I'm Aware That I'm Rare: the phaware® podcast

About I'm Aware That I'm Rare: the phaware® podcast

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global

Publisher

phaware global association

Category

health & fitness · health & fitness

Language

en

Explicit

No

First episode

7 Sept 2016

Latest episode

6 Oct 2026

Latest episodes

134 of 600 episodes have a transcript.

1. 

   6 Oct 2026TRANSCRIPT

   Episode 593 - Lana Melendres-Groves, MD

   Host Zach Miller interviews Dr. Lana Melendres-Groves about how exercise dramatically improves pulmonary hypertension patient outcomes, offering a vital, often overlooked, path to better health.

2. 

   29 Sept 2026TRANSCRIPT

   Episode 592 - Wendy Mercado

   Host Noah Greenspan interviews Wendy Mercado, a mother of three and PAH patient, about her journey to diagnosis and finding hope with a pulmonary hypertension specialist.

3. 

   22 Sept 2026TRANSCRIPT

   Episode 591 - Jenn Lalonde

   Host Noah Smith interviews Canadian pulmonary hypertension patient Jenn Lalonde about navigating imposter syndrome and mental health challenges after surviving a rare disease.

Inside a recent episode

Episode 593 - Lana Melendres-Groves, MD

Published 6 Oct 2026 · Transcript excerpt

[…] And we know in regular exercise, when people do routine exercise, those without any of the underlying medical conditions, that what we see is improvements in people's heart rate and their cardiac output in their VO2 max. We see that their muscles become stronger, that they become more capable and that their ability to engage with just their emotional side of themselves, their mental health, those all improve. And our pulmonary hypertension patients suffer in all of those ways because they can't exercise and that starts to debilitate them. I will say that just innumerable number of patients when I first meet them, their question on the very first time in clinic is, well, I'm afraid to do anything. […]

Who has been a guest on I'm Aware That I'm Rare: the phaware® podcast

Names identified in recent episode analyses. Showing up to five guests.

• Lana Melendres-Groves
• Wendy Mercado
• Jenn Lalonde
• Lynn Bouseman
• Abby Borstein

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)

5.0 / 5

20 ratings

Spotify

5.0 / 5

3 ratings

Podcast Authority Score: 60 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

87

Social presence

0

YouTube

0

Engagement

85

Contact I'm Aware That I'm Rare: the phaware® podcast

Guest appearances

Books guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.

Questions about I'm Aware That I'm Rare: the phaware® podcast