indiana University’s Center for Bioethics—joins host Amy Wang-Hiller to unpack the systemic failures facing patients with rare and invisible conditions, particularly Ehlers-Danlos Syndrome (EDS) and craniocervical instability (CCI).
We explore the disturbing impact of medical gaslighting, misdiagnosis, and the psychological toll of repeated clinical dismissal. Dr. Halverson introduces the concept of clinician-associated traumatization and shares research findings showing how dismissal erodes patient trust, fuels self-doubt, and creates barriers to care, especially for younger, disabled, and chronically ill individuals navigating the healthcare system.
Whether you're a patient, clinician, caregiver, or advocate, this episode offers deep insights into how ethical reform and empathetic communication can transform outcomes for those living with rare and misunderstood conditions.
Please follow us on social media @HiddenDiagnosesImpact (https://www.instagram.com/hiddendiagnosesimpact/), watch the video format on YouTube @hiddendiagnosesimpact (https://www.youtube.com/@hiddendiagnosesimpact)
Support this podcast and the mission of our forming nonprofit, which aims to raise awareness of complex neurological conditions like CCI and EDS, uplift disabled artists, and spark systemic change in both medicine and the creative world:
https://inclusivibe.betterworld.org/donate (https://inclusivibe.betterworld.org/donate)
more detail visit: inclusivibe.org (inclusivibe.org)
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30 Oct 2024
Redefining Recovery: Christina’s Journey Living with EDS and Its Hidden Challenges
Send us a textIn this episode of Hidden Diagnosis Impact, Christina shares her powerful journey living with Ehlers-Danlos Syndrome (EDS) and the complexities of navigating a healthcare system that often overlooks rare conditions. Christina opens up about her early symptoms, the pain of repeated misdiagnoses, and the emotional toll of being dismissed and mischaracterized by doctors. Her story sheds light on the physical challenges of EDS, from spinal instability to brainstem complications...
1 Aug 2024
Patient Advocacy in Need: Kiera’s Dual Journey as a Public Health Scholar and Patient
Send us a textIn this episode, we welcome Kiera Chan, a public health PhD student and patient advocate who shares her unique journey through the healthcare system. Kiera combines her professional insights and personal experiences to highlight the challenges of navigating complex medical issues, advocating for off-label treatments, and addressing healthcare disparities. Please listen to her story and practical advice on empowering patients and improving their quality of life.Bridging Pers...
30 Jun 2024
Arlen's Journey: Seeking Treatment for Rare Genetic Conditions in the U.S.
Send us a textIn this episode of the Occult Awareness podcast, we sit down with Arlen, who shares her compelling journey through the healthcare system with multiple rare genetic conditions, including Ehlers-Danlos Syndrome (EDS). Arlen's story is a testament to resilience, advocacy, and the challenges faced by those with rare and complex medical conditions.Early Symptoms and Misdiagnoses:Arlen’s lifelong battle with various symptoms started in childhood.Initial misdiagnoses and the impact on ...
24 Jun 2024
Unveiling Hidden Truths in Healthcare: The Stem Cell Dilemma - Occult Awareness Bonus Episode
Send us a textJoin us for this enlightening bonus episode of Occult Awareness, where we delve deeper into the complexities of the healthcare system. After our last in-depth discussion, our guest shared some additional critical insights that we couldn't keep to ourselves.In this episode, we explore the controversial world of alternative and complementary treatments, the role of financial gain in medical research, and the promising yet restricted field of stem cell therapy. Discover the real ch...
7 Jun 2024
Exploring Holistic Health: Insights from Licensed Professional Counselor Mark Michalica on Chronic Illness and Trauma
Send us a textIn this episode of Occult Awareness, we welcome Mark, a licensed professional counselor and health advocate, to discuss the complex interplay between chronic illness, trauma, and holistic health approaches. Mark shares his journey as both a professional and a patient, offering valuable insights into the limitations of the medical model and the importance of viewing health holistically.Key Discussion Points:Mark's journey into counseling and his experiences with chronic health is...
2 Jun 2024
Part 2: Systemic Failures and Hidden Diagnoses: Dr. Hillary Merry’s Advocacy
Send us a textIn Episode 5, Part 2 of Occult Awareness, Dr. Hillary Merry continues her deep dive into the critical issues of Craniocervical Instability (CCI) and systemic medical neglect. Part 2 of the conversation, Dr. Hillary Merry continues to uncover the hidden flaws in the medical system, focusing on how often critical tests are dismissed, and the consequences this has on patients with conditions like Craniocervical Instability (CCI). She highlights the systemic negligence that lea...
29 May 2024
Part 1 of Dr. Hilary Merry’s Journey with EDS: Navigating the Healthcare System as a Veterinarian
Send us a textIn this episode of Occult Awareness, we explore the personal and professional life of Dr. Hilary Merry, a veterinarian who has bravely faced the challenges of living with Ehlers-Danlos Syndrome (EDS) and multiple comorbidities. In part one, Dr. Merry shares her journey from experiencing early symptoms as a child to receiving a formal diagnosis at the age of 27. She opens up about the struggles and triumphs of navigating a healthcare system that often overlooks complex condi...
25 May 2024
Part 2 Aella's Story Continues: Advocacy and Challenges in Chronic Illness
Send us a textIn this episode of the "Occult Awareness" podcast, host Amy dives deeper into Aella's journey, exploring the complex and often frustrating realities of living with a chronic illness. From misdiagnoses and systemic healthcare issues to the everyday challenges faced by those with Ehlers-Danlos Syndrome (EDS) and other connective tissue disorders, Aella shares her experiences with raw honesty and courage.Join us as we discuss:The impact of stigmatization and misdiagnosis in the hea...
21 May 2024
Part 1: Unveiling the Unseen: Aella's Fight for Diagnosis Amidst Medical Gaslighting
Send us a textIn this gripping episode of Occult Awareness, Aella Askew bravely shares her harrowing journey through a maze of undiagnosed chronic illnesses and medical gaslighting.From a childhood filled with pain and dismissed symptoms to a life-altering spine injury, Aella's resilience shines through as she fights for answers and validation. Join us as we delve into the complexities of invisible illnesses, the power of self-advocacy, and the importance of finding community and support.&nbs...
6 May 2024
Finding the Joy in Life: Marika's Journey with Loeys-Dietz Syndrome & "Occult" Paralysis
Send us a textMarika emphasizes the importance of grieving and finding joy in daily life despite the difficulties. The hope is that the conversation will help others feel less alone and inspire better care in the medical field.In this episode of the "Occult Awareness" podcast, host Amy Wang-Hiller interviews Marika, who shares her journey navigating complex health conditions. Marika discusses living with Loeys-Dietz syndrome (LDS), a connective tissue disorder with various symptoms like hyper...
2 May 2024
Navigating the Maze of Rare Conditions: Why Sharing Our Stories Matters
Send us a textIn this deeply personal episode, join Amy as she shares her harrowing journey through a labyrinth of medical mysteries that span years of misdiagnoses and ineffective treatments. From the initial shocking symptoms following a float tank session to the life-altering diagnosis of Ehlers-Danlos Syndrome and related complications, Amy's story is one of resilience and relentless pursuit of answers. Delve into her experiences with sudden paralysis, chronic pain, mental health crises, ...
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
YouTube views
3,995
Score snapshot 15 Sept 2025
Apple Podcasts (US)
5.0 / 5
3 ratings
Spotify
5.0 / 5
7 ratings
Podcast Authority Score: 56 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
49
Social presence
91
YouTube
82
Engagement
32
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