Season 1 Episode 3-Workplace Accommodations/Listening to Patient Stories/Dysautonomia
In this episode, Angelic and Margaret continue the conversation from episode 2. We discuss workplace accommodations, the challenge of not feeling or being heard by medical providers, being a person with multi-morbidities, and dysautonomia.
Resource Links
Workplace Accommodations in the United States
https://www.dol.gov/general/topic/disability/jobaccommodations#:~:text=A%20job%20accommodation%20is%20an,to%20work%20schedules%20or%20responsibilities.
Dysautonomia
https://dysautonomiainternational.org/page.php?ID=34
POTS
https://my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots
POTS & Inappropriate Sinus Tachycardia
https://my.clevelandclinic.org/podcasts/love-your-heart/pots-and-inappropriate-sinus-tachycardia
7 Feb 2023
Episode 2-The Forgotten Things
#hearingloss #auditoryprocessingdisorder #audiogram #tympanogram #socialisolation #lipreading #hearingaids
Welcome back to Invisible-the podcast about living and/or parenting while managing chronic illness and neurodivergence. In this episode, we discuss two major disabilities that we forgot in our first episode. Angelic is both hearing impaired and has auditory processing disorder, things that have strongly informed her life from the age of three. We discuss what her experiences using hearing aids were like, the social impacts of feeling shame due to her disability, the social isolation she experienced due to her disability, and related topics.
Resource Links:
Audiogram: https://www.asha.org/public/hearing/audiogram/
Tympanogram: https://my.clevelandclinic.org/health/diagnostics/24222-tympanometry
Auditory Processing Disorder: https://www.audiology.org/consumers-and-patients/hearing-and-balance/auditory-processing-disorders/
Hearing Loss and Social Isolation: https://www.npr.org/sections/health-shots/2019/09/12/760231279/untreated-hearing-loss-linked-to-loneliness-and-isolation-for-seniors
https://nsu.com.au/medical-news/hearing-loss-loneliness-and-social-isolation/#.Y-G22HbMIok
16 Jan 2023
Episode 1-Meet the Hosts
#invisibleillness #chronicillnessawareness #coronaryvasospasm #inappropriatesinustachycardia #asthma #ankylosingspondylitis
Invisible is a podcast that focuses on creating community for those living and parenting within the context of being neurodivergent and navigating living with chronic illnesses. Our goal is to share stories in order to foster connection, curiosity, and empathy. In this episode, Angelic and Margaret, best friends and two of the podcast hosts, share their stories. We look forward to hearing from our listeners to continue to build a bridge toward understanding, acceptance, and visibility for those who share similar lived experiences.
Resource Links:
Coronary Vasospasm: https://www.internationalheartspasmsalliance.org/conditions/coronary-vasospasm/
Dysautonomia: https://dysautonomiainternational.org/
Inappropriate Sinus Tachycardia: https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/inappropriate-sinus-tachycardia/
Ankylosing Spondylitis: https://www.mayoclinic.org/diseases-conditions/ankylosing-spondylitis/symptoms-causes/syc-20354808
Asthma: https://www.mayoclinic.org/diseases-conditions/asthma/symptoms-causes/syc-20369653
Ehlers Danlos Syndrome: https://www.ehlers-danlos.com/what-is-eds/
IBS: https://www.hopkinsmedicine.org/health/conditions-and-diseases/irritable-bowel-syndrome-ibs
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4 ratings
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