It's a Rare Story is a podcast dedicated to amplifying the voices of those living with rare diseases and disabilities. Hosted by Sarah, who underwent a life-changing bone marrow transplant for an ultra-rare Glycoprotein Storage Disease, Alpha-Mannosidosis. This channel features powerful stories of resilience, hope, and determination. Hear how individuals navigate their unique journeys and learn that a diagnosis doesn't define their future. We believe in the strength of shared experiences and the power of living life to the fullest, no matter what. Subscribe to join our community!
It's a Rare Story
Claim This Podcastby Sarah Forsman
5.0(2 reviews)
8 episodes
Updated Daily
Accepts GuestsHas SponsorsLocation 🇺🇸
48
Podcast Authority
BetaFairBased on show quality, social media presence, reviews, charts, and more
Quality53
Social0
YouTube72
Engagement32
Podcast Overview
It's a Rare Story is a podcast dedicated to amplifying the voices of those living with rare diseases and disabilities. Hosted by Sarah, who underwent a life-changing bone marrow transplant for an ultra-rare Glycoprotein Storage Disease, Alpha-Mannosidosis. This channel features powerful stories of resilience, hope, and determination. Hear how individuals navigate their unique journeys and learn that a diagnosis doesn't define their future. We believe in the strength of shared experiences and the power of living life to the fullest, no matter what. Subscribe to join our community!
Language
🇺🇲
Publishing Since
2/28/2025
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48
Podcast Authority
BetaFairBased on show quality, social media presence, reviews, charts, and more
Quality53
Social0
YouTube72
Engagement32
7
Excellent Areas
2
Good Performance
10
Growth Opportunities
excellent
Episode Length
35 minutes
Performing excellently!
good
Publishing Consistency
Every 14 days
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Recent Episodes
June 16, 2025
Finding Gratitude with Being Born with a Cleft Lip and Palate | Ep. 07
Darcey Wright shares her experiences of being born with a cleft lip and palate, and how it inspires her goal to become a pediatric plastic surgeon in an interview with Sarah.
May 9, 2025
Kat's Story with TAR Syndrome - Episode 06
<p>On this week's episode, Sarah sat down with Kat. She was born with Thrombocytopenia-Absent Radius (TAR) Syndrome and shares how navigating life has been.Kat is a campus staff minister with InterVarsity Christian Fellowship at Rider University and Rowan College of South Jersey. She is a mom to a two year old boy and has been married for 5 years to her college sweet heart. She hosts a podcast called No Day is Normal where she shares about her experience with Ableism and accessibility in today's culture.Instagram: @kathlyn.roffinaPodcast Instagram: @nodayisnormal ...Want your story to be featured on It's a Rare Story? Contact us today at itsararestory@gmail.comFollow us on:TikTok: @ItsARareStoryInstagram: @ItsARareStoryYouTube: <a href="https://studio.youtube.com/channel/UCGwE_LQTqcAW2U6wJWFIWCg"> @ItsaRareStory </a></p>
April 25, 2025
Shannon's Story with a Traumatic Brain Injury - Episode 05
<p>On this week’s episode, Sarah sat down with Shannon. She sustained a traumatic brain injury when she was three and shares how life has been since then.Meet Shannon!Shannon is a graduate of Washington Township High School and Rowan College of South Jersey. She is a personal trainer at RiverWinds Community Center and has a certification in NASM, Women's Fitness Specialist and Senior Fitness Specialist. Shannon loves country music, fashion, arts and crafts, true crime, and cats.She has not let the traumatic brain injury stop her from pursuing all the things in life. Her story shines a light on overcoming obstacles.For "Saving Shannon - A Family's Story of Strength and Devotion" by Paul J. Mulhern, Shannon's dad, visit https://www.amazon.com/Saving-Shannon-Fami...Instagram: shanylizmulhern Tiktok: @shanylizmulhern_Facebook: Shannon Mulhern</p>
8 total episodes available
Recent guests on It's a Rare Story
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Darcey Wright
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Frequently asked questions
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- What is It's a Rare Story?
- How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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