In this episode of Let's Chat Endo, host Haley speaks with Helene Hill, a chronic illness advocate, about her journey with endometriosis and multiple chronic illnesses. Helene shares her experiences with diagnosis, treatment options, and the importance of advocating for oneself in the medical system. They discuss various pain management techniques, including ketamine infusions and pelvic floor Botox, as well as the emotional and physical challenges of living with chronic illness. Helene also opens up about her egg freezing journey and future plans regarding her health. The conversation emphasises the importance of community support and self-advocacy for those dealing with chronic conditions.
Chapters
00:00 Introduction to Helene Hill and Her Journey
03:08 Navigating Multiple Chronic Illnesses
05:50 The Importance of Advocacy and Second Opinions
08:56 Current Health Status and Treatment Experiences
11:50 Exploring Ketamine Infusions
14:39 Pelvic Floor Botox and Its Impact
22:06 Pelvic Floor Progress and Pain Management
24:27 The Journey of Egg Freezing
30:33 Current Health Status and Future Plans
32:24 Advice for Those Struggling with Chronic Illness
35:53 Fun and Quick Questions
endometriosis, chronic illness, pain management, ketamine infusion, pelvic floor, egg freezing, women's health, Helene Hill, Spoonie Society, chronic pain advocacy
6 Oct 2025
Lets Chat Endo with Qendo's CEO Jess Taylor
QENDO INFO https://www.qendo.org.au/
QENDO APP https://www.qendo.org.au/qendo-app
QendoCARE https://www.qendo.org.au/care
Resources https://www.qendo.org.au/endometriosis
In this episode of Let's Chat Endo, host Haley speaks with Jess Taylor, CEO of Qendo, about the challenges and triumphs of living with endometriosis. They discuss the importance of awareness, the need for systemic change in healthcare, and the role of Qendo in providing support and resources for those affected by endometriosis and related conditions. Jess shares her personal journey with endometriosis, the evolution of Qendo, and the future plans for expanding services and community involvement.
Chapters
00:00 Introduction to Qendo and Jess Taylor's Journey
01:45 Jess's Personal Experience with Endometriosis
08:55 The Formation and Evolution of Qendo
11:00 QendoCare: Expanding Access to Support
15:59 Building a Supportive Team and Community
20:05 Empowering Conversations in the Workplace
22:27 Breaking the Stigma Around Chronic Conditions
24:16 From Awareness to Action: The Need for System Change
26:51 Research and Community Engagement for Endometriosis
29:41 Innovative Approaches to Understanding Endometriosis
32:43 The Future of Endometriosis Care and Support
35:06 Mobilising the Community for Change
38:03 Building a Supportive Network for Endometriosis Patients
QENDO, endometriosis, chronic illness, Qendo, awareness, support, community, healthcare, women's health, pelvic pain, advocacy
29 Sept 2025
Endo and Gut Issues - NourishedbyOlivia
In this episode of Let's Chat Endo, host Haley speaks with Olivia, an accredited practicing dietitian and fellow endo warrior, about the intricate relationship between endometriosis, gut health, and nutrition. They share personal experiences with endometriosis, discuss the importance of dietary management, and debunk common misconceptions surrounding nutrition and supplements. Olivia emphasises the need for individualised care and the role of dietitians in helping manage symptoms and improve quality of life for those with endometriosis.
https://www.nourishedbyolivia.com.au/
Chapters
00:00 Introduction to Endometriosis and Nutrition
02:40 Olivia's Personal Journey with Endo and Celiac Disease
05:56 Understanding the Link Between Endo and Gut Health
08:48 Navigating Gut Health: Dietitian's Approach
11:19 Misinformation in Nutrition and Supplements
13:54 The Role of Diet in Managing Endometriosis
16:28 Identifying Triggers and Managing Symptoms
19:40 The Importance of Professional Guidance
22:14 Meal Planning and Practical Nutrition Tips
25:03 Finding the Right Dietitian for You
26:54 Conclusion and Final Thoughts
endometriosis, gut health, nutrition, dietitian, IBS, women's health, dietary management, celiac disease, pelvic pain, symptom management
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