Everyone in the rare disease community has a story and every individual, every parent, every caregiver has a unique story to tell. Insightful Moments: My VIBE is here to tell those stories. We want to tell YOUR real-life stories and experiences from the rare disease community to inspire and remind listeners that we’re all in this together.
Insightful Moments: My VIBE
Claim This Podcastby PTC Therapeutics
5.0(5 reviews)
17 episodes
Updated Inactive
Accepts GuestsHas SponsorsLocation 🇺🇸
Podcast Overview
Everyone in the rare disease community has a story and every individual, every parent, every caregiver has a unique story to tell. Insightful Moments: My VIBE is here to tell those stories. We want to tell YOUR real-life stories and experiences from the rare disease community to inspire and remind listeners that we’re all in this together.
Language
🇺🇲
Publishing Since
8/29/2022
1 verified contact email on file for Insightful Moments: My VIBE
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Recent Episodes
December 5, 2023
Friedreich's Ataxia Symposium Part 2
Emily Hintze is joined by two guests who are affected by Friedreich's Ataxia to discuss their journeys and transformations into advocates for F.A.
December 5, 2023
Friedreich's Ataxia Symposium Part 1
Emily Hintze sits down with guests who are affected by Friedreich's Ataxia to discuss the connection between physical and mental health, and more.
December 5, 2023
Global Genes RARE Advocacy Summit - Part 2
Paula Orandash sits down with three mothers of children with diagnosed rare diseases to discuss their journey as a mother and a caregiver.
17 total episodes available
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Frequently asked questions
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- What is Insightful Moments: My VIBE?
- How often does this podcast release new episodes?
This podcast updates inactive.
- Where can I listen to this podcast?
This podcast is available on 9 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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