Jo Beardsworth and Emma Jardine present a carers’ and friends’ guide to living with young onset dementia. The podcast is a mixture of real-life conversations, thoughts and expert input to navigate the unique challenges that come with a diagnosis before old age.
Episode 25: Lessons from Living in a Care Home with Tuen Toebes - I Didn’t Sign Up For This
This week we interviewed the wonderful Teun Toebes. Teun is now 25 years old and an advocate for the way in which we deal with dementia care, whatever the age of the individual living with it.
Teun says that dementia is a societal challenge - it impacts us all and the way to change the experience of feeling excluded from society is for us all to live together again rather than focus on safety and control. People with dementia want to feel included and not feel like they are 'the other'.
From his experience of sharing a home with those living with dementia in the Netherlands for 3 years, Teun knows this to be true seeing the benefit not only to those living with dementia but in those caring for them too.
As Teun says, good intentions can lead to a reduced quality of life and a more nuanced view is needed.
Have a listen and if you want to know more, you can see clips of Teun's work on Youtube and visit human-forever.com (http://human-forever.com/) to sign up for the newsletter. We hope the film human-Forever will be available in the UK later this year.
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11 Jun 2024
Episode 24: The Culture of Care with David Sheard - I Didn’t Sign Up For This
Jo and Emma chat again with one of their favourite humans David Sheard, Professor of Emotional Intelligence in Dementia Care and expert in all things dementia care related in our view!
In this episode David talks about the importance of the culture of care and how this can get lost and why it is important for care culture to be at the forefront of all care settings - the benefits to both those giving and receiving care.
David talks about the importance of being vulnerable and creating real environments where both staff and residents can thrive and be the best versions of themselves, prolonging good quality life, maintaining dignity and connections with others. David shares how a change in culture can make a huge difference to everyone in dementia care and he reminds us of the precious nature of life that we are only ever a flicker away from not being here ourselves. What matters most is the creation of a feeling of home and small changes can make a huge difference. Take a listen...
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9 Apr 2024
Episode 23: The Manor: One Year On - I Didn’t Sign Up For This
In this episode Emma and Jo catch up with Rachel Beckett of The Manor Young Onset Dementia Unit 12 months on from opening. Rachel shares the journey of the last year and how the unit has become a home from home for residents and family members. Rachel shares her learnings and her hopes for the future of Young Onset Dementia care in the UK.
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