Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, Pulmonary Fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through Pulmonary Fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. Join us as we travel through their journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.
In this special episode of the Journeys Through Pulmonary Fibrosis Podcast, host Sharon Lee, CEO of the Canadian Pulmonary Fibrosis Foundation, is joined by respiratory specialists Professor Kerri Johansson and Professor Sanjay Chotirmall, to discuss why lungs can't wait. Together, they explore the challenges faced by people living with chronic lung diseases such as pulmonary fibrosis and bronchiectasis, including delayed diagnosis, limited awareness, and barriers to accessing specialist care. Through clinical expertise and patient-centered insights, the conversation highlights the importance of recognizing symptoms early, improving access to multidisciplinary care, and empowering patients and families throughout the care journey.
29 Jun 2026
When Scleroderma Affects the Lungs: Why it’s Important to Act Early.
In this episode of ‘Journeys Through Pulmonary Fibrosis’, host Ilaria Galetti is joined by Ruth Ajayi, who is living with systemic sclerosis, and a rheumatologist Dr Cosimo Bruni, to explore the impact of this rare autoimmune condition on lung health. Together, they discuss the often complex and emotional path to diagnosis, the challenge of navigating care across multiple medical specialties, and the realities of adapting to life with a chronic disease. Through both personal and clinical perspectives, the conversation highlights the importance of early detection in managing progressive lung scarring, and how a strong partnership between patients and healthcare professionals can help individuals navigate change and find a new sense of normal.
1 Aug 2024
How Collaboration Can Address Unmet Needs
This episode of the ‘Journeys Through Pulmonary Fibrosis’ podcast was filmed at the 2024 American Thoracic Society (ATS) conference. Our inspiring guests have joined together to discuss the unmet needs within pulmonary fibrosis and highlight the importance of collaboration within healthcare, and at a community level. This insightful discussion focuses on how to improve care pathways and quality of life for those affected by interstitial lung diseases.
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Apple Podcasts (US)
4.8 / 5
4 ratings
Spotify
4.8 / 5
4 ratings
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