Living and parenting with chronic illness and neurodivergence. #asd #adhd #gad #mdd #ocd #dysautonomia #vasospasms #arthritis
Invisible
Claim This Podcastby Angelic Denhof-Bokor
5.0(4 reviews)
3 episodes
Updated Daily
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Podcast Overview
Living and parenting with chronic illness and neurodivergence. #asd #adhd #gad #mdd #ocd #dysautonomia #vasospasms #arthritis
Language
🇺🇲
Publishing Since
1/16/2023
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Recent Episodes
February 20, 2023
Season 1 Episode 3-Workplace Accommodations/Listening to Patient Stories/Dysautonomia
<p>In this episode, Angelic and Margaret continue the conversation from episode 2. We discuss workplace accommodations, the challenge of not feeling or being heard by medical providers, being a person with multi-morbidities, and dysautonomia. </p> <p><strong>Resource Links</strong></p> <p><strong>Workplace Accommodations in the United States</strong></p> <p>https://www.dol.gov/general/topic/disability/jobaccommodations#:~:text=A%20job%20accommodation%20is%20an,to%20work%20schedules%20or%20responsibilities.</p> <p><strong>Dysautonomia</strong></p> <p>https://dysautonomiainternational.org/page.php?ID=34</p> <p><strong>POTS</strong></p> <p>https://my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots</p> <p><strong>POTS & Inappropriate Sinus Tachycardia</strong></p> <p>https://my.clevelandclinic.org/podcasts/love-your-heart/pots-and-inappropriate-sinus-tachycardia</p> <p><br></p>
February 7, 2023
Episode 2-The Forgotten Things
<p>#hearingloss #auditoryprocessingdisorder #audiogram #tympanogram #socialisolation #lipreading #hearingaids</p> <p>Welcome back to Invisible-the podcast about living and/or parenting while managing chronic illness and neurodivergence. In this episode, we discuss two major disabilities that we forgot in our first episode. Angelic is both hearing impaired and has auditory processing disorder, things that have strongly informed her life from the age of three. We discuss what her experiences using hearing aids were like, the social impacts of feeling shame due to her disability, the social isolation she experienced due to her disability, and related topics.</p> <p><strong>Resource Links:</strong></p> <p><strong>Audiogram</strong>: https://www.asha.org/public/hearing/audiogram/</p> <p><strong>Tympanogram</strong>: https://my.clevelandclinic.org/health/diagnostics/24222-tympanometry</p> <p><strong>Auditory Processing Disorder</strong>: https://www.audiology.org/consumers-and-patients/hearing-and-balance/auditory-processing-disorders/</p> <p><strong>Hearing Loss and Social Isolation</strong>: https://www.npr.org/sections/health-shots/2019/09/12/760231279/untreated-hearing-loss-linked-to-loneliness-and-isolation-for-seniors</p> <p>https://nsu.com.au/medical-news/hearing-loss-loneliness-and-social-isolation/#.Y-G22HbMIok</p>
January 16, 2023
Episode 1-Meet the Hosts
<p>#invisibleillness #chronicillnessawareness #coronaryvasospasm #inappropriatesinustachycardia #asthma #ankylosingspondylitis</p> <p><strong>Invisible </strong>is a podcast that focuses on creating community for those living and parenting within the context of being neurodivergent and navigating living with chronic illnesses. Our goal is to share stories in order to foster connection, curiosity, and empathy. In this episode, Angelic and Margaret, best friends and two of the podcast hosts, share their stories. We look forward to hearing from our listeners to continue to build a bridge toward understanding, acceptance, and visibility for those who share similar lived experiences.</p> <p><strong>Resource Links:</strong></p> <p><strong>Coronary Vasospasm:</strong> https://www.internationalheartspasmsalliance.org/conditions/coronary-vasospasm/ </p> <p><strong>Dysautonomia</strong>: https://dysautonomiainternational.org/</p> <p><strong>Inappropriate Sinus Tachycardia</strong>: https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/inappropriate-sinus-tachycardia/</p> <p><strong>Ankylosing Spondylitis</strong>: https://www.mayoclinic.org/diseases-conditions/ankylosing-spondylitis/symptoms-causes/syc-20354808</p> <p><strong>Asthma</strong>: https://www.mayoclinic.org/diseases-conditions/asthma/symptoms-causes/syc-20369653</p> <p><strong>Ehlers Danlos Syndrome</strong>: https://www.ehlers-danlos.com/what-is-eds/</p> <p><strong>IBS</strong>: https://www.hopkinsmedicine.org/health/conditions-and-diseases/irritable-bowel-syndrome-ibs</p>
3 total episodes available
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Frequently asked questions
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- What is Invisible?
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This podcast updates daily.
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This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
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