Inflammatory! We want everyone to understand what life is like living with a chronic fluctuating disease. The founders of Inflammatory Arthritis UK, Debbie and Katy, give a unique insight into their lives covering the realities of living with inflammatory arthritis (IA) in a positive and friendly way. They will discuss popular topics and answer questions with honesty based on their experiences navigating life with IA. Whether you’re personally affected, supporting a friend or family member, or simply seeking understanding, Inflammatory! is for you.
Inflammatory!
Claim This Podcastby Inflammatory Arthritis UK
5.0(1 reviews)
64 episodes
Updated Daily
Accepts GuestsHas SponsorsLocation 🇬🇧
40
Podcast Authority
BetaFairBased on show quality, social media presence, reviews, charts, and more
Quality81
Social0
YouTube0
Engagement0
Podcast Overview
Inflammatory! We want everyone to understand what life is like living with a chronic fluctuating disease. The founders of Inflammatory Arthritis UK, Debbie and Katy, give a unique insight into their lives covering the realities of living with inflammatory arthritis (IA) in a positive and friendly way. They will discuss popular topics and answer questions with honesty based on their experiences navigating life with IA. Whether you’re personally affected, supporting a friend or family member, or simply seeking understanding, Inflammatory! is for you.
Language
🇺🇲
Publishing Since
1/8/2025
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40
Podcast Authority
BetaFairBased on show quality, social media presence, reviews, charts, and more
Quality81
Social0
YouTube0
Engagement0
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Episode Length
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Recent Episodes
July 17, 2026
What Impacts Inflammatory Arthritis?
<p>Debbie and Katy wrap up the season with a candid conversation about heatwaves, illness, parenting teenagers, joint injections, diet experiments, movement, NHS walking rewards, and summer plans. They reflect on the insightful conversations with recent guests Jamie and Mel, explore gut health and food diaries, discuss the realities of fluctuating conditions, and share personal stories from daily life. The episode closes with summer break plans and a teaser for Debbie’s upcoming O2 climb fundraiser.</p><p><strong>Key Topics</strong></p><ul><li>Managing heat, humidity, fatigue, and flare‑ups</li><li>Teenagers, joint injections, and hospital chaos</li><li>Reflections on Jamie’s and Mel’s episodes: diet, gut health, microbiome, vegan resets</li><li>Food diaries, dietitian consultations, and personalised nutrition</li><li>Balancing convenience eating, cost of takeaways, and planning meals</li><li>NHS walking rewards scheme: accessibility, chronic illness considerations, tracking issues</li><li>Movement beyond walking: cycling, swimming, spinning, baseline activity</li><li>PE in schools, access to sports, private vs state school facilities</li><li>Fibromyalgia vs inflammatory arthritis symptoms</li><li>Summer holidays, travel plans, Wimbledon wand antics</li><li>Charity updates, upcoming projects, and Debbie’s O2 climb fundraiser</li></ul><p><strong>Key Words: </strong>heatwave, fatigue, humidity, joint injection, squeamish, gut health, microbiome, dietitian, food diary, fibromyalgia, inflammatory arthritis, movement, baseline activity, NHS walking rewards, accessibility, spinning, PE, teenagers, summer holidays, fundraiser, O2 climb</p><p><strong>Resources Mentioned</strong></p><ul><li>Inflammatory! <a href="https://inflammatoryarthritis.org/episode-9/" target="_blank" rel="ugc noopener noreferrer">One percent episode</a></li></ul><ul><li><a href="https://inflammatoryarthritis.org/" target="_blank" rel="ugc noopener noreferrer">Inflammatory Arthritis UK (IAUK) –</a> website, blogs, social channels</li><li><a href="https://www.bbc.co.uk/news/articles/cj6g0rdy40jo" target="_blank" rel="ugc noopener noreferrer">NHS Walking Rewards Scheme</a> – upcoming initiative</li><li><strong>IAUK contact</strong> – info@inflammatoryarthritis.org</li><li><strong>IAUK socials</strong> – Facebook, Instagram, LinkedIn, BlueSky</li><li><a href="https://www.youtube.com/@InflammatoryArthritis" target="_blank" rel="ugc noopener noreferrer">YouTube</a> – watch full podcast episodes</li></ul><p><strong>Key Quotes</strong></p><p>“We try to control the uncontrollable, and one way to do that is by what we eat.”</p><p>“I absolutely hate heights. So, what’s the best thing to do? Go climb the O2.”</p><p><strong>Disclaimer</strong>: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys, and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content. For more information, head to <a href="https://inflammatoryarthritis.org/" target="_blank" rel="ugc noopener noreferrer">https://inflammatoryarthritis.org/</a></p>
July 10, 2026
Mel Brooke: Psoriatic Arthritis & PRP-NeTT
<p>Mel Brooke joins Debbie and Katy to share her decades‑long journey with psoriasis, psoriatic arthritis, and later fibromyalgia and how lived experience led her into clinical research and ultimately to co‑founding <strong>PRP-NeTT</strong>, the UK Rheumatology Patient Research Partner Network and think tank.She discusses fatigue in all its forms, lifestyle experimentation, the complexity of comorbidities, and why patient voices must shape research. Mel explains how PRP-NeTT emerged from a national survey revealing gaps in patient involvement, and how mentoring, orientation, and shared decision‑making can transform research culture.