They told Martin Addie he probably wouldn't live past his teenage years. Today, after more than six decades of living with severe hemophilia, he's sharing the lessons, struggles, and hope that shaped his journey. In this powerful conversation, Martin reflects on what it was like growing up before home treatment, prophylaxis, and many of the therapies people rely on today. From painful joint bleeds and long hospital stays to navigating insurance barriers, advocating for patients, and finding p...
6 Aug 2026
From Caregiver to Change Maker: Latasha Holt, PhD on Turning Challenges Into Change
Advocacy begins with one voice. After years searching for answers for her daughter, Latasha Holt, PhD discovered that receiving a diagnosis was only the first step. The next challenge was changing systems that weren't built for families living with rare diseases. In this inspiring conversation, Jonathan James and Latasha discuss: • Rare disease advocacy • Emergency medical access • School accommodations • Healthcare policy • Empowering caregivers • Finding hope through action If you've ev...
17 Jul 2026
More Than a Diagnosis: Finding Your Voice With von Willebrand Disease
For full Prescribing Information for VONVENDI, please visit: [https://takeda.info/3RMfhbp]. A bleeding disorder is part of someone’s story — but it is not the whole story. In this episode of the Hope Podcast, Jonathan James talks with Takeda Community Education Specialists Morgan Cook and Maria Rohan about living with von Willebrand disease, the power of self-advocacy, and why sharing personal experiences can create connection within the bleeding disorders community. The conversa...
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
YouTube views
103,912
Score snapshot 15 Sept 2025
Apple Podcasts (US)
4.8 / 5
5 ratings
Spotify
5.0 / 5
2 ratings
Podcast Authority Score: 33 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
18
Social presence
0
YouTube
86
Engagement
32
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