BIG NEWS! Geoff discusses a huge victory for the Kleefstra Syndrome community!
22 Jun 2023
IDefine the Future, Episode 3: Biorepository Road Show
The podcast is back! In this episode, Geoff discusses the Biorepository Road Show from CombinedBrain that is an amazing opportunity for the Kleefstra Syndrome Community!
Here are some useful links:
CSO Corner, Volume 3 (https://www.idefine.org/cso-corner-volume-3-biobanking/)
Biorepository Opportunity + Locations (https://www.idefine.org/opportunity-to-establish-ks-biobank/)
Kleefstra Syndrome Worldwide Map (https://www.kleefstraworldmap.org/)
Kleefstra Syndrome Awareness Day State Proclamation (https://www.counseling.org/docs/default-source/government-affairs/state-contacts-for-proclamation-requests.pdf?sfvrsn=a6df212c_8&eType=EmailBlastContent&eId=9b6291b4-bd49-428f-9799-eca6062a28df&eType=EmailBlastContent&eId=e20d5b68-3965-4f9c-9948-947a102c8451) and Template Letter (https://drive.google.com/file/d/1qWke1RPiKgd2VTwxYJnxpGCuPFBmQysS/view?eType=EmailBlastContent&eId=e20d5b68-3965-4f9c-9948-947a102c8451)
18 May 2022
IDefine the Future (Episode 2)
Geoff reviews the recent Southern Roots Reunion, discusses the upcoming family conference, and provides current updates about the work of IDefine
28 Apr 2022
IDefine the Future, Episode 1
The first episode of IDefine the Future, a podcast featuring the latest and greatest updates on Kleefstra Syndrome, hosted by Geoff Rhyne. In this episode, Geoff reflects on the experience of attending the Rare Entrepreneur Bootcamp held at Ultragenyx while discussing how the KS community can take "the next step."
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
4.5 / 5
2 ratings
Host of IDefine the Future?
Claim your podcast to manage its listing and keep your show details accurate.
Pod Engine is an independent podcast discovery and analytics service and is not affiliated with or endorsed by this podcast. Artwork and show content belong to their owners. Full legal notice.
Explore this show Podcast research with Pod Engine