</p><p><strong>Key topics: </strong></p><ul><li>The impact of poor sleep and the different “types” of fatigue</li><li>Early psoriasis, psoriatic arthritis diagnosis, and navigating denial</li><li>Lifestyle interventions: Mediterranean diet, vegan reset, symptom diaries, trigger mapping</li><li>Fibromyalgia as a comorbidity and the difficulty of distinguishing symptoms</li><li>Shared decision‑making and safe experimentation (e.g., turmeric and blood‑thinning interactions)</li><li>Mel’s transition from clinical research professional to patient research partner</li><li>GRAPPA’s work on patient‑reported outcomes and recognising fatigue as a major burden</li><li>The creation of <strong>PRP-Nett</strong>: survey findings, think‑tank model, mentoring, and improving patient involvement</li><li>The importance of disseminating research results back to patients</li><li>How people can get involved in research beyond clinical trials</li></ul><p><strong>Key words: </strong>psoriatic arthritis, psoriasis, fatigue crushes, sleep quality, fibromyalgia, neuroinflammation, lifestyle interventions, Mediterranean diet, trigger foods, symptom diary, shared decision‑making, patient research partner, GRAPPA, patient‑reported outcomes, PRP-NeTT, advocacy, peer support, rheumatology research, NIHR standards, mentoring, research involvement pathways</p><p><strong>Resources mentioned: </strong></p><ul><li><a href="https://prpnettt.substack.com/">PRP-neTT (UK Rheumatology Patient Research Partner Network)</a> Think tank, mentoring, and reflections on patient involvement <a href="https://prpnettt.substack.com/">https://prpnettt.substack.com/</a></li><li>PsA HQ website 'Guide to becoming a PRP' and ''Onboarding PRPs: A Simplified Guide for Research Teams” <a href="https://psazzgroup.wixsite.com/psa-hq">https://psazzgroup.wixsite.com/psa-hq</a></li><li><strong>GRAPPA</strong>: Group for Research and Assessment of Psoriasis and Psoriatic Arthritis International research body working on patient‑reported outcomes <a href="https://www.grappanetwork.org/">https://www.grappanetwork.org/</a></li><li><strong>GRAPPA research project </strong><a href="https://www.researchgate.net/publication/260761081_Patient_Involvement_in_Outcome_Measures_for_Psoriatic_Arthritis">Patient outcome measures</a><strong> </strong></li><li><strong>NIHR</strong>:UK standards for patient involvement in research <a href="https://www.nihr.ac.uk/">https://www.nihr.ac.uk/</a></li><li><strong>Inflammatory Arthritis UK:</strong> Research page for involvement opportunities <a href="https://inflammatoryarthritis.org/research/">https://inflammatoryarthritis.org/research/</a></li></ul><p><strong>Connect with Mel:</strong> Instagram: @PSA_HQ</p><p><strong>Connect with IAUK</strong></p><ul><li>Website: <strong>inflammatoryarthritis.org</strong></li><li>Newsletter: Sign up for updates and new episodes</li><li>Social: Facebook, Instagram, BlueSky, LinkedIn</li><li>YouTube: Watch full episodes, subscribe, and share</li></ul><p><strong>Disclaimer:</strong> Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys, and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content. For more information, head to <a href="https://inflammatoryarthritis.org/">https://inflammatoryarthritis.org/</a></p>
July 3, 2026
Jamie Boder: Yoga For AS
<p>Jamie Boder joins Debbie and Katy for a powerful, honest conversation about being diagnosed with Axial Spondyloarthritis (AxSpA) at 18, navigating Crohn’s disease, and learning to care for his whole self through movement, yoga, and mind–body practices. Jamie shares the emotional impact of diagnosis, the challenges of early adulthood with chronic illness, and the tools that helped him reclaim agency, stability, and joy.<strong>Key topics: </strong></p><ul><li>Early autoimmune symptoms and delayed diagnosis</li><li>Emotional impact of AxSpA at 18</li><li>Losing identity and social connection through reduced mobility</li><li>Dual diagnosis: AxSpA + Crohn’s disease</li><li>Treatment limitations (NSAIDs, biologics, care coordination)</li><li>Microbiome testing and the risks of extreme dietary control</li><li>Yoga, somatic practices, interoception, and fatigue management</li><li>Vagus nerve research and nervous system regulation</li><li>Sustainable lifestyle changes vs. “cure culture”</li><li>Jamie’s recent flare and reassessing medication</li><li>Building Yoga for AS and supporting the community</li></ul><p><strong>Key words: </strong>Axial Spondyloarthritis, AxSpA, Ankylosing Spondylitis, Crohn’s Disease, Inflammatory Arthritis, Yoga for AS, Jamie Boder, microbiome, vagus nerve, fatigue management, yoga nidra, somatic practices, autoimmune health, remission, inflammatory bowel disease, IBD, chronic illness support, nervous system regulation.</p><p><strong>Resources mentioned: </strong></p><ul><li>The Great Nerve, book exploring vagus nerve and inflammation</li><li>Yoga Nidra (guided deep relaxation for fatigue)</li><li>Yoga for Arthritis (training organisation)</li><li>Yoga for AS, Jamie’s organisation supporting AxSpA-friendly movement</li></ul><p><strong>Connect with Jamie: </strong></p><li>Instagram: <strong>@JamieBoder</strong></li><p>Instagram: <strong>@YogaForAS</strong></p><p><strong>Connect with IAUK</strong></p><li>Website: <strong>inflammatoryarthritis.org</strong></li><p>Newsletter: Sign up for updates and new episodes</p><p>Social: Facebook, Instagram, BlueSky, LinkedIn</p><p>YouTube: Watch full episodes, subscribe, and share</p><p><strong>Disclaimer:</strong> Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys, and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content. For more information, head to <a href="https://inflammatoryarthritis.org/">https://inflammatoryarthritis.org/</a></p>
64 total episodes available
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This podcast updates daily.
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This podcast is available on 7 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
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Yes, this podcast regularly features guests.
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